Sae

I am so sorry, Jane, for all you have gone through. I read your post and you are suffering so. I am not sure if I have osteomyelitis and was researching some of the other posts and came up with the 2 names who definitely had O. My journey began when a wisdom tooth was extracted 11 months ago and dentist put bone graft in. Had immediate pain which got worse and dentist blew me off and said it was nothing. Pain was like screaming pain, could not eat, sleep and cried a lot. Was put on many pain pills, antibiotics by other dentists and still no let up. Was so sick, could not do anything, could not hold food down, developed heart pains (which they said was due to all the medications). Finally went to another state and doctor said it was either O. or retained root tips. Sent x-rays back to radiologist and he said it was retained root tips. I came back to my state to have the tips and bone graft removed. Twice was operated on since pain persisted. It has been 2 months now and although pain is not as bad, it feels warm, painful enough to take an occasional pill and gum is inflamed. Went to dental school to get dentures and OS said if pain persists to see him privately and he would send me to infectious disease doctor and then be put on a PICC line. Have an appointment Monday at dental school with another OS to have more teeth pulled and will ask this new OS what he thinks. MRI was negative, does not show up on Panorex, no fever but feel hot. I understand that MRI, Panorex, CT scans, blood tests or fevers are not always conclusive. One should have a scan with dye, also a biopsy. OS plans to do an alveoplasty in same area and I am rather frightened that if it is O. it will aggravate it more. I don't know exactly what the symptoms are and that is what I am trying to learn. I wish I could help you more as I know what that pain is like. It is sometimes difficult to tell between trigeminal neuralgia and infections, I think.