Originally Posted by heretohelp13
I'm so sorry to hear about your problems. What are your symptoms exactly? And did you eat or do ANYTHING the night before that could have triggered something?
Have you seen a Chiropractor to make sure your neck or spine wasn't accidentally pushed out of place and causing nerve problems?
Hope to help...
Hi Hope to Help
Thanks for your message. If I did do anything at all to trigger this I have no idea. I had a party for my 21st. I didn't and never have consumed drugs of any kind other than prescription medication. There was an argument during the course of the party but things carried on, had a fantastic night. Went to bed. Not much different to any other night out I've had.
My symptoms are endless. It began the next day when I woke up, I was aching all over, feeling very confused, my legs felt strange and I couldn't walk properly, just about able to shuffle. At first I put it down to a hangover and went back to bed. By that evening I knew something was wrong. Since then things have gone downhill very quickly.
Now I can stagger very short distances but fall more often than not, my balance is really poor and my legs are weak (the right more so than the left) so use a wheelchair at all times when out of the house and within my own home a zimmer frame as my house is not wheelchair friendly. I am in pain all the time, the worst of which is my legs, hips and back. I also twitch and jerk pretty much constantly, very violently. As bizarre as this sounds sometimes the jerks and twitches are out of the blue and sometimes I almost feel as though I have had a little electric shock or been stabbed with a needle which sets them off, but the pain isn't necessarily in the same part of my body as the movement. For example, the pain can be in my knee but my neck, shoulders and arms will jerk.
Nothing feels right, how things should feel is something totally different to how they do. I get pins and needles in my hands and feet, have numb patches and areas which are so sensitive it makes me feel sick to have them touched. I have severe allodynia (one thing they could diagnose) which basically means I get pain from things which shouldn't cause it. An example is if someone touches my legs, particularly my calves I feel as though I'm being burnt.
I have nosebleeds out of the blue, palpitations, bad migraines, bad stomach cramps, my periods come on and off with no pattern whatsoever (not that they were ever regular) but have now stopped completely. I no longer experience the need to urinate until I am absolutely desperate and about to wet myself. Sometimes I won't urinate for up to 48 hours, I have no urge to but do not have accidents either - I just don't go. I also have difficulty swallowing occasionally. I have visual and hearing disturbances too. Like I think the light is flickering but it's not or I think I can hear wind really loudly but other people will tell me they hear nothing.
My doctor has advised me NOT to see a chiropractor because they've done no MRI or CT scans or a lumbar puncture because they need me to be still to perform these procedures but due to the constant jerking that isn't possible.
So I'm a little stuck ..... x