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Crohn's Disease / Ulcerative Colitis Message Board
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Old 02-02-2013, 10:46 AM   #1
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sick of being sick

hi..... so i started bleeding heavily and passed what looked like stringy snot when i went to the bathroom was lightheaded nauseous and in pain... been in pain for the last couple of days with a hot burning sensation in my upper abdomen... cant stand long periods without being doubled over in pain... i was told by a GI that i had crohns ileitis that was last yr... only meds i got was prednisone because i badgered the er docs long enough to try help me with my pain and the embarrassing bleeding... i hate going anywhere because of the fear i will have an accident and if i am out when i get the sudden urge to go i am embarrassed by what follows and have to duck out or hide.... thankful for any advice or info as i am currently getting ready to go to er as pain is getting unbearable

 
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Old 02-02-2013, 11:57 AM   #2
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Re: sick of being sick

Hi...initially I'd suggest you get on proper medications to deal with your CD.

If you can take mesalamine, that would be a good start. Pentasa is a med that releases at the start of the ileum, and does go through the colon as well.

Do you see your GI at regular intervals?

I would also suggest you be on a good probiotic and possibly fibre supplements (starting slowly).

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Last edited by quincy; 02-03-2013 at 11:31 AM.

 
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Old 02-02-2013, 07:07 PM   #3
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Re: sick of being sick

well i was given prednisone tonight in er and hoping to find a GI and ty for info i will look into it i dont have a family doc where we moved here and left my fam doc and GI.

 
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Old 02-03-2013, 11:37 AM   #4
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Re: sick of being sick

Hope you feel better soon.

Since you do have a chronic bowel disease, you do need to get in with a specialist asap. The medication I suggested will also help with maintenance. I suggest you consider these first for long-term.

If you do continue to flare, there are other medications that you could consider....they're immunosuppressing medications. Do the research and be ready for discussion when you're able to see a GI.

Will you be going back to the hospital? and what's the prescription tapering for the pred?

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