I'm now 21 and have been diagnosed that i don't have full blown cf but am borderline. When i was 4 months old i had to have an emergency intussuception operation. Also around this time (i'm not sure if was before or after) i had projectile vomiting. I have also had the lumber punch test when i was around 2 as they thought i may have meningitis, however this was negative. Through my whole life i have suffered with really smelly, long stools. When i was 3, i saw my 1st lung specialist who said i just had asthma. This wasn't the case and saw a lovely specialist who worked around the world and he did the sweat test when i was 7. It was negative, however he said i was borderline and that was why i had some of the cf symptoms. I was put on various medications including steroids to help with ongoing chest infections.
When i was 14 i was admitted into hospital for 7weeks with chronic compaction of my bowel. I was in severe pain to the lower left of my stomach an hour after eating (this could just be eating a few grapes as my appetite was low). My gp thought i was making this up and sent me to see a shrink as all tests were coming back normal (story of my life).
Since then i have been admitted to hospital 3 times for stomach issues and once for my breathing. I'm seen by a cf team in a special cf unit. However, they sent me to see a gastro consultant to see if they could do anything for my bowel problems. I was told there is a problem with my large bowel, but he wasn't prepared to do anything to find out what this problem is. I'm taking senna and lactulose everyday and still having difficulty in opening my bowels. I have a Klean prep session every month to try and clear me out, but this doesn't seem to fully work. I feel stuff there ready to go, but it feels like i have no energy to remove it or that my muscles are too weak to do it.
Has anyone else had this problem.