Toddler with cf - Cystic Fibrosis Message Board

RITCHEYS · 04-01-2001, 11:18 PM

I would like to chat with others with CF. My daughter Kierstin is 14 months old. We found out she had CF when she was 6 weeks old. She is doing good so far and growing up quick.

Dane · 04-17-2001, 05:55 PM

My son Chase is 20 months now he was diagnosed when he was 3 months. He is doing well. I'd love to chat with another mother of a CF toddler.

RITCHEYS · 04-20-2001, 11:10 PM

I'm glad to hear from someone. We have an older daughter too who is perfectly healthy. She is 4 years old. Do you go to a special childrens hospital there? The hospital we take our daughter to is about 2 hours from home. We have to go every 3 or 4 months for a visit. Kierstin is small for her age but luckily I am too so she just looks like she takes after me. She weighs about 18 lbs. and is about 28 or 29 inches long. We haven't had anymore hospital stays due to her CF since she was diagnosed. The doctor says she has some asthma too. Talk to ya later.

[This message has been edited by moderator2 (edited 08-27-2002).]

TJHTRIGGS · 04-25-2001, 12:45 AM

Quote:

Originally posted by Dane:
My son Chase is 20 months now he was diagnosed when he was 3 months. He is doing well. I'd love to chat with another mother of a CF toddler.

My 14 month old son has CF, he was diagnosed at 7 days old. It is confined to digestive tract for right now, I also have a 3 1/2 year old daughter that does not have it. Would love to hear from other moms and hear new ideas. We are going all natural for right now.

RITCHEYS · 04-25-2001, 10:24 PM

My daughters digestive system has been affected along with several colds like I said earlier nothing that has required hopitalization though. Hopefully the weather will be clearing up soon and it will stay warm. I live in a small town and there are at least 5 children in my hometown that have CF. There are at least 20 children within a 30 mile radius. Do you have many people that live near you with CF? Those numbers just seem kind of high for such a small area. We are getting ready for the walk for CF to raise money for research on May 20th.