insurance??? - Cystic Fibrosis Message Board

Tisha · 01-09-2003, 10:12 AM

I was wondering if anyone had any information on insurance for people with cystic fibrosis? It is a little overwhelming trying to find something. If anyone knows of anything please reply.I would be forever grateful. thanks tish

[This message has been edited by moderator2 (edited 01-09-2003).]

walkingsunshine · 04-02-2004, 07:18 PM

Hi,

I applied for SSI, and oncethey denied me due to my income being over their required limit, I ask for a Demming(sp) waver. I took that letter to Department of Family and Children Services, complete the application, and ask them about a program called Katie Beckett. It will pay up to $1500/mo for medical expenses.
Also, drug companies have programs to help pay for medicines and is based on income. My son has been on a program called Children's Medical Services in GA. They have a deductible, and once that is met, they pay for the meds until we recertify again the following year. It takes me about 4 months to meet the almost $600 deductible.
I hope this helps.