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Old 10-26-2002, 11:51 AM   #1
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Question Question about sweat test

I have been looking for some specific information and hope someone here can help. My 20-month old just went through a sweat test after 6 weeks of diarrhea, losing weight, and all the stool cultures negative. He's had a runny nose constantly since he was born. Used to get terrible ear infections until July when tubes were put in. He was also allergy tested and put on prescription antihistamines.

The issues and questions:

The first sweat test did not yield enough sweat. I was given the choice to either do another test or reschedule for a different day. Since I had to travel about 75 miles one way, I opted to redo.

I had him so totally bundled the second time (all you could was his face) and expected a lot of sweat. That test resulted in LESS sweat. They called my PCP's office for instructions and were told to do the test on one of the samples. These were performed by two different techs using different inducers, same type. My little one even had sweat coming off his arm after the induction with pilocarpine. They told me he just is not a sweating child.

Can they possibly get an accurate result from a sample that is considered QNS? What might be a next step? Chances are things are fine, but we'll deal with whatever comes our way.

Thank you!

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Old 10-26-2002, 07:28 PM   #2
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I imagine if they're really serious that they think he has it they'd do a blood test.

There's a very definitive, very accurate, blood screening test for the defective CF gene.

But I can't imagine it's cheap.

 
Old 10-26-2002, 10:20 PM   #3
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Thanks Wrin,

It was something the techs mentioned to me, but I don't know if our insurance company will pay for it. I guess the wait for the call from the doctor is going to be the hardest part of this.

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Old 10-30-2002, 01:13 PM   #4
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The waiting is the hardest part. When my son was 6 weeks old they tested him. It took a couple of days for the doctors to get back with me. At that time I knew nothing about CF, so I did research. His results came back positive. He is now a health active 13 year old that drive me crazy every day.

 
Old 10-30-2002, 02:38 PM   #5
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The doctor's office told me that the sweat test came back negative. I guess that's good, but I still have some doubt since there was some question about the size of the sample. The other stuff is not better, so I guess we'll be on to see a peds gastroenterologist next.

Thank you!


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