Re: Granddaughter diagnosed with CF
Unfortunately CF is a progressive disease. Eventually it will affect the lungs. Some people in the beginning have more problems with digestion, sinuses, etc. The key is keeping the lungs healthy and keeping infections away. DS's doctor explained to us that these children are born with healthy lungs, but over time with infections and that thick nasty mucus, scaring occurs, the scilia in the lungs doesn't work as well or gets damaged. This is why it's so important to do Chest Physiotherapy (CPT) at the get go even if there aren't any symptoms.
We do CPT three times a day with a nebulizer to keep things moving. More if DS doesn't feel well.