I'm a mother of a 3 year old with CF-- and I know how difficult this all is. First, could you explain the prenatal DNA test to me-- did they test you & your husband to see if you're both carriers??? If so, unfortunately that blood test does not test for all mutations of the CF gene.
The only way invitro that the baby could be checked is through CVS, or an amnio. Did you have one of those??
It does concern me that its in your husband's family-- neither my husband, nor my family had any history of CF, but both of us are carriers.
Her numbers are considered borderline, but I strongly recommend you go the CF website, find an ACCREDITED CF center near you and take your daughter in. They can do a AMBRY genetic blood test on her, or all 3 of you to find out if she has 2 copies of a CF gene and if you both are carriers.
Please, please do not wait any longer-- if it is positive, she needs to get on the proper meds & treatments. I know its scary, but you need to get to the bottom of this right away, this "some docs say we have it, some say we don't" is a bunch of garbage-- she either has CF- then confirm it with a blood test- or she doesn't-- there is NOTHING in between.
I can answer any questions, but please find a CF center ASAP. Type in Cystic Fibrosis Foundation on your search engine--- it will come up cff
Last edited by sherry092; 07-18-2005 at 12:11 PM.