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Old 10-08-2009, 02:43 PM   #1
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minayun HB User
Unhappy neuropathy pain is killing me!

I have type 2 diabetes and have been having horrible neuropathy pain in my feet for almost a year now. I'm on cymbalta and lyrica for the pain but it isn't helping anymore. It hasn't helped for months now. For the last two months I had horrible kidney stones and had to have two stints for my kidneys. I was taking vicodin for the pain pretty much the whole time but i tried to just take it mostly at night. For those two months I had hardly any pain from the neuropathy because the vicodin was taking that away, obviously. I had my stints removed about 2 weeks ago and therefore they stopped giving me the vicodin. These last 3 weeks have been hell for me, the pain in my feet is so bad i can hardly stand it. Nothing works for the pain. I take tylenol pm to get to sleep but am awake about 4 hours later with the horrible pain and can't sleep anymore. I went back to my neurologist today and she gave me something called voltaren gel to see if it helps for the horrible burning. I hope it helps because I don't know how much longer i can take this pain and it's started to make me really depressed. If the vicodin helped for the pain why can't they just give it to me, i mean if it works? Does anyone else here take any kind of pain meds like that for their neuropathy? Can I not demand for them to give me the pain medicine? I know it may be addictive but i'd rather take a pain medicine like that and be able to function in life and actually get some sleep. I have 3 kids to take care of and it's getting really hard to do when i'm getting no sleep and always in pain. Does anyone have any advice for me?

 
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Old 10-08-2009, 03:13 PM   #2
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Cora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB UserCora1003 HB User
Re: neuropathy pain is killing me!

There are some things that can help with neuropathy. First off, tight control of your blood sugars can help this, although the results take time. There are other drugs such as small doses of tri-cyclic antidepressants like amitriptyline, or the more potent anti-seizure meds like Tegetrol (carbamazepine), Dilantin (phenytoin), and Neurontin (gabapentin). These can help with the pain, but will not address the underlying problem that is caused by uncontrolled blood sugars.

There are also supplements that can help, but again, these take time. The supplements are: ALA (alpha lipoic acid), GLA (gamma linolenic acid) and vitamin C. This combination, taken together, is known as the DPN (diabetic peripheral neuropathy) cocktail. I have taken the ala and gla separately but together with vitamin c and it has helped.

Sorry I can't be more help.
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Last edited by Cora1003; 10-08-2009 at 03:14 PM.

 
Old 10-08-2009, 05:32 PM   #3
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Re: neuropathy pain is killing me!

I also have diabetic peripheral neuropathy and neuropathy due to breaking my neck(permanent nerve damage to arm and back). I've been on the same stuff you have with minimal results so just for fun, tried taking a B12 supplement(500mcgs)...it worked. So now my doc has added B6(100 mgs). Brought it down to a dull roar that I can cope with.

Worth a try.

gentle hugs......................Jenny

 
Old 10-09-2009, 10:54 AM   #4
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Re: neuropathy pain is killing me!

my dr. prescribed gabapentin the generic for neurontin,for myfeet tingling and leg pain, started out with 300mg than went up to 300mg twice a day it seems to help,as far as lyrica goes itried it but it made my hands swell i stopped it but this was my experiance only, good luck with your diabetes. do you see an endocrinologist?

Last edited by jamman3; 10-09-2009 at 10:59 AM.

 
Old 10-09-2009, 05:00 PM   #5
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minayun HB User
Re: neuropathy pain is killing me!

Quote:
Originally Posted by Coravh View Post
There are some things that can help with neuropathy. First off, tight control of your blood sugars can help this, although the results take time. There are other drugs such as small doses of tri-cyclic antidepressants like amitriptyline, or the more potent anti-seizure meds like Tegetrol (carbamazepine), Dilantin (phenytoin), and Neurontin (gabapentin). These can help with the pain, but will not address the underlying problem that is caused by uncontrolled blood sugars.

There are also supplements that can help, but again, these take time. The supplements are: ALA (alpha lipoic acid), GLA (gamma linolenic acid) and vitamin C. This combination, taken together, is known as the DPN (diabetic peripheral neuropathy) cocktail. I have taken the ala and gla separately but together with vitamin c and it has helped.

Sorry I can't be more help.
thank you very much for your help and I will try the DPN, I will try anything right now! Also, I have tried the amitriptlyline and the gabapentin and both didn't help me. Oh and also tried mirapex.

