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Old 01-20-2013, 03:49 PM   #1
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disasterface HB User
Exclamation Depression due to undiagnosed medical problem.

I am currently suffering from a wide range of medical symptoms which literally arrived overnight. I'm 21 years old and have been through some pretty tough stuff over the years and have always managed to grit my teeth and soldier through but this time I just feel like it's really all far too much.

I went to bed a reasonably healthy and happy 21 year old, full time employed in a well paying managerial job I adore, a very active social life and woke up with a wide variety of medical symptoms that have very quickly got worse. This occurred in November 2012, a day after my 21st birthday to be precise.

I am now wheelchair bound 95% of the time but use walking aids within my home. I can stagger short distances but fall multiple times per day often injuring myself. I also twitch and jerk violently meaning I have very little control over my arms. I have no independence and am unable to perform even the simplest of tasks unaided. I rely heavily on my family, my Mum in particular to care for me and feel so incredibly guilty for it. My friends seem to have vanished pretty quickly now I am unable to leave my house.

The doctors have no answers for me and are unable to offer me another specialist appointment until February 2014 or after meaning I am stuck like this until then at the earliest. It's not a life it's an existence.

I try to take one day at a time but it's so difficult. I am in pain from the moment I wake up til the minute I fall asleep. I am constantly exhausted, regardless of how much sleep I actually get. All of the things I used to enjoy are things I am unable to do now. In all fairness the only things I am still able to do is think for myself, watch TV/films, use the internet and read books. I don't have enough control over my movements to do anything else.

I'm also constantly terrified. I feel so trapped. I can't understand or control my own body. Normally you run from what you fear, but how can you run from your own body?

Last edited by Administrator; 01-20-2013 at 06:53 PM.

 
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Old 01-20-2013, 04:37 PM   #2
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heretohelp13 HB Userheretohelp13 HB User
Re: Depression due to undiagnosed medical problem.

I'm so sorry to hear about your problems. What are your symptoms exactly? And did you eat or do ANYTHING the night before that could have triggered something?

Have you seen a Chiropractor to make sure your neck or spine wasn't accidentally pushed out of place and causing nerve problems?

Hope to help...

 
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Old 01-20-2013, 05:21 PM   #3
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Re: Depression due to undiagnosed medical problem.

Quote:
Originally Posted by heretohelp13 View Post
I'm so sorry to hear about your problems. What are your symptoms exactly? And did you eat or do ANYTHING the night before that could have triggered something?

Have you seen a Chiropractor to make sure your neck or spine wasn't accidentally pushed out of place and causing nerve problems?

Hope to help...
Hi Hope to Help

Thanks for your message. If I did do anything at all to trigger this I have no idea. I had a party for my 21st. I didn't and never have consumed drugs of any kind other than prescription medication. There was an argument during the course of the party but things carried on, had a fantastic night. Went to bed. Not much different to any other night out I've had.

My symptoms are endless. It began the next day when I woke up, I was aching all over, feeling very confused, my legs felt strange and I couldn't walk properly, just about able to shuffle. At first I put it down to a hangover and went back to bed. By that evening I knew something was wrong. Since then things have gone downhill very quickly.

Now I can stagger very short distances but fall more often than not, my balance is really poor and my legs are weak (the right more so than the left) so use a wheelchair at all times when out of the house and within my own home a zimmer frame as my house is not wheelchair friendly. I am in pain all the time, the worst of which is my legs, hips and back. I also twitch and jerk pretty much constantly, very violently. As bizarre as this sounds sometimes the jerks and twitches are out of the blue and sometimes I almost feel as though I have had a little electric shock or been stabbed with a needle which sets them off, but the pain isn't necessarily in the same part of my body as the movement. For example, the pain can be in my knee but my neck, shoulders and arms will jerk.

Nothing feels right, how things should feel is something totally different to how they do. I get pins and needles in my hands and feet, have numb patches and areas which are so sensitive it makes me feel sick to have them touched. I have severe allodynia (one thing they could diagnose) which basically means I get pain from things which shouldn't cause it. An example is if someone touches my legs, particularly my calves I feel as though I'm being burnt.

I have nosebleeds out of the blue, palpitations, bad migraines, bad stomach cramps, my periods come on and off with no pattern whatsoever (not that they were ever regular) but have now stopped completely. I no longer experience the need to urinate until I am absolutely desperate and about to wet myself. Sometimes I won't urinate for up to 48 hours, I have no urge to but do not have accidents either - I just don't go. I also have difficulty swallowing occasionally. I have visual and hearing disturbances too. Like I think the light is flickering but it's not or I think I can hear wind really loudly but other people will tell me they hear nothing.

My doctor has advised me NOT to see a chiropractor because they've done no MRI or CT scans or a lumbar puncture because they need me to be still to perform these procedures but due to the constant jerking that isn't possible.

So I'm a little stuck ..... x

Last edited by disasterface; 01-20-2013 at 05:29 PM. Reason: Forgot to include certain information.

 
Old 01-20-2013, 06:44 PM   #4
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heretohelp13 HB Userheretohelp13 HB User
Re: Depression due to undiagnosed medical problem.

That is terrible that the doctor cannot do tests to look at your head, neck, or spine. Because it really sounds like it could be related to that area. (the brain and spine controls the body through nerves, etc). Were you dancing a lot at your party? Drinking a lot of alcohol?

So have the doctors given up? Why can't the doctor's put you to sleep during the MRI or CT Scan?

