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Old 05-14-2013, 11:23 AM   #1
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Is this crohn's?

Hello,
I would really appreciate some help here. I have seen many specialists but still not got any answers to my problems and wondered if someone could help me. For the past six months I have experienced the following

Extreme fatigue
Weightloss (I think from not eating very much due to feeling full quickly)
Slow digestion
Loss of appetite
Severe constipation (I can go well over a week and when I do go it's awful!)
Muscle pain and joint pain

I've had a ct scan which has shown nothing too.
Many thanks

 
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Old 05-14-2013, 12:53 PM   #2
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Re: Is this crohn's?

have you had a colonoscopy?

Have you had blood tests done....and do you have copies of the results?

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Old 05-14-2013, 02:49 PM   #3
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Re: Is this crohn's?

No it's the one thing I haven't had done though I have had blood tests but for quite a lot of things and I have had a ct scan. What normally shows up in blood tests? Many thanks

 
Old 05-14-2013, 11:33 PM   #4
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Re: Is this crohn's?

Those are the exact symptoms I had and I was eventually diagnosed with Crohn's. Under went blood tests, then a ct scan but ultimately had to get a colonoscopy though. It's the only way to ultimately diagnose it, you have to get a colonoscopy so they can take biopsies and check for anything else.

 
Old 05-15-2013, 01:42 AM   #5
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Re: Is this crohn's?

ESR and CRP are usually done to monitor crohns disease....but then these can be raised from any inflammation in the body so the best way to diagnose crohns is a colonoscopy with biopsies.

Last edited by valerie2013; 05-15-2013 at 04:16 AM.

 
Old 05-15-2013, 05:10 AM   #6
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Re: Is this crohn's?

Chrohn's usually causes diarrhea, right lower quadrant pain, blood and mucus in stools, cramping, sometimes low grade fever. Your symptoms are, IMO, not typical of Chrohn's. Have you been tested for celiac disease caused by gluten intolerance? It can be tested by blood tests or upper endoscopy with biopsy. I would consider that a more likely possibility. It also causes malabsorption of nutrients, particularly iron, causing anemia, and Vit and mineral deficiencies, like D, A, calcium. Those levels can be checked as well in blood.

 
Old 05-15-2013, 09:54 AM   #7
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Re: Is this crohn's?

Constipation is not a typical symptom of Crohn's, as most suffer from diahrea. That is why for a long time I doubted that I had Crohn's. But after I had a colonoscopy it was shown that I do have Crohn's. It's not as common, but some patients do suffer from constipation instead, that is what my GI doc said.

Last edited by Greengal04; 05-15-2013 at 09:55 AM.

 
Old 05-15-2013, 10:32 PM   #8
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Re: Is this crohn's?

constipation would usually be caused by limited inflammation in the rectum. Is that where yours is Greengal?
Since Crohn's can happen anywhere from mouth to anus with multiple areas, it could very well depend on which areas are tending to be inflamed and active. As well, it can also depend on what medications one's using, how much food intake, etc.

Hazel, the only way that your doc will actually see what's going on is with a c-scope. While other testing methods may see inflammation or thickening of areas in the digestive tract, it can't guarantee what's going on.

Even c-scopes with biopsies cannot sometimes determine an exact diagnosis of CD or UC...it's usually through a process of elimination (other possible culprits such as STD, microscopic colitis, Celiac), blood testing for certain markers/inflammatory markers, anemia, diverticulitis, cancer, etc.

If the doc suspects UC or CD, the results will come back consistent with, not a definitive. If all is eliminated of the other possibilities, the result is usually CD or UC.

Please keep us posted of the process to get diagnosed. We might have some other suggestions for questions to ask the doc, etc.

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Last edited by quincy; 05-15-2013 at 10:33 PM.

 
Old 05-17-2013, 12:54 PM   #9
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Re: Is this crohn's?

Quote:
Originally Posted by quincy View Post
constipation would usually be caused by limited inflammation in the rectum. Is that where yours is Greengal?
Since Crohn's can happen anywhere from mouth to anus with multiple areas, it could very well depend on which areas are tending to be inflamed and active. As well, it can also depend on what medications one's using, how much food intake, etc.

Hazel, the only way that your doc will actually see what's going on is with a c-scope. While other testing methods may see inflammation or thickening of areas in the digestive tract, it can't guarantee what's going on.

Even c-scopes with biopsies cannot sometimes determine an exact diagnosis of CD or UC...it's usually through a process of elimination (other possible culprits such as STD, microscopic colitis, Celiac), blood testing for certain markers/inflammatory markers, anemia, diverticulitis, cancer, etc.

If the doc suspects UC or CD, the results will come back consistent with, not a definitive. If all is eliminated of the other possibilities, the result is usually CD or UC.

Please keep us posted of the process to get diagnosed. We might have some other suggestions for questions to ask the doc, etc.

q
My Crohn's is actually in my terminal ileum and first section of my small intestines. Which as I was told is the most common location for it. But it took a long time and lots of different diagnostic tests to finally diagnose it since my symptoms were never your text book case of Crohn's. I've never really had diarrhea or much bleeding, which I know are the most common symptoms.

My biggest symptoms have always been severe constipation and nausea. And then when I am able to have a BM it comes out in huge amounts but its all solid. So not having your typical symptoms caused a lot of missed diagnosis for me and continued trouble for years.

It wasn't until I had a colonoscopy last year, where they were able to really see up there and take biopsies that my Crohn's was finally diagnosed. My GI doc said that not everyone presents the same, every case is different and usually needs to be managed differently. Right now I'm on a regimine of 2 Pentasa 3 times a day, fish oil, b12, calcium, probiotics, fiber supliments, and ginger for the nausea. I've also cut out dairy and am working on going gluten free. I still have some bad days, but I've got some good one too and things have not gotten worse. So I think I'm doing ok. But it took a while to get here.

Last edited by Greengal04; 05-17-2013 at 01:18 PM.

 
Old 05-18-2013, 12:30 PM   #10
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Re: Is this crohn's?

Greengal...Interesting...The Pentasa should help with the terminal ileum, but probably won't help if it's at the beginning of your small intestine..or do you mean at the beginning of the ileum (it will cover that area as well)
Have you been checked for celiac disease as well?

Bleeding isn't as common in CD as it is in UC, especially if it's affected farther into the digestive wall.

Yes, constipation isn't a common symptom with small intestine involvement unless there's blockage I would assume. The fibre supplements will help with that as would probiotics.

Sometimes increasing vitamin C intake is helpful...at least for me it has been when I wanted to stay super regular when I was working full time..lol.

Just as an aside...if you do have reflux as well...I've read that ranitidine (Zantac) also increases motility a bit...that might be helpful for you? In effect that could help with nausea too.

I have friends with CD, one who's had the terminal ileum removed. Her major issue is diarrhea since missing that part doesn't slow down things at all.
I think having a slower moving system is better than constantly having to go. ah, there's never a happy medium sometimes. But at least some meds/supplements can be helpful.

It's good you're using fibre supplements (which ones?) to keep things moving nicely, to help with exercising the digestive tract and to help flush out any invaders should they happen.

Sounds as though you're getting the hang of dealing with your CD without needing any of the big-gun meds. Hopefully you won't need them ever!

q
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