 
Old 10-09-2009, 05:04 PM   #6
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minayun HB User
Re: neuropathy pain is killing me!

Quote:
Originally Posted by jennybyc View Post
I also have diabetic peripheral neuropathy and neuropathy due to breaking my neck(permanent nerve damage to arm and back). I've been on the same stuff you have with minimal results so just for fun, tried taking a B12 supplement(500mcgs)...it worked. So now my doc has added B6(100 mgs). Brought it down to a dull roar that I can cope with.

Worth a try.

gentle hugs......................Jenny
Hi Jenny, sorry to hear about your accident! I hope you are doing a lot better now. I was just visiting my neurologist and has a blood test done yesterday to check my B12 levels. I hope to hear back from them soon. Can you get the B6 over the counter?
Hugs back
Rhonda

 
Old 10-09-2009, 05:10 PM   #7
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Re: neuropathy pain is killing me!

Quote:
Originally Posted by jamman3 View Post
my dr. prescribed gabapentin the generic for neurontin,for myfeet tingling and leg pain, started out with 300mg than went up to 300mg twice a day it seems to help,as far as lyrica goes itried it but it made my hands swell i stopped it but this was my experiance only, good luck with your diabetes. do you see an endocrinologist?
Hi, i tried the neurontin and it worked at first but then stopped working so my doctor took me off of it and put me on the lyrica. I don't get the swelling of the hands or feet with it, thank god. I just saw an endocrinologist last week and they did that test where it checks on your blood sugars from the last 3 months and am waiting on the results of that. For the last couple of months while i was dealing with other health problems I wasn't taking very good care of my diabetes and wasn't taking my pills everyday so i'm sure my sugars were pretty bad. I just started about a week ago taking my meds again like i'm suppose to. Maybe that will help with getting my neuropathy under control a little better.
thank you so much for your advice =)

 
Old 10-24-2009, 05:01 PM   #8
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Re: neuropathy pain is killing me!

i take Gabapentin for my neuropathy. mine is severe. i take 300 mg 4 pills in the am, 3 in the afternoon and 3 at bedtime. its taken 2 yrs to get to a dosage that helps me. The pain is still there, but not anywhere near as bad as it was 2 yrs ago. Now its pretty much an annoyance.

 
Old 10-27-2009, 11:40 AM   #9
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Re: neuropathy pain is killing me!

I feel so sorry for you. I found out I have type 2 diabetes this past July. I'm having horrible problems with neuropathy in my feet and it has now gone up to the top of my legs. It's horrible!! Doctors have changed my meds 4 times already. I take 300 mg of neurontin 3x a day. No help at all. Yesterday, he put me on Cymbalta along with all the other meds. Woke up today with my chest and both arms and hands aching and hurting something awful!! Once when I quit my meds from the pain, my neuropathy went away. I feel like a lab rat!! I can't take the pain anymore. I hurt all the time. Any advice? I'm ready to quit everything.

 
Old 10-28-2009, 12:26 AM   #10
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Re: neuropathy pain is killing me!

I did try neurontin myself and it seemed to help for like the first couple of weeks then it didnt help at all. I'm still taking the cymbalta but obviously it's not helping me! So I went to my neurologist about a week ago and they did a nerve conducting test on me and it did show that i had permanent nerve damage but wasn't real bad. I told her that i was still in severe pain and that it is going into my legs now, as well, worse than before. So...she has bumped my lyrica up to one when i wake up and two when i go to sleep. I can't really tell much of a difference. It just seems like she doesn't realize how much pain i'm in or doesn't care. I've been really close to breaking down in front of her but i don't want to look like a lunatic but maybe that is what needs to happen? I've been thinking about just going to a pain management doctor but you have to have a referral from your specialist. So i'm going to try and see how long i can take the pain before i have to go see my neurologist again. She had booked me another appointment but it's not until feb. I don't think I can wait until then. And when i go to see her next i guess i'll tell her that my pain still isn't gone and we need to try something else or can she please just refer me to the pain management place. Not really sure what else to do...=( Someone else said to try this...Alpha Lipoic acid, i looked it up and it says that a lot of people take it for neuropathy and it has helped. I'm going to try it and see what happens. Oh and now my hands are starting to tingle and feel like my feet. They aren't painful yet. I'm afraid it's going to get worse. Ahhh...what to do, what to do!

 
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