I am a 37 yr old male. I was diagnosed with Crohn's when I was 15. I had my first fistula when I was 16. Since then I have tried every medication to include biologics without any relief. My diagnosis was changed to Predisone Refractive Fistulizing Cronh's Disease when I was 26. By 28 they had removed as much intestine as possible while still leaving ingestion viable. For a month or two after the last of my colon was removed I had diarrhea constantly, but then my system reached a balance. The diarrhea was only occasionaly until this last year. Now it's rare when I don't have diarrhea. I am taking probiotics, eating yogurt, and taking prescribed vitamins to aide healthy digestion. I guess what I am asking is if anyone has any ideas, or knows of something that I am not doing to help me reach that balance again. Thank you.
Welcome to the boards, and I hope you get some suggestions here that will work for you. I have a couple of thoughts- one is to consider that there is increasing evidence that Crohns and UC both may be associated with food intolerances, especially gluten. Many people also have dairy protein allergies and lactose intolerance. There are blood tests to check for lactose intolerance, celiac disease and gluten sensitivity. That is the most scientific way to find out. The other possible way is to eliminate both dairy and gluten in diet for 1-2 months, and see if it helps. Then you can reintroduce each item separately to see if the diarrhea returns. Some people get an extensive panel of food allergy blood tests done, but they need to be IGG levels, not IGE, for the more subtle, long term allergies as opposed to severe, anaphylatic type reactions. A functional medicine physician would be tuned into that type allergy testing. Lastly, have you tried taking 1-2 Immodium tabs a day for control? I would check of course with your GI Dr first, but that would slow peristalsis enough to let water be absorbed by the small intestine more easily. I hope others respond as well with ideas. Crohn's is very difficult and it sounds like you have a severe case. Maybe the yogurt is a culprit instead of a help if you are dairy or lactose intolerant. Let us know what ends up working for you!
First, thank you for responding and for the ideas. I removed all gluten from my diet several years ago on the advice of a dietician. I am not lactose intolerant, just lactose resistant. I can handle only small amounts of dairy, like one yogurt a day. I am always taking Immodium for treatment but I never thought about taking it for prevention. I will have to talk to my dr about it. I don't have insurance so I'm not sure that I will be able to afford that blood test. I will have to talk to my dr about it. Thank you again for the ideas. It's getting so that even the simple things like grocery shopping is a nightmare, much less trying to work steady hours. I am getting desperate.