Originally Posted by leonap
No doctor should be telling someone that they are going to die in two years.How do they know.Do you have a tag on you that says discard after two more years??I dont think so.I could see someone tellin another that thier prognosis wasnt the greatest,but at this point we dont know-but giving you an specific time period??Not right.Fight.Focus on beating the odds.Miracles do happen sometimes.Check out different doctors.No one should be putting a time limit on life.That is not honesty,that is rude.Somewhere within there has to be health.Your heart condition sounds kind of rare,but I am sure there are different doctors who can help you.I can understand others trying to chear you up.They care about you.Reality is just that,but we really do not know what the future holds.I dont like the fact that these doctors have put a limit on your life.
lol...not only did the surgeons tell me that, my cardiologist and primary care doc repeated it. It is rare but not un common from what I was told 1 in 500,000 can have this as a birth defect. The problem has always been detecting it. I played all kinds of sports, smoked, remained physical thru out my life with no kind of indication of trouble at all. The thing that complicates my situation is that I can not work, I'm on my 5th try for disability and I have no insurance so I can not receive treatment for anything. No meds at all. I am suppose to take plavix everyday for a year. I have not had any of my meds since March of this year. Trust me I have tried everything to get them, free clinice, free sample etc. There is no help out there for me. I was actually told I had to be either pregnant or an illegal citizen to get the help I need.
So in many ways I am just waiting around for one of two things to happen. Either another heart attack or my court date with a disability judge. In the meantime I have made peace with what I am dealing with. Again I have to say that I have NOT given up...I want to live...there are many things I want to do in life and I have not stopped living..I do as much as I can each day. But the facts remain the same. Just this week I started swelling up again which is not a good sign. In two days I have gained 20 lbs. This is something the doctors could never figure out. They thought it was due to my heart but the other signs are not there. My kidneys were fine every time they checked em. My white blood cell count remains elevated due to fighting an infection that no one can find..there are many complications that no one can figure out...the doctors at Duke want to write a paper about me cause they are baffled. I'm in pain due to spinal stenosis, Im light headed all the time due to vertigo, the diabetes is eating away at me...but I have not given up.