I'm new to this site but God knows I'm not new to Cystic Fibrosis. I've never thought it would come to where I'm looking to talk to anyone who may be going thru what I am. unfortunately I know I'm not alone. I have a 21 and a 19 Son with Cf and everything that goes with it including diabetes. They both have it since birth.
my 21 year old got really sick right before new years and is still in the hospital today. He had yet another Pneumothorax. We where just told how sick he has really gotten. So many other issues going on with him right now but to make a long story short we are filling out paper work in the hope of getting an appointment for a lung transplant eval. My Doctor managed to get my son's hope up with the news and he has a better outlook now, but behind closed doors that same doctor tells me that most likely he will be denied?
I don't know if I feel lost or what. I've got my mask on and I'm staying strong for him but wow it's getting really hard.
If anyone out there has gone thru something close to this please write me.
Shed some light on things for me,
I need one