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Old 09-05-2011, 04:29 PM   #1
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Location: Indianapolis, IN, USA
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Muggie HB User
18 month old diagnosed with Failure to Thrive

Hello,
My granddaughter (now 19+ months) was diagnosed with Failure to Thrive at her 18 month ck up. She has steadily gone down on the growth chart (ht & wt) since birth (weighed 8 lb 13 oz @ birth.) She eats very little; some days hardly anything. She just seems to never have an appetite. She won't eat if she's tired or "out of sorts" in any other way. It's definitely more than being a "picky eater." On the up side she is VERY active & very strong for her size.
She has been ill very little; on antibiotics once for ear infection.

She had blood work done (after FTT dx) which was repeated 2-3 wks later. The only thing her ped is concerned about is a low CO2 level (15 on 1st test; 18 on 2nd.) Her ped thought possible Renal Tubular Acidosis & referred her to a ped nephrologist who looked at her labs (& I assume overall dx & sx) before her appt & said it did not look like RTA & said she should see a metabolic specialist instead. (I didn't even know there was such a thing)She is waiting for an appt which may take awhile because there are not many physicians who specialize in this field.

I'm wondering if anyone else is familiar with a metabolic specialist and what types of testing they might do and what types of disorders they deal with.
Also has anyone ever had a child with similar symptoms, diagnosis &/or lab results.

Other things I can think of (which may just be her own personality stuff) is that she is shy or afraid of strangers, startles easily, is afraid of noises (especially loud) wants to be held or wants to be near you much of the time; common "toddler" stuff I think. Any info &/or suggestions anyone has wouldlybe greatly appreciated. Thanks so much.

 
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Old 09-06-2011, 11:40 AM   #2
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Join Date: Nov 2003
Location: Midwest
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Ratatosk HB UserRatatosk HB User
Re: 18 month old diagnosed with Failure to Thrive

Not familiar with a metobolic specialist; however, ds has been seen by a gastrointestinal specialist. DS has pancreatic insufficiency due to cystic fibrosis, so without digestive enzymes taken orally with food he can't digest fats and his stools would be very loose, possibly greasy. He also needs to take a number of extra vitamins -- a, d, e, k -- because digestive issues can affect that as well. We also have DS on a very high calorie, high fat diet to try and keep him at a good weight --- even doing that we struggle to keep him at the 50th percentile.

 
Old 02-28-2012, 02:37 PM   #3
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Join Date: Feb 2012
Location: salzburg,austria
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dadddies HB User
Re: 18 month old diagnosed with Failure to Thrive

Quote:
Originally Posted by Muggie View Post
Hello,
My granddaughter (now 19+ months) was diagnosed with Failure to Thrive at her 18 month ck up. She has steadily gone down on the growth chart (ht & wt) since birth (weighed 8 lb 13 oz @ birth.) She eats very little; some days hardly anything. She just seems to never have an appetite. She won't eat if she's tired or "out of sorts" in any other way. It's definitely more than being a "picky eater." On the up side she is VERY active & very strong for her size.
She has been ill very little; on antibiotics once for ear infection.

She had blood work done (after FTT dx) which was repeated 2-3 wks later. The only thing her ped is concerned about is a low CO2 level (15 on 1st test; 18 on 2nd.) Her ped thought possible Renal Tubular Acidosis & referred her to a ped nephrologist who looked at her labs (& I assume overall dx & sx) before her appt & said it did not look like RTA & said she should see a metabolic specialist instead. (I didn't even know there was such a thing)She is waiting for an appt which may take awhile because there are not many physicians who specialize in this field.

I'm wondering if anyone else is familiar with a metabolic specialist and what types of testing they might do and what types of disorders they deal with.
Also has anyone ever had a child with similar symptoms, diagnosis &/or lab results.

Other things I can think of (which may just be her own personality stuff) is that she is shy or afraid of strangers, startles easily, is afraid of noises (especially loud) wants to be held or wants to be near you much of the time; common "toddler" stuff I think. Any info &/or suggestions anyone has wouldlybe greatly appreciated. Thanks so much.
Hello, I am a father with cf childern and I know what it means to fear the unkown. I can say that here in europe the drug that helps childern with cf gain wait enzims and other vitamins that we all need from the food we eat, it helps my two sons gain wait on a steady basis. Ask your doctor about "Kreon" and maybe put her through a "sweat test" to see if it is cf. It is a painless test and very short. At any rate if it isn't cf it will shead a bit of light toward the next step. My english spelling is a bit rusty so please forgive me if I have spelled some words wronge. I hope I've helped

 
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