A good chiropractor will do x-rays of your neck and back...and listen to your story before offering treatment. But if you're jerking all the time it would be hard for the chiro to treat you anyways. Of course follow your doctor's orders....if they feel a chiro is not good...then I suppose you have to listen?

Sorry you are going through this and I would like to pray for you if you don't mind. I will pray for your complete healing in the name of Jesus

Last edited by heretohelp13; 01-20-2013 at 07:01 PM.

 
Old 01-21-2013, 12:04 PM   #5
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itsmylife HB User
Re: Depression due to undiagnosed medical problem.

I am very sorry to read of what you are suffering through.

A Brain SPECT scan is going to reveal a lot.
I would search for a Lyme Literate Doctor in your area. Being in the UK will not make it easy. However, if you cannot find a Lyme literate doctor right away, I would locate a good infectious disease doctor. Ask them to draw blood and send to Igenex Labs in California. They should test for the following:

Lyme Disease
Ehrlichiosis
Babesiosis
Bartonella

The local labs will not have the ability to test properly for these infections.

 
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Old 01-21-2013, 04:52 PM   #6
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disasterface HB User
Re: Depression due to undiagnosed medical problem.

Thank you once again for your response.
The consultants and neurologists I have seen so far, as well as my physiotherapist believe it to be very nerve related. I consumed alcohol but no more than on a normal night out, didn't dance much. It was all quite relaxed to be honest.

The doctors have said they haven't given up but the specialist I need to see is fully booked until February 2014. My physiotherapist has discharged me from her care as she says at this stage she is unable to help me in any way as it is too painful for her to touch me and I am unable to do exercise etc as I am unable to control my movements. They have said they can't sedate me during MRI or CT scans as it affects the reading, it is essential I am fully conscious.

And I genuinely don't mind... I pray regularly myself.
Thanks again =)

 
Old 01-21-2013, 04:59 PM   #7
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disasterface HB User
Re: Depression due to undiagnosed medical problem.

Quote:
Originally Posted by itsmylife View Post
I am very sorry to read of what you are suffering through.

A Brain SPECT scan is going to reveal a lot.
I would search for a Lyme Literate Doctor in your area. Being in the UK will not make it easy. However, if you cannot find a Lyme literate doctor right away, I would locate a good infectious disease doctor. Ask them to draw blood and send to Igenex Labs in California. They should test for the following:

Lyme Disease
Ehrlichiosis
Babesiosis
Bartonella

The local labs will not have the ability to test properly for these infections.
Thank you so much for this response....
I have heard of Lymes I think, is it not an insect bite related illness? If this is relevant I don't know but I did spend a few months earlier in 2012 travelling in the Mediterranean.
What made you suggest this if you do not mind me asking?

Are you aware of whether I would have to seek this privately or how I would go about this?

Many thanks again

 
Old 01-22-2013, 09:53 AM   #8
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Re: Depression due to undiagnosed medical problem.

Lyme can be transmitted by ticks, biting flys, mosquitoes, spiders and so on. People have been infected now in most corners of the globe. 99 percents of MD's are not trained to know this because they are trained to treat symptoms of the illness with medication. When you have a multi systemic disease that damages the immune system, they are not going to make any money supervising diet and lifestyle changes including expensive antibiotic treatment. The human immune system is very powerful and typically, Lyme Disease alone is not enough to drop a healthy person into the abyss of extreme illness. In most cases, people are infected with Lyme Disease and other co infections either from the initial bite or through a series of bites. Once you have two, three or more, then you have the "Disease." If you are lucky enough to test positively for Lyme, most doctors will treat for Lyme and they will not even know to look for the other infections. The result is either no improvement, or an improvement and return of the symptoms because the co infection diseases were not treated.
For now while you are beginning your journey it's import to start a good clean diet with lots of vegetables and fruits. Vegetables and fruits that are raw and "alive."
I would encourage you to get a juicer and begin researching the health benefits of juicing. Somento and Andrographis Paniculata are also two good supplement to start with. You may find your symptoms peak when beginning with these immune boosters which are referred to as a "Herx" reaction. (the die off material being leached into your overworked blood and over worked liver.) Always start with a very low dosage according to the instructions on the label.
Many doctors will be quick to state this is an "auto immune" disease. Meaning your immune system is attacking its own cells for an unknown reason. But with the fact that the human body has been evolving for hundreds of thousands of years, this view seems quite ridiculous. The body is in fact detecting foreign material and is attacking appropriately. It is just a complex disease to understand and the medical community is not set up to make you a more "healthy" individual to fight it off.

Alcohol is a prime way to lower and weaken the immune system and allow these diseases the opportunity to thrive. Once they get in, it's like a padlock and makes it difficult to get them out because now they have created their own life cyle in our body. They communicate and work together to form their own parasitic body leaching off of yours.
I happen to live in CT only a few miles from Lyme, CT. Yet I was misdiagnosed with something else at the age of 12 and continued to the age of 20 before being diagnosed. Even then, co infections were never considered and I never felt well with treatment.
I was turned away by every doctor until the age of 36 when I could barely walk.

Finally I found a doctor in NY specializing in Lyme Disease and co infections. I tested positive for different strains of Lyme from countries I had never visited including the Japanese Strain and the European strain. Of course, I tested positive for several other co infections as well. Local labs just do not have the appropriate testing for these diseases.

The best advice I could give is if you develop a good personal relationship with your MD. If they have an open mind and are interested in helping, they can draw blood and send to Igenex in CA. The testing might run 800 dollars or more. It is a very expensive disease to take on but it can be done.

If you do not have this type of relationship with your M.D. I would continue to search for another and not to give up.

 
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