Re: Need help...don't want to carry around an oxygen tank
This is my first time posting and I'm new to the site. I wanted to try to help you with your question. For your friend to gain weight, I'd recommend getting a feeding tube or G-button. I'm 31 years old and when I was about 15 or 16 I weighed 75 lbs. My doctors finally convinced me to get a G-button and I gained 20 lbs in a short amount of time. It's really hard to eat that many calories, I found that, because I had so much trouble with my breathing, I'd wear myself out and wouldn't be very hungry.
By the way, I too have Cystic Fibrosis. I was on oxygen 24/7 and thought I'd be for the rest of my life, too. I even had to wear the oxygen when I took a shower, I was that bad. That's when I realized that I wasn't getting better and probably never would. I wanted to stay around for a much longer time--much longer than the time it appeared I had left. I was 17 when I was evaluated for a double lung transplant. The doctors said I was a good candidate and so I moved from Louisiana to St. Louis, MO (St. Louis Children's Hospital) to wait for my new lungs. I got them in December 1993. My lung function was normal and still is after 13 and a half years. It was the best decision that I ever made. I am still thankful to the wonderful people that donated their loved one's lungs so that I could still be here today.
Your friend may want to consider a transplant. I know it's a huge decision to make. It's a great one to think about. I can't say that everyone has the same outcome as I have with transplantation, but it helps to do some research. I hope this helps instead of scares you. I definitely would tell your friend to look into the feeding tube (G-button), though. Once he puts on weight and has better nutrition, he will feel better I think.
Good luck in whatever your friend decides.