Hi, do you mind me asking what the bug they found in March was? The reason I ask is because for the last year I have been exposed to household molds from leaking pipes and neglence of cleaning it up, which I had no idea about, and now I have developed a bug that is also common in CF patients. I will probably spell it wrong but I'll try, Pseudomonus. Now, its not a mold in my lungs but I feel I have developed the Pseudo from being exposed to molds that developed from leaking pipes and neglence of cleaning it up from my condo corportation. I also live in Ontario, Canada.
What kind of symptoms does your daughter have? I know you said you feel your daughter has a mold in lungs, but what would make you think that? I am just trying to get some facts to help. The pseudo that I am talking about is a nasty bug and it causes alot of issues. Ever since I have had it in July 2010 I have been on IV antibiotics 2x, the reason they probably chose IV is because I'm 7 months pregnant with triplets. This bug has literally made my life hell. Im 24 now, and I do the best I can to take care of myself, but sometimes your right I feel as if my CF team does not listen to me or my opinion on what is going on. Unfortunately for me, back in July I was extremely sick and my doctor did not listen to me when I told her how ill I was, she kept pushing back and sending me home telling me to use my nasal spray and so on. About one week later I ended up in Emergency because I decided I had enough of her and telling me how wrong I was. Sometimes they make you feel like your an idiot, and you really dont know what your talking about. I pushed and pushed. Like I said I went to emerg and go figure I had Pneumonia. Now I have switched to her collegue because I feel she does not listen. Whenever I am sick now, she trys to help but I have let her know how I feel.
I think your best bet is to push and push. At the end of the day, your the one who has to live with your daughter being sick, and you know you want the best health for her as you said previously. So who cares what they think, push until your happy with the answers. If your never happy, switch to another doctor and tell them how you really feel.
Sorry to blab about myself, I just wanted you to know my experience because u deserve to know whats going on with your daughter.
Hope this helps