already tierd - Cystic Fibrosis Message Board

tsully97 · 08-21-2001, 03:52 PM

hello every one. my name is tonya. my 3 month old son was diagnosed before he was 2 weeks old. when he was about a day and a half old he had surgery becouse of a maconium illius and for about a month we delt w/bags falling of every few hours. after the reversal surgery life became mutch better. we've had 3 hospital stays at least a week long each. now David (my son) has several med.s as well as the c.p.t. and albuteral treatments 2 times a day. i know there are many of you dealing with much worse and so i'm not having a pitty party i'm just emotionaly and physicaly tierd of all the work it takes to care for David. i was perpaerd to be a parent i just wasn't perpard for this. i do thank God for the heath he does have. i guess i just wanted to get out some emotion to some one out side our circal.

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Shine(mathew 5:16)
Tonya

grannyrninspring · 09-06-2001, 11:51 AM

Hi--we have a niece with cf and a son with all-but-cf (celiac disease and asthma). We know that the constant meds and cpt can wear on the body and emotions...
The internet is a great way to get an ear to listen, but try a local support group...many times other families in the same situation, sitting in the same room, with the same problems and concerns helps soooooo much! And they may have found competant sitters who can safely care for your little one giving you a short break.--and even give you and your signif other a chance to breath and enjoy each other for a little while!....The support gained by local support groups can really benefit you with drs..new pt positions etc and I found just being with others knowing where I'm coming from was really beneficial....
good luck..

tsully97 · 09-06-2001, 11:59 AM

thanks grannyrninspring for your reply! it was encouraging

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Shine(mathew 5:16)
Tonya