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Old 03-09-2005, 09:57 AM   #1
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jmurs HB User
Question When do you tell a mother she is dying

My aunt is dying from cancer. She is doing ok now but was given 6 months to a year. My cousin does not know what to do about telling her mom she is dying. My aunt has dementia so the thought is don't tell her she won't remember anyway. Mostly everyone in the family says don't tell her at all. She is 82. My cousin is the caregiver and lives with her mother. She wanted opinions on the subject of if and when she should tell her mother.
When my mil died and we had hospice they told us she should be told. Even though we didn't want to, we did tell her.
Thanks

 
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Old 03-09-2005, 11:22 AM   #2
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MellyMel HB User
Re: When do you tell a mother she is dying

Quote:
Originally Posted by jmurs
My aunt is dying from cancer. She is doing ok now but was given 6 months to a year. My cousin does not know what to do about telling her mom she is dying. My aunt has dementia so the thought is don't tell her she won't remember anyway. Mostly everyone in the family says don't tell her at all. She is 82. My cousin is the caregiver and lives with her mother. She wanted opinions on the subject of if and when she should tell her mother.
When my mil died and we had hospice they told us she should be told. Even though we didn't want to, we did tell her.
Thanks
I think everyone has the right to know if/when they are dying. She should probably tell her and she probably won't remember anyway, but she will feel better knowing that at least she had told her. God Bless!!

Melly

 
Old 03-18-2005, 02:25 AM   #3
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ShakeItUp HB User
Re: When do you tell a mother she is dying

Hello.
I just lost my dad to cancer yesterday. We didn't tell him that he was actually dying from cancer. He knew he wasn't getting any better but we didn't want to tell him what the doctor had told us. My dad has had cancer for a really long time and when he went into the hospital in December we were told he had approx. 3 months. When he went to the doctor last week on wednesday the doctor then told us he was responding to the medicine well enough to give us probably 6 more months. WELL, the doctor was wrong! My dad also had kidney failure so he had been going through Dialysis 3x a week. On monday he had surgery to have a fistula(something for his veins to do the dialysis for those who don't know) put into his arm. After surgery he seemed ok. Although he did take a long time to wake up after surgery. The morning after I was with him to take him to dialysis he was a little disoriented and we weren't sure why. The doctor at dialysis said they thought maybe from the medicine they used to put him to sleep for the surgery. He was almost through with his dialysis when he became unresponsive. They rushed him to the emergency room and had no clue what was wrong with him. This was tuesday night. We were then finally told in ICU that they think he had a blood clot go to his lungs and heart.
Sorry to put so much into this post but I needed to just put it into words because I still feel numb as if this isn't happening.
I lost my dad early Thursday morning and we weren't expecting it.
I can say that I am glad he didn't know he had a certian amount of time left because in our situation the doctor changed his mind and was wrong!
His first thoughts on 3 months were almost right on the spot.
We also think the surgery may have brought the blood clot on.
I know that since he didn't know for sure he only had a certian amount of time, he was happy and full of life. For my situation if he had known I think he would have had a hard time dealing with the knowing.
Oh I miss him so much and can't believe this is real!
Nowone can ever be sure if telling someone they are dying is the right thing to do. You just have to do what you feel is best for the person at hand and the family.
God Bless Everyone and you and your family are in my prayers!

 
Old 03-18-2005, 10:10 PM   #4
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tkgoodspirit HB Usertkgoodspirit HB Usertkgoodspirit HB Usertkgoodspirit HB Usertkgoodspirit HB Usertkgoodspirit HB Usertkgoodspirit HB User
Re: When do you tell a mother she is dying

jmurs,

First of all, my sympathies to you and your cousin. And I have to say this is such a personal time. Death is so personal. It belongs to the one who is dying and it affects those who love them so deeply, that feelings are all mixed up.

My mom died at the age of 65 in Sept. of 2003. She had small cell lung cancer that have moved to her brain and intestines. She couldn't stand the radiation, so all treatment was stopped. Her diagnosis orignally was 6-8 weeks, and I believe her doc told her, but she didn't comprehend. It was right when she was attempting the radiation, and they brought a lawyer to her so that she could fill out a will. It's funny, cuz mom had every detail of her funeral, right down to the creamation taken care of, but she had no will. She always knew "how" she would go, she just was suprised at how "soon". Which isn't really surprising as death comes to us early in my family. Her mom died when she was 58 (my grandma) and her brother died just two years earlier at the age of 49.

