3 year old with possible chrohn's?? Please read
Hi, I am really hoping there is someone on here that might be able to offer some input to what my son has been going through.
He is 3 years old and about two months before he turned 3 he started vomiting. At first we thought it was the flu, but then it kept happening. It would be daily then weekly, then nothing for a week or two, then again daily several times. I kept bringing it up to the pediatrician and he said it was post nasal drip and put him on nasonex. Vomiting continued and I kept bringing it up again to the dr. He then said acid reflux and put him on zantac - vomiting still persisted. Also said lactose intolerance and put him on lactose free milk.
8 months later and he is still vomiting regularly. I changed drs 3 months ago as we were getting nowhere. That dr ordered blood tests and everything came back fine - no food allergies, liver good, no celiac disease (which I thought it was), etc. Referred him to a GI who we just saw this week after waiting 3 months to get in. My son was actually doing better and had not vomited in 3 weeks, almost cancelled the apt but decided to keep it since we had waited so long, then the vomiting started again right before the apt.
Along with the vomiting he has abdominal pain, either loose stools or constipation (stools are often black). The GI had us bring in a stool sample and we are awaiting the results - said he is looking for h pylori or something else, but don't remember what the name was. If that comes back okay he is going to do an upper GI.
Here is where I started to think Chrohn's though- I started remembering other symptoms he has had, but I never thought to connect them. He has complained of his foot and leg hurting (bone pain?) which I thought was just growing pains, eye pain (which thought was due to his not sleeping), and mouth hurting (thought sensitive teeth due to all the vomiting-possibly cavities), cries when sitting in his carseat, complains his butt hurts a lot, and now has a rash on his butt, could these be related to maybe having Chrohn's?? I read that kids with Chrohns lose weight or are small though? Before this happened he was very small, now he looks kind of heavy for his age (but maybe he has a blockage causing the weight gain? he gained pretty fast it seems) The dr is checking for a twisted bowel if he does the upper GI, but does any of this sound like Chrohn's?
I am just going crazy trying to figure out what is wrong with my son. Being this sick for 8 months is ridiculous and he is not the same kid he used to be. He used to love people, be outgoing, friendly, happy. He can still be that way once in awhile at home, but he will not talk to anyone he doesn't know really well, will grunt or scream when people he does not know even talk to him, won't even stand on the scale or let the drs or nurses touch him. This has been so traumatic.
Any input or words of encouragement would be wonderful and appreciated. Thanks for reading