How many people have been diagnosed with Crohn's/Colitis? I hate it so much. I got diagnosed with it December 31st, 2010. It's a pain going to sleep every night with constant pain. It feels like the medication I take does nothing and top everything off, I recently figured out I have a severe allergic reaction to the medicine ''Asacol" and my doctor put me on it November of 2011. Now that I turned 18 a few months ago, my GI doctor no longer wants to see me.
I've been going in a flare the past month. Went to the hospital two weeks ago, they put me on predisone for a week and now I'm out of them and having bloody stalls, diarrhea and abdominal pain. ):. I already missed two days of college due to this and my professors wouldn't let me make up the work. I hate this stomach disease =[[[
How do you guys put up with it? I can surely use some advice :l
The following user gives a hug of support to Mahdy: Steveorama (10-25-2012)
Do you know what type of food I should eat? I've been eating food with low fiber; Today for breakfast I ate waffles, then at around noon I hate graham crackers & peanut butter crackers and not to long ago I ate rice.
Many I am now 55 and have had Crohns since a young child. The first thing you need to do is find a good gastroenterologist!!~One that you like and works with you. there are many meds for Crohns...You need to be on a maintenance medication. asacol is for people that have Crohns that is not severe. Sounds like you need something that is suited for you.. As to foods everyone is so different. What one Crohns person can eat and not have problems another Crohns person can't. Its all trial and error you need to find the foods that don't bother you.. Me I can eat most anything when my Crohns is ok. And when its not ok anything I eat causes problems.. The first thing you need is to find a doc to work with you.Get on good med..ASAP
Obviously you were seeing a pediatric GI dr. Well, my GI has me in remission, for 12 years. I had chronic ulcerative colitis. Get a gi that you can understand, that puts you to sleep for scopes, that calls you back anytime you call pronto, I took asacol. It gave me headaches,bad. But, @ the time(1988) that was the only medicine. What allergic response did you have? Also, if you have blood, & hosp gave you pred, you are rebound flaring from the steroid being gone. My dr would have put me in hospital from what you are describing. Can your old GI give you the name of someone good? You see, you need a dr who will say like mine did "If you do exactly what I say I promise you will never lose your colon" He kept his word. Im free. Please see a new GI monday? You are playing with fire. Your parents are supportive? Tell them how sick you are. Get them to help you find new dr. Im so sorry. Wish i could help more. Drink coke, then when better eat jello & mashed potatoes. My standard for 12 years.God bless you, gmak p.s. you can ask me anything, anytime, or i will just listen.<3
Iv had UC now and been in constant flare no one had fixed me im 20 years old i understand where your coming from, im due to speak to a councilor due to my tablet phobia and depression over the illness. Ulcerative Colitis has ruined my life but the doctors in the mater hospital are now fully aware of my true condition as ive only been honest about the tablet phobia i used to lie and say i was taken them, but i havent been! so im on a course of steroids now and if i cannot take them il have to go into hospital and get the through IV.. hopefully they can sort me out, also im getting booked in for another full colonoscopy soon... FUN TIMES *miserable x
I am also a college student and have been diagnosed with Chrons. I hate it also and its hard to make the professors understand that you really cant be in class. Aside from taking online classes there arent many options. I went and talked to my advisor and they told me to fill out the disability form and turn it in to the school. Its kind of embarrassing but the nice thing is that if you miss class because of a flare or being in the hospital because of your chrons, the professors are REQUIRED to let you make up the work. I did it and have had to use it. When you go to the teacher and they say there is nothing they can do, you pull out the disability paper and say they have to. If you dont want to go that route then talk to the dean above that professor. You have to fight for your education and make people understand what you are going through. I hope that you get this all worked out. I have been in the hospital all week with a flare so I know what you are going through.
Hi...where exactly in the colon is your crohn's colitis located? Is the rectum involved as well?
It's Crohn's colitis...one disease, which would be Crohn's in the colon. But do you have it located anywhere else?
You definitely need to get referred to a GI doctor, one who can get you on treatment and help you with your discomfort, etc.
While prednisone can be helpful, it's not a treatment that I suggest you depend on.
What happened when you were given Asacol?
It's all a matter of perspective!