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Old 07-07-2008, 07:45 PM   #1
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Marie1973 HB User
From sleeping almost always to up much of the time.Input needed please

Hello all.I have posted about my dad who is on hospice & was given 2 weeks on June 13,2008.
The last few weeks he was sleeping most of the day-didn't really want to do anything.He was either in bed or on the couch.

The past few days,it's like he's energized.Not sleeping much.His respirations are at 22 whereas before they were 30+.So he hasn't required morphine for the past 3 nites. (he doesn't/never has had pain-we only use it for breathing)He's been walking around by himself.Wanted to go sit outside (like he has always enjoyed until recently),even went to the dentist today to fix his dentures-when a few weeks ago he had no such interest.

He really appears to be getting better.Except that-he doesn't look better.He still has that pallor color.

I've read about a surge of energy and I hope this is not it.
Has anyone had experience w/ the surge that they speak of in the hospice books?

I'm wondering if maybe he just gets shortwinded because he might have emphysema due to 60 yrs of smoking.

We never had a biopsy to prove it to be cancer.
Okay-I don't want to seem in denial-but it can be possible.

Any thoughts are appreciated.
Thank you,
Marie

Last edited by Marie1973; 07-07-2008 at 07:47 PM.

 
Old 07-08-2008, 09:36 AM   #2
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LaurieBelle HB User
Re: From sleeping almost always to up much of the time.Input needed please

Hello Marie1973,

I experienced it before my mother passed away, but it only lasted about 1/2 day and she was down again. It is interesting that your father has been this way for the last few days. It certainly sounds like he isn't ready to go anywhere yet!!

Whatever it is, just enjoy your time with him and admire him for his strength to try and take back control of his life.

LaurieBelle

 
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Old 07-08-2008, 02:51 PM   #3
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SherryAnne HB User
Re: From sleeping almost always to up much of the time.Input needed please

Hi Marie....my mom did the same thing. She would practically be on her death bed and then the next day be up and washing clothes. Her surge of energy was much more than that. A few times now she has gotten to the point where we though she had a miracle. These "well" spurts usually lasted for two to three months. Unfortunately, this time I don't think she'll bounce back as she hasn't eaten for over two weeks now. She is also completely
disoriented.

The surge of energy as stated in the hospice book seems to maybe last a few days at best.

I hope this was a little bit of help to you (but probably not much). Everyone
reacts differently and that is why the entire process is such a mystery.

If I can help you in any way, I would be glad to do so. Marie, just hang in there as it is a very difficult road to travel. As for me, today I just had to
take one MINUTE at a time as that was all my mind and body could handle.

May God Bless all of us on this journey. Take care...my prayers are with you, your dad, and your entire family.

 
Old 07-08-2008, 04:06 PM   #4
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Marie1973 HB User
Re: From sleeping almost always to up much of the time.Input needed please

Thank you Lauriebelle.I'm sorry for the loss of your mom.
SherryAnne,thank you and I wish you all the best with what you are going through with your mom.

 
Old 07-09-2008, 06:43 AM   #5
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LaurieBelle HB User
Re: From sleeping almost always to up much of the time.Input needed please

Hi Marie1973,

How are things with your father today? I found it interesting when you said they gave him 2 weeks but they never did a biopsy to prove it was cancer. Also, that he has emphysema. I wasn't going to bring this up, but, I am going through something similar with my 92-year-old father now. He is in a nursing home. He has chloridium difficile (a bowel infection), emphysema, and on top of all that, they discovered cancer on his neck and the petscan showed that it may have spread to his lungs, but they chose not to do a biopsy on the lungs because it would require surgery. It may be from having emphysema and pneumonia in the past. The doctor gave him 2 months at that time, but he has since gotten stronger and an oncologist said yesterday that he could have light radiation to his neck to extend his life further.

I guess my point is, we have to take it one day at a time and count the blessings (no matter how small) of each day. Hang on to the good things and try not to think of the negative. Cherish him as long as you can, say the things you want to say to make him feel loved. I have found that all this helps you to cope with things and I hope it works for you.

LaurieBelle

 
Old 07-09-2008, 08:04 AM   #6
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Marie1973 HB User
Re: From sleeping almost always to up much of the time.Input needed please

Hi Lauriebelle.I'm glad they are able to give your dad radiation.I hope this will help.

My dad is napping right now.He was up almost all of the night.His bed is in the living room-(I sleep on the couch next to him.)

What happened was that he went for a chest x ray in April because he was coughing for a few months-the cough would not go away.
Then the primary called that same nite and said there was a "shadow" on the x ray and he needs to see a lung specialist.I told my dad but he said he doesn't want to go anywhere.

I called my cousin who works in the radiologists office,and she said the report suggested a catscan of the lung due to mass on the lung.

I made an appt. for a catscan.That same night,my dad's primary doc called again and said he needs to see a lung specialist right away.That was on May 27.On May 29 -we went to see the lung doc who told my dad he has 6 months.He recommended a biopsy.

I made my dad an appt. with the oncolgist (whos also my moms doc) for June 3rd. He also recommended a biopsy & suggested chemo & radiation.At that point my dad said he didnt want anything-when its time to go its time to go.
The doc looked at me and said "it's a matter of weeks."
I fiqure from his yrs of experience-he's seen it all.

My dad happened to be staying with me,visiting for a few days during this time.I noticed his breathing getting worse & worse-though he never complained.He was breathing almost 40 per min.On June 8th he started coughing up blood -I took him to the er.

He was admitted w/ pneumonia.At this point we had a biopsy scheduled (at the same hospital.) But we didnt do it.My dad was just so sick.Even whwen he had to lie down for the catscan-he was so out of breath he couldnt talk.
I really thought he was going to die.I called my mom & my sister at 5 am & told them to get there quick.

The oncologist said that he did not feel my dad was able to withstand treatment-he was dying.He said he had about 2 weeks.

Then we came home on hospice on June 13.My dad has improved so much since then.No he's not himself-but compared to how he was-thers a huge difference.
He hasnt needed morphine the past 5 nites.Hes walking around on his own-whereas before he needed assistance.
He started eating again! Before he would only eat ice cream.Now hes eating pancakes and sausage again!

I dont know if he has emphysema-Im assuming he could after all those yrs of smoking.Maybe thats why he has shortness of breath-during activity like walking.His breathing has improved after he was treated for the pneumonia.They have him on 3 liters of oxygen constantly.He was sent home from the hospital with it.But the nurse said he can take it off when he wants.And the last 5 days hes had it off more than on & hes fine.

I asked the hospice nurse how they determined that he needed the o2 .In the hospital his o2 sat was 91.That was when he had pneumonia.He hasnt had it tested since.Its really confusing.I dont know what to think.

My dad's coming off hospice again at this point & going for the biopsy.We've just decided this.
Thanks for all your support.

Last edited by Marie1973; 07-09-2008 at 08:16 AM.

 
Old 07-09-2008, 09:02 AM   #7
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LaurieBelle HB User
Re: From sleeping almost always to up much of the time.Input needed please

That is good he is going for the biopsy - at least you will know exactly what you are dealing with. Sounds like things are looking up for your dad. He sounds like my dad. My dad had pneumonia twice, and we didn't think he was gonna make it either time. It is a horrible illness. He went home the first time and lived on his own for several months, but he kept getting worse and worse, until he checked himself into a hospital and he had it again (along with the other health problems). He still has trouble breathing and is on oxygen most every day now. Thankfully, he is in a nursing home where they keep a close eye on him.

Best of luck to you and your Dad. Let us know how things go.

LaurieBelle

Last edited by LaurieBelle; 07-09-2008 at 09:02 AM.

 
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