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Cystic Fibrosis Message Board
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Old 06-17-2003, 01:07 PM   #1
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Join Date: Apr 2003
Posts: 55
etdawn1 HB User
Unhappy still depressed

Hello board!
I lost a wonderful friend to CF 4 years ago..she was only 22 and i believe an angel. She didnt speak much of her illness when we spent time together so I had to research myself...she didnt want me to visit when she was in the hospital so I dont know what she 'really' went through...reading your posts helps me understand more what her life was like, so i want to thank you all. I want to do something with my life that could involve CF but i do not have any college background..i am 25 yrs old...i would love to volunteer at a childrens hospital but i dont know if they would let me work with only CF kids. and then i dont know if i can emotionally handle it...what i do know is that i am still unable to cope with her death and feel like i should be doing more for CF...sorry i am babbling..is there anyone out here that knows what i am feeling? thanks for listening!! God bless you all!!

 
Old 06-17-2003, 06:57 PM   #2
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Join Date: Jan 2003
Location: Papillion,Ne
Posts: 80
chacha HB User
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Hi, I'm sorry to hear about your friend. There are things you could do to help with CF. Check out your local cystic fibrosis foundation chapter. They do fundraising on the local level. The money raised goes to help fund research in finding a cure. You can either check out your local phonebook, call information or even look up the CF Foundation website for a local contact. Volunteers are a vital. Any person can help in some way. Some of the things they do are Great Strides, which is a walk, either 5 or 10 Km. People can help not only by walking and getting pledges but setting up, maning water stations, paperwork etc. Some other things that they organize are golf tournaments and I've heard bowling tournaments. As for working in a hospital strictly with CF patients. I don't know. All kids need some special attention when they are in the hospital. Volunteers are usually welcome and can do many different things. You might want to talk to a child life specialist in your local children's hospital or wherever the CF center is located. It's not always in a children's hospital. We've had teens and young adults come in to just spend time talking or play a game. With confidentiality an issue you may not be able to find out which kids have CF though. But transplant patients and cancer patients need attention too. You also may be able to offer services to help tutor in reading, math, science, a foreign language. Long term patients, school age CF patients are there usually 2 weeks to even 3 weeks. Again, you can talk with a Child Life specialist and see if volunteering might be something for you. Thank you so much for your interest in helping and finding out more about CF.

Chacha

 
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