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Old 05-16-2011, 06:29 PM   #31
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Smile Re: Degenerative Disk Disease

Hi
I have Degenerative Disc Disease in my lumbar spine from l2 to s1 I also have scolliosis as well. I attend a Pain Clinic and I have bi lateral branch blocks to my facet joints twice a year. As I'm unable to take any strong pain relief. These actually straighten me up and make it somewhat bearable to stand although I can't walk very far I refuse to become totally housebound or wheelechair bound. I must admit it can be a lonely life luckily my sister lives close and comes round to see me 4 times a week and then my brother comes twice a week and my niece comes once a week. Then I get the odd neighbour calling in so I'm lucky.

 
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Old 06-17-2011, 01:30 AM   #32
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Re: Degenerative Disk Disease

Find a pain management specialist who will listen to your concerns and take his advice. There is hope for those who have degenerative disk disease. Have faith. Keep going until you find a pain dr. that you can talk to.

 
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Old 06-22-2011, 11:01 PM   #33
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Re: Degenerative Disk Disease

Crazy, but after using the pronex nightly, being on an anti-inflammitory diet, neck stretching every morning, taking fish oil & chondrotin/msm/glucosamine complex, I now am totally pain free. I go to Neurosurgeon on July 1st to find out if they want to do the cervical surgery. I am hopeful.......i think. Oh, and all those things really did not start working until I left my boyfriend; I eliminated the most stressful thing in my life. Could alot of my pain have been psychosematic? Oh how I ponder......

 
Old 08-03-2011, 12:48 AM   #34
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Re: Degenerative Disk Disease

You are not alone, I think it's one of the most common severe back problems. I was diagnosed with it when I was 19, had IDET surgery then, actually seemed to work for me, I know the results have been bad for most people. When I hit 30 my new surgeon told me I most likely did not have DDD, but somehow ruptured my disc when I was younger, I think from cliff diving, but not sure. Anyhow I will be having anterior lumbar fusion in 2 weeks time, I'm hoping for a good result. Good luck managing your pain, it can be a long battle. The one thing I learned about pain management is finding a good doctor is very important for it. Don't be afraid to switch, also pain pills are very effective, but should be avoided if possible. Been on 15mg OXY for so long now, body feels more beat up from the pills than from the back pain. Good Luck!

 
Old 08-03-2011, 11:37 PM   #35
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Wink Re: Degenerative Disk Disease

Wish you success with your upcoming surgery; hope recovery is smooth for you! My Dr put me on Neuronton a couple weeks ago for the nerve pain I've had with increasing regularity in my legs & especially feet. So far not much change,& those stabbing electric-like pains are very annoying! I'm so confused as to the level of concern I should have with nerve pain. Seems it's very common, but many people seem to warn about permanent damage, so I'm worried if we're just trying to mask the pain with drugs, will I be eventually unable to walk?? Thanks for your thoughts, & I will be thinking good thoughs for your outcome

 
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Old 08-04-2011, 01:42 AM   #36
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Re: Degenerative Disk Disease

Have you tried the cortisone shots? Usually one of first things they try, especially when pain radiates to the legs. I've been lucky, all I get is my left foot going numb, no major nerves are effected, only sever grinding and stabbing pains in lower back. The shots did nothing for my back pain, heard the shots are low success, but can be good relief for some people.

Last edited by Markdog33; 08-04-2011 at 01:46 AM.

 
Old 08-04-2011, 11:08 AM   #37
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Re: Degenerative Disk Disease

Thanks Markdog, yes we tried the shots a few years ago- the relief was terrific...for a few days!! I've done Physical Therapy, which has helped quite a bit- I'm on the maintainence program @ Dynamic, and that is head over heels superior to other PT places I've been sent to. Monday next week I go in for another MRI; hopefully they can pinpoint the problem, as the nerve pain is scaring me!

 
Old 10-01-2011, 09:31 AM   #38
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Re: Degenerative Disk Disease

Hi guys, i also suffer from this problem. I was a stone/block mason for 32 years,im 49 years old now and was injured early in my career, i kept working till 2002 the pain was uncontrolable by me anymore.I went to a doctor,she sent me to get am MRI and results were 3 herniated discs,and DDD,at that time i was given percocet 10 360 per month,then oxcycotin till november 2009.I tried to cold turkey and bout died,now im on soboxone,which does nothing for pain,and unemployable,gov. wont give me my disabilty,doctors cant-wont operate.I have no option but to go back to pain meds,ya know ya hear about all these great medical advances,well i have yet to see em.I hate to say it but if your in constant pain you have no choice but to become dependent on opiates,give me an option but there are none at least in w.v.It destroyes your whole life slowly,and depression ia an awful side effect,i was always a hustler in my work now im imobile,tired,depressed and going to have to go back on opiates.

 
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Old 10-01-2011, 11:05 AM   #39
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Re: Degenerative Disk Disease

Hang in there mmkkpro; some days I can't imagine living with this forever, but the alternative is pretty grim! I agree that there should be more help from the medical community; I've been bounced around from dr. to dr. for the past 6 yrs for back problems. A few months ago the tingling in my feet & legs turned in to sharp/burning electric-type of pains in my feet. I'm now taking 2400mg Neurontin a day, which has given me some, but not total relief. I feel that the next step is severe/irreversible nerve damage?? I too, have lost my faith in drs. Now the neurologist says to start adding 25mg Mirapex 3x/day. We'll see where this goes. It's not that I expect to be pain-free, but I am concerned about the cause of the nerve pain and the fact that I have tingling from the waist down! Let's hope that there soon becomes solutions for the people like us...

