Re: Finer things in life.
My son is 8 as well and was diagnosed shortly after he was born. He pretty much leads a normal life though we have to do treatments and give him medication to keep his lungs happy and healthy. Depending upon income, there are some programs thru the drug companies to defray copayment costs. We don't meet most of the income guidelines but in the past we've been eligibible to get the copay on Tobi provided. The different enzyme companies provide incentives -- again copay help. We get nutritional beverages and vitamins provided when we send in a receipt from the pharmacy.
The CFF mainly raises money for drug and treatment research. I see by your location you're in the midwest. There is a group out of North Dakota -- the Cystic Fibrosis Association that helps with travel to CF education events at the U of MN, with medications, equipment and other things. We don't belong to that group.