Re: worried just had amneo done
We didn't find out until our son was born that he had CF. While we found out fairly soon after he was born, sometimes I think it would've been nice to find out ahead of time, to prepare ourselves. Sorta felt blindsided. All we knew about CF was what we'd seen on a medical show. Fortunately, we were put in contact with a CF team right away, contact the national CF organization...
Today we have a very healthy, active preschooler. He's such a joy. Very happy, very busy. We have some things we have to do to keep his lungs healthy -- medications, chest physiotherapy. But we make it work. I can't imagine life without him.
Last edited by Ratatosk; 02-04-2008 at 11:42 AM.