My daughter has been doing pretty well recently...no major lung issues, stool seem pretty "normal" ( I guess...large and mushy but no crazy colors)....just a regular kid...no cough even. Does this happen with children with CF...do they have healthy periods? when she does get sick(which..I must admit she is with runny nose and raspy voice so it's coming...but we had about 2-3 weeks of no illness) it's weeks of nebs and prednisone and antibiotics. She hasn't been diagnosed...we see a specialist end of Feb. Would appreciate feedback!
When DS was first diagnosed, our fear was that he'd be the lonely sickly child, confined to home that you always see in those made for tv movies. However, he's a normal looking, normal acting child. In fact, DS rarely
coughs unless he's coming down with something. We work very hard to maintain a normal lifestyle. He gets nebs and cpt (vest) three times a day. He's on digestive enzymes, vitamins, several different oral antibiotics, a nebulized antibiotic every other month...
Cfers are born with normal lungs. CF is a progressive disease and with increased infections, etc. the lungs eventually will be effected. Some CFers just have digestive issues, others have lung or sinus issues.
thank you for the reply....I guess I didn't think of it as progressive...I knew it was but didn't really apply that thought process to my daughter (who is as of yet not diagnosed). She is obviously weaker than other kids her age, even "running"(she doesn't really run but tries)can wear her out and cause a cough attack. I guess we'll wait for her appt. and just appreciate the healthy times! thanks again
If she does in fact have CF, I believe once she's getting proper treatment -- CPT, enzymes, medications... You'll probably have a completely different child. More energy because she'll be getting proper nutrition, which all ties into her overall health. Get enough to eat, you're not as run down/suseptible to as many bugs.