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Old 07-13-2012, 04:03 AM   #1
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Wife has new onset diabetes, are memory loss and abnormal behavior typical?

Hello all. I'm a newbie here and wanted to ask the experts about what happened to my wife the days leading up to her hospitalization and then diagnosis. She is 27 years old and a mother of two boys.

First, she had lost about 105 lbs over the last 15 or so months. Being bigger when younger and getting smaller in their late 20s/early 30s happened to her mother, grandmother, and a couple of aunts, so there is a family history there, but nothing like as rapid as this happened. She had some of the signs and even asked me if she should get checked for diabetes, and I said to find a doctor (we had just moved to the area) and get a full exam.

She had several days that she was so sick she couldn’t get off the couch, or one day we went to a water park, she said she wasn’t feeling great but good enough to relax in the sun and hit the wave pool a little. Within 4 hours of being in the heat she looked like hell and we left. She had a few days like this.

The summary is like this, Saturday 6/16 we went to Maine from CT to see family. I had to return for work on Monday (about 5 hours away) and she planned on staying until the following Friday (6 nights) "making the rounds" visiting family and friends she hadn’t seen in a while.

Saturday night her cousin had a baby 2 weeks early. She said she changed her plans and was going to stay with the cousin the whole week to help out with the baby. Sat night she was up all night at the hospital. Sunday (father’s day) she came back at 6am and slept for a few hours. She was complaining of being thirsty, hungry, abdominal pain, and getting a headache.

Over Monday and Tuesday she was complaining she was feeling worse and worse as time moved along. She said that she had been throwing up and headache hadn’t gone away. She was also staying up late talking to a friend of the baby's dad who was also staying there that week. This guy had separated from his wife and was arguing with the wife about him keeping their kids and she was giving advice, helping him reword the text messages to his wife (so add to the mix she was up late and sleeping about 3-4 hours a night)

Weds she started having little blocks of memory loss, things she couldnt remember, same stuff going on as earlier in the week but getting light headed.

Thursday people had said she "seemed high on something" it had been very hot all week and she had been drinking water, iced tea, powerade but no soda. Long periods of blackout, remembers around half of the day or less. The guy she had been helping states that they had been flirting while she had been helping him and says later that night they "made out for about 5 seconds" during that time he says she put his hand on her breast and he quickly removed it. Once they realized what was happening they both quickly stopped and that was the end of it.

Friday she remembers virtually nothing. 5 minutes here and 10 minutes there but that’s about it. She messaged me earlier in the day that she was taking the boys swimming before heading home and about 2:00 pm she went swimming at the guy’s father’s house but didn’t want to swim herself so sat by the pool with the guy and his father while the boys played in the water with his kids. The father stated that she “didn’t look right” and that “she looked high to me” and advised her that she should see a doctor before she attempted to drive. The father also said that “they seemed to be involved” not in a relationship or anything but “keeping each other company”. He recalled her saying that “her husband left her” and that they were hugging and kissing while there. The guy admits to the brief Thursday night thing but denies anything else except that once she ran up and jumped into his arms (something she does with me and a few family members which is something that she couldn’t do when she was heavier so may have been showing off a little) He said his dad may have saw that, but nothing else happened beyond that. I asked my kids who were there and they said mom mostly was sitting at the table with them having a drink. They left and filled their gas tanks for their trips home. She filled up at a gas station rather than put in about half a tank to have enough to get to a place we stop at in New Hampshire that is 30 cents cheaper than in Maine (more abnormal behavior, we have that routine we both always follow). The plan in advance was for them to drive together until their routes went separate in Mass (about 2/3 of her way home) because she was driving sick and tired and that way if they stopped at a store or something one went in the store and the other stayed in their car parked by the other car so they didn’t have to wake kids up and take them in the store with them. He stated that her driving in the beginning was a bit erratic but not too bad but after Portland (1/3 into the trip) her driving started to get worse. She pulled over several times to buy drinks, get sick, or take a quick rest stop. Once the roads separated they pulled over, had a quick hug and said bye (my kids remember that part)

She arrived after taking 9 hours to make a 5 hour trip. We stay at a campground during the summer and at 5:00 am she had stopped at a store 15 miles away to buy powerade (the transaction appeared when I looked at her bank account) and after an hour I went looking for them. I drove one route to the store and they weren’t there so I took a separate route back and when I arrived the car was sitting by the gate (she couldn’t get in as I had her gate key card) I found the truck running, driver’s door open with two kids sleeping. My younger son came walking down towards me from the camper, he said “mom told me to go get you but you weren’t there” (she does not remember arriving or sending him up to get me). She came out of the bathroom covered in vomit, urine, diarrhea, and blood (started her monthly on the way back and didn’t notice it). The truck had a plastic bag with vomit on the floor and vomit on the steering wheel, door panel, and side of the truck. I let her in and she drove up very slowly. Before she got out of the truck she said “I hit a truck” I asked what she meant she hit a truck and she asked “what do you mean?” after about 2 minutes she said “no no, I hit a guardrail with the truck” and I then saw some slight damage on both front and back fenders. She stