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Old 12-11-2011, 07:14 PM   #1
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Join Date: Dec 2011
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sonlove HB User
New symptoms of End Stage Liver Disease

My son Greg noticed this past week a new system. He took a shower and scrub his scaley legs and feet which he has kept mosturized every day and when he got out of shower, his legs and feet were bleeding, leaking. This presents a new problem. His legs and feet now have little blisters on them and leaks fluid out. He said they itched a lot. He can't get warm enough. I have put up to 11 light weight blankets and fleece throws on him. Now since his legs and feet have blistered, he will get hot and throw some of the covers off of him when he is in bed. He stays cold most of the time during the day, can't put on enough layered clothes. He takes Attarax for his itching, Morphine, 15mg for pain, plus two kinds of duretics twice a day, Oxycodone .5mg for break throughs and have Morphine drops for severe pain, Cipro 750mg for infection, Lacutose two teaspoons twice a day, sometimes he takes Exlax when his bowels won't move. He also takes Xanax 2 tablets three times a day. His stomach is getting bigger, containing more fluids. He won't put his legs up above his heart twice a day, "got too many things to do", he said. I quit harping at him, doesn't do any good. He is only hurting his own self not following directions from hospice. He wants to get his stomach drained and I told him he couldn't according to hospice, they don't do prevented methods like draining him. He signed papers his self, knew that they had told him this. He signed a Do Not Resusitate (DNR) paper. He only eats small amounts of food at dinner, he might later in the early morning, fix a sandwich to eat or Lime Sherbert to eat. He is also in an angry stage. Trying to bargained with God to let him live. He hasn't drank any liquor since Sept. 1, 2011 when he started hurting. He smokes maybe 2 cigarettes a day, none if the weather is cold outside. He still thinks he will get a liver transplant even though the doctors said in hospital that he was terminal and had no options for liver transplant. Being an alcoholic, he is not eligible for a liver transplant as he has been through this before about 5 years ago. Also, he just got Medicaid for Hospice only, never heard of this before. Either you are on Medicaid or not, didn't know they had special kinds of Medicaid. He can't go to the hospital, no insurance. He is only 48 years old and we are praying he makes it through the Christmas Holidays and into the new year. Usually, the doctors give 0 to 6 months to live after being told End Stage Liver Disease.

 
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Old 12-15-2011, 11:03 AM   #2
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kcooke HB Userkcooke HB User
Re: New systoms of End Stage Liver Disease

First of all Hospice is not final - you can go in and out of the Hospice program whenever you want. A paracentisis is not meant to prolong your life so Hospice should allow it - it's part of comfort care - push the issue with them. If it's because he has no health insurance and Medicaid won't pay for it - push the issue with them - if he ends up in the ER because of the edema they will pay for it then - the point is to PUSH! He needs an advocate - times are going to get more difficult. Another note - don't use laxatives for the bowels - the point of the Lactulose is to flush the ammonia out of his system - laxatives don't do that - the Lactulose does - see if they will put him on Xifaxin as well - again this is for the ammonia. As far as all the pain killers - this will speed up the passing process - they are all metabolized through the liver so they will also alter him cognitively - see if they can be tapered back. I have to be honest - this can go very badly in the end - you should speak to the doctors about managing the end process. Good luck.

 
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