 
Old 10-01-2011, 01:30 PM   #40
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Re: Degenerative Disk Disease

Kudos to you for stating your piece of mind and i do agree with you. I too have been diagonised with degnerative disc disease anf its like here take a pill for it and it will make it all better well it DOES'T!!! They give us pain medication and then when we NEED something more they look at us like we are crazy,that they can't help us....oh well WHAT DO WE DO??? Thanks for listening take care of yourself.. Tinkerbell45

 
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Old 10-02-2011, 01:37 AM   #41
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Re: Degenerative Disk Disease

Update on my status, had Anterior Lumbar Fusion on two levels 6 weeks ago, was a great 33rd birthday present at 3 weeks I felt great, then I started to get horrible pain all around my lower back, Doctor said it's form the Enzyme they use to grow the bone, they did not take any bone off my hip to use for the fusion, but rather used just an enzyme that goes in the cages and will stimulate bone growth, supposed to have like a 98% success rate of fusion. Now 6 weeks later I have a pulled muscle next to my spine that spasms and nearly drops me, keeps me using the walker much of the time, but I feel like once that muscle heals I will be much much better. Lowered my pain meds to 10mgs of Percocet every 4 hours so I'm already on less than I was pre-op. Hang in there all, there is light at the end.

 
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Old 10-02-2011, 09:09 AM   #42
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tweetyfeety HB User
Thumbs up Re: Degenerative Disk Disease

Wow Markdog33- you've been through a lot for a young guy!! I'm no stranger to muscle spasms in the back, & I cringed when I read that! Glad to hear you're feeling better as time passes. take care, TF

 
Old 10-02-2011, 02:25 PM   #43
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Re: Degenerative Disk Disease

Wow you have been thru ALOT for your age but then again what is age but numbers when you feel bad?! I am proud of you for all that you have accomplished and just cutting back on the pain meds is nothing short of a miracle to me. I hope everything keeps going well for you and i hope you will keep mr updated on your progress as time goes by. Until next time TAKE CARE hope to hear from you soon.

 
Old 10-02-2011, 10:31 PM   #44
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Re: Degenerative Disk Disease

I have DDD, Congenital Stenosis, Osteo arthritis, and more. I have a spinal cord the size of a pencil and should be the size of your thumb. The only one that helped me was a Neurologist that I had to beg my Dr to be refered to. He was the only one that said he would help me and he has. After he sent me straight to a fantastic Neurosurgeon and I had three disk in my neck fused with cadaver bone in between and metal plates, a hip done from a labral tear and L5-S1 done a few months ago I feel better. I will in the future look towards more surgery as I still have slipped disks (also known as bulging disks). Get referred to a Neurologist, then to a pain clinic. I do not live pain free, but I have a life where my pain level is not a ten every day. Good luck to you. And God bless

 
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Old 10-14-2011, 12:34 PM   #45
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Re: Degenerative Disk Disease

Quote:
Originally Posted by mmkkpro View Post
Hi guys, i also suffer from this problem. I was a stone/block mason for 32 years,im 49 years old now and was injured early in my career, i kept working till 2002 the pain was uncontrolable by me anymore.I went to a doctor,she sent me to get am MRI and results were 3 herniated discs,and DDD,at that time i was given percocet 10 360 per month,then oxcycotin till november 2009.I tried to cold turkey and bout died,now im on soboxone,which does nothing for pain,and unemployable,gov. wont give me my disabilty,doctors cant-wont operate.I have no option but to go back to pain meds,ya know ya hear about all these great medical advances,well i have yet to see em.I hate to say it but if your in constant pain you have no choice but to become dependent on opiates,give me an option but there are none at least in w.v.It destroyes your whole life slowly,and depression ia an awful side effect,i was always a hustler in my work now im imobile,tired,depressed and going to have to go back on opiates.
Whats the reason they wont operate ? Do you not have a leaking herniation? If there are discs pushing on a nerve or nerves they should do surgery. Is this a regular Dr saying this or a Neurosurgeon:? My Neurosurgeon does not go by what the report says he only wants to see the MRI. He said most descriptions are bs and when he saw my MRI had me in surgery within a week. Nerves can heal themselves but at a slow rate. If they have been crushed for too long they will die and not be able to heal themselves which is my case. MY regular Dr only went by the notes of the report of the MRI and kept telling me to deal with the pain and gave me tramadol which did nothing. It got to the point where I was in extreme pain at work and drove home in tears and went straight to bed. I have never taken Oxycoton as I feel that as I age I will get worse and if I take schedule 3 drugs now I will have nowhere to go when I get older. The operations have helped and with the pain meds I take I now have good and bad days. Prior I never saw a good day and it was years I dealt with it. I was diagnosed when I was 23 I never found a good Neurologist until 44. Good luck to you and keep going to different Drs until you find one to help. Believe me I have gone to many and some even told me it was in my head. Too many quacks and not enough good Drs out there. But they are there, just keep looking. I also fought and won my own SSD. I will give you a clue to get copies of all your Drs notes, MRIs or anything else you have done. They will help. Good luck to you.

 
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