It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....

Cystic Fibrosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-07-2008, 06:06 PM   #1
Join Date: Apr 2008
Location: IN
Posts: 2
larunner74 HB User
Positive Sweat Test?

Hi there! My 20 month-old daughter has had frequent respiratory issues and was finally given the diagnosis of asthma about 2 weeks ago. When the MD told me we needed to test for CF, I went online and read all I could and thought, "wow, that is my daughter". My daughter underwent sweat chloride testing last week and it came back at 69. The nurse's exact words were,"We don't think she has CF, but the test will need to be repeated". In the meantime, we have an appointment scheduled with a pediatric pulmonologist. Everything that I've read and heard has pointed to the fact that this is a positive test and at this point, I am thinking that there is no doubt that she has CF. Am I wrong? Having a diagnosis would be more helpful at this point so that I can prepare myself and get ready for what lies ahead.

Old 04-07-2008, 08:13 PM   #2
Senior Veteran
Join Date: Nov 2003
Location: Midwest
Posts: 2,006
Ratatosk HB UserRatatosk HB User
Re: Positive Sweat Test?

You're correct -- if there's ever an error with the sweat test it's with giving a false negative, not the other way around. I would push for genetic testing. At least with a positive diagnosis they can begin to treat your child's symptoms and keep her healthy. It's important to find an accreditted CF facility, too.

Keep in mind while researching CF that a LOT of the information is outdated. I well meaning friend gave me a book a couple years ago that was copy writed 1997. Life expectancy has increased significantly and new drugs have come down the pipe within the past 5-10 years. The cystic fibrosis foundation is an excellent source of information -- cff accreditted clinics are located in south bend, fort wayne and riley in Indianapolis. The local chapter office for your state is located in Indianapolis as well.

Sponsors Lightbulb
Old 04-09-2008, 03:52 PM   #3
Join Date: Apr 2008
Location: IN
Posts: 2
larunner74 HB User
Re: Positive Sweat Test?

Thank you so much for your response. We met with the pediatrician today and asked her this question. She said that "our" lab makes the cutoff for CF diagnosis at a sweat chloride level above 80 (I have not read this anywhere myself...)

We have a referral to the Children's Hospital Pulmonologist on 4/28. Since this seems like an eternity to wait, I asked her if there were any more tests that we could do to rule out/rule in other diagnoses. She sent us for a chest x-ray (my daughter has never had one despite all her problems). She also said she would contact the pulmonologist to see if there was anything more she could do until then.

Once again, thank you for your response. We have already had such overwhelming support from everyone we have come into contact with...

Old 04-10-2008, 07:28 AM   #4
Senior Veteran
Join Date: Nov 2003
Location: Midwest
Posts: 2,006
Ratatosk HB UserRatatosk HB User
Re: Positive Sweat Test?

From what I understand 40-60 is considered borderline. My son's was a normal 32 and he DOES have CF, so I tend to be a little wary of sweat tests.

One thing you could ask for while you wait is a cf culture. Being she's so little, it would have to be a simple throat culture rather than a sputum culture -- unless you can actually get her to spit mucus in a cup. They would test for common CF bugs that normal people don't normally have.

DS cultured nonmucoid Pseudomonas A at 3 months. So for us, it really hit home that he DID have cf.

Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
positive sweat test x 2 but no cf gene why Siobhano Cystic Fibrosis 10 11-17-2010 12:59 AM
My son just had his second sweat test... Mattysmomma Cystic Fibrosis 14 02-16-2010 08:29 AM
anyone with cf with low normal sweat test? Evelyn02 Cystic Fibrosis 9 04-28-2008 02:29 PM
sweat chloride ?? KLM31506 Cystic Fibrosis 7 01-27-2008 06:46 AM
What does a positive sweat test mean (QSART) twells Neuropathy 2 01-04-2007 12:25 PM

Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off

Join Our Newsletter

Stay healthy through tips curated by our health experts.


There was a problem adding your email Try again

Thank You

Your email has been added

Top 10 Drugs Discussed on this Board.
(Go to for complete list)
  Tylenol Ultrase


Ratatosk (4), LadyGreenSleeves (1), sherry092 (1), Titchou (1), luckydraw (1), Hope1986 (1), pinstripe1981 (1), vampalicious (1), Jess mom (1)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)

All times are GMT -7. The time now is 09:33 AM.

Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!