It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cystic Fibrosis Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 04-26-2008, 05:58 AM   #1
Senior Member
(female)
 
Join Date: Jan 2004
Location: Australia
Posts: 117
dolphins HB User
Possible CF?

Hi all, this came up for me a little over 18 months ago where the dr I was seeing thought I had CF. At the time I was diagnosed with type one diabetes but she thought the way it came on was more like CFRD.
I've had asthma since I was 14 (24 now), mostly comes on bad with colds and lung infections, a lot of the time the infections got to my chest and for weeks it really is almost like having my lungs drown in mucus. I've been admitted to hospital I think 17 times now, so it isn't mild. Atm I take seretide, ventolin and atrovent for my asthma.
I had the sweat test, GP got the results and it was normal.

Now for the last 5 months or so I've had fatty/oil like stool, was put on a meal plan by my dietician but didn't gain weight as was expected (I'm underweight at 38kg 156cm). I finally went to get a fecal fat test and my endo said it showed a high amount of fat in the stool and that is the reason I'm not gaining any weight or lose weight easily (I saw the report and all it said was +++ fat globules). However, I had a typsin or tryptic activity stool test that was normal, came back positive.
My endo did start enquiring about my asthma symptoms + when I was diagnosed so I know she is thinking down that track again (CF). She also said I'll definitely be put on creon, it just depends on what the gastro dr wants to do (i.e. run more tests).
I was just wondering, could this be CF or something completely different?
Thanks!

 
Sponsors Lightbulb
   
Old 04-26-2008, 12:35 PM   #2
Senior Veteran
(female)
 
Join Date: Nov 2003
Location: Midwest
Posts: 2,006
Ratatosk HB UserRatatosk HB User
Re: Possible CF?

You do have a lot of similar symptoms. As more and more genetic mutations are being discovered, more and more people are finding that they do in fact have CF. There are over 1500 mutations. Some people become pancreatic insufficient over time and need to start taking digestive enzymes.

I'm kinda cynical about the sweat test being that DS' was normal. At least it sounds as if they're treating the symtpoms as if it is CF -- creons, bronchiodialators. Have they done a sputum culture to see if you're growing any common CF bugs such as pseudomonas?

 
Old 04-27-2008, 06:48 PM   #3
Senior Member
(female)
 
Join Date: Jan 2004
Location: Australia
Posts: 117
dolphins HB User
Re: Possible CF?

Hi,

Thank-you for your reply. My endocrinologist mailed me a prescription for creon forte so I start it today. Re: the bronchodilators (ventolin and atrovent) have been taking them as needed for nearly 11 years now as well as inhaled steroids, just the addition of creon is a new thing. I haven't had any sputum cultures but she did send out a pathology form to have CF genetic testing done, so I guess that will give a definite answer.

 
Closed Thread

Similar Threads
Thread Thread Starter Board Replies Last Post
5 weeks since rotator cuff surgery, possible frozen shoulder zapper1964 Shoulder / Rotator Cuff Problems 39 01-23-2012 07:33 AM
Possible ADD, probable OCD, definite tics...help? Thief ADD / ADHD 1 10-28-2008 08:44 AM
Possible foreign object in lung? blue_eyed_angel Open to All Other Health Topics 3 01-26-2008 07:16 AM
VERY unique possible infection situation. PLEASE HELP!!! Trulocs HIV Prevention 1 07-14-2007 07:50 PM
Desperately Seeking Help!!! Pain while urinating, now possible STD?? Lucky2323 Sexually Transmitted Diseases 2 01-03-2005 04:56 PM




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added




Top 10 Drugs Discussed on this Board.
(Go to DrugTalk.com for complete list)
Albuterol
Augmentin
Flonase
Pulmicort
Prednisone
  Tylenol Ultrase
Xopenex
Zantac
Zithromax




TOP THANKED CONTRIBUTORS



Ratatosk (4), pinstripe1981 (1), vampalicious (1), Jess mom (1), LadyGreenSleeves (1), sherry092 (1), Titchou (1), luckydraw (1), Hope1986 (1)

Site Wide Totals

teteri66 (1180), MSJayhawk (1009), Apollo123 (909), Titchou (856), janewhite1 (823), Gabriel (760), ladybud (755), midwest1 (669), sammy64 (668), BlueSkies14 (607)



All times are GMT -7. The time now is 06:44 PM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!