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Old 09-18-2008, 12:02 PM   #1
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elcollier HB User
Question Burning Mouth Syndrome

Has anyone heard of Burning Mouth Syndrome? I've got it and don't know what I can do to relieve it. Help!!

 
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Old 09-21-2008, 12:52 PM   #2
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Re: Burning Mouth Syndrome

Quote:
Originally Posted by elcollier View Post
Has anyone heard of Burning Mouth Syndrome? I've got it and don't know what I can do to relieve it. Help!!
elcollier, I have been experiencing the same symptoms for 11 months now. After many different Dr. visits & tests I went to an Oral Medicine Specialist. She said it could be 1 of 4 things..1.burning mouth syndrome- Possibly caused by hormonal changes which they are now treating with low doses of antidepressents. (They are still not sure why this helps) 2. Silent Gerd- which I will need to see a Gastro Dr. to find out for sure. 3. Chronic Sinusitis-I will need to see an ENT or 4. Vitamin or Iron deficiency.

If you can go to an Oral Medicine Specialist. I found mine at the dental school at a Big University Hospital. She is going to work with me till we get this figured out!

I hope this helps you some! & keep us posted on what you find out too. Sometimes this symptom can also be caused by something as simple as a side affect from a medication. The Oral Surgeon I saw said his Father had it but was caused by his medication.

Last edited by mountaingurl; 09-21-2008 at 01:01 PM.

 
Old 09-24-2008, 07:11 AM   #3
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Re: Burning Mouth Syndrome

I've definitely heard of it, I've been living with this since June of 2007.

It resulted (in my opinion) from dental work that was done during that period. I went back to the dentist in July of 2007 complaining of numbness in my lips and burning mouth.

I tried Amitriptyline and Neurontin. I had side effects on both, and neither one helped the burning. I know take a small dose (.25mg in the evening, .25mg at bedtime) of Clonazepam, and in my situation this helps.
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RRMS Dx 03/08

 
Old 09-28-2008, 10:22 AM   #4
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elcollier HB User
Re: Burning Mouth Syndrome

Thank you for the info. I have got a dental hospital appointment in November so I will see how that goes. If anything comes up I will be in touch.

 
Old 10-21-2008, 12:31 PM   #5
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Re: Burning Mouth Syndrome

Hi - i have been diagnosed with burning mouth syndrome in May 2008. I went to several doctors/dentists before I was referred to a specialist at Unniversity of PA Hospital in PA. It has been difficult explaining to my family what I feel like most of the time and does affect my life. Right now I am on Clonazepam 0.5 at night and Numoisyn Lozenge 3 times a day. They both help. I have been told they can control the affects but can not cure it. I am hoping they are wrong. It was nice to find a support group on line cos no one around here knows what i am talking about. Hope to hear from you soon.

 
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