But anyway, after a long thought, and knowing how my mom was, I decided to tell her myself. I picked a time when she was "good", thinking pretty clearly. She had good days and days that were confusing for her. I knew my mother would want to know, she was that kind of person, straight to the point. So I have to tell, you, it was extremely hard. No one else would tell her, but they all agreed she should know! I am an only child, so I know my mom pretty well. When I decided to tell her I made sure I had her full attention and I also told the nurses (she was at a care facility, where she stayed until she died, even though we planned on hospice bringing her home, she just gave up on that notion and felt more comfortable being where she was) that I was going to tell her, and when I would be telling her. So, I told her, and she was "okay", she hadn't remembered. And I asked her then if she would like to talk to one of the nurses incase she had any specific questions, and she did. At first the nurse, who was fairly young, didn't want to, but I assured her, it was what mom wanted, so she sat with mom and mom asked her questions, and you want to know what the first question she had was? "What will my skin look like?" LOL I had to laugh, she was very young looking for her age, and I guess that was a worry of hers! Like I said she was originally given 6-8 weeks but she made it nearly 6 months. So, you never know about these things. But once she found out, then we got the ball rolling, so to speak, she told me where to find certain papers, she told me what was to be done with her things, who was to get what, I was to pick out her urn, I made the final arrangements with the funeral home, I even had her investment broker come see her in the facility to talk to her about her retirement funds. She wrote down every thing, for fear that the next day, she wouldn't be able to remember something. It was a little trying, but we got through it. The one thing we didn't tell her was that while my mom was dying from cancer, her sister, age 54 was diagnosed with non-hodgkins lymphoma. So, my aunt had cancer and was going through treatment while my mom was dying. We never told mom that and I think that was a good decision. Sally (my aunt) never made it to mom's funeral cuz she was going through chemo, but one of her daughters and her husband came.
I'll never forget bringing some of mom's close to her room so that she could pick out what she was to wear during her service. Do THAT once in your life, and you'll never forget it. Another thing that we told mom and it was kinda hard, was that I had driven up once (she was in Iowa and I live in Alabama) and was going to take back the stuff she wanted me to have in a trailor. Most of it was furniture she had since I was a child. But it had to be done then, and it was hard to tell her that, and it did upset her, cuz she hadn't yet gone. But myself and my aunt had to do it then, cuz the owner of the house was going to move into the house and we had to get her furniture out. It was a hard decision to make, as are all the decisions at a time like this, but you have to make them. Whether they be good ones or bad ones, they have to made, and dealt with. So, mom was coming home from time to time, but then she got too ill to get out and when she did come to her house, I think she got upset, she just couldn't stay long, she would get sick and we'd have to put her in her bed. So after we moved her stuff, she never went back to the house.

But, your cousin just has to know her mom, and go with it. Is she the kind of person who would want to know, she has to consider that, I think, and will she understand when she is told. You mentioned she is 82? That's a good age, she's lived a long time, and I'm sure she's a smart woman who knows that her time to go is not far. I think it's harder when the person is younger, and expecting to get some more out of life. But have her go with what she feels is best for her mother. I can tell you this, it is a very special moment that is shared between mother and daughter, mother and son, or who ever, it is a very special and never forgotten moment. It doesnt' come along very often, thank goodness, but to me, it was an honor. I wanted to be there when mom passed, I also think THAT is a great honor, to be there when someone passes over, but evertime I came up when they told me it was time, she'd hang on. So I finally left, I am applying for SSD and I had a hearing I had to be at, and I told her I wouldn't be coming back, and the nurses wanted her to be told that it was okay to let go, so when I told her I wouldn't be back, I think she did just that. She died four days later. And her last words to me were "I never told you enough how much I loved you."

I'll always remember those words as much as I remember telling her she didn't have much time left here on earth. And you know what is surprising to me, knowing my mom, how prepared she was with all her funeral service arrangments and finances, I mean, EVERYTHING was paid for and she left no debt. She didn't own her house, she was very organized, and I was very lucky, however, she was very scared to die. She'd expected it for so long, heck for most of my life I heard she that she was going to die when she was 55! Imagine the "I told ya so's" when she turned 56! But she was really scared of dying and that bothered me. Death doesn't scare me, of course I'm not dying, but in general the idea of dying tomorrow doesn't scare me. But it upset me, that it did her. She even asked me once "Should I be afraid?" I told her I didn't believe so, that it would be a wonderful peaceful experience and that the only sad thing was that she was leaving my world and the world that she knew, so early.

So, I hope this helps you a bit. I know I went off, I usually do, but I felt like you should understand the dynamics of the circumstance. Everyone is different and everyone's death is very personal.

Here's wishing you and your family a good spirit.
tk

 
Old 03-19-2005, 09:45 PM   #5
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Janette215 HB User
Re: When do you tell a mother she is dying

im sorry to hear about your cousin and aunt. thats a very difficult thing to deal with. my great grandma had dementia and her son died and it was very sudden so we couldn't tell her before she was upset but i don't know if she understood it fully. i think with this kind of situation it is hard. my nana (diff. person) on my moms side recently died in december and she had always been in and out of the hospital but we knew that she was going to die because the doctors told my mom. we didn't want to tell her but she knew. she was going thru all the things that happen to you when you start to die and it was very hard for all of us. what my mom did, she was the primary care person for my nana, was ask all 6 of her siblings what to do, but it also more complicated, she had kidney dialysis and my mom had to decide whether to turn it off or keep letting her get it. if it was turned off she would hvae died, but we didnt want her to suffer anymore so we decided to let it get turned off. anyway, they eventually decided to tell her its ok she can and that she can go. i think that sometimes when people are dying they just need to know that we arent going to be mad at them, even if the person has dementia i would just try to make them feel like its ok, as hard as it is and as much as we miss her, none of us wanted her to suffer anymore. in the end they are at peace and thats just how you have to think about it as much as it hurts.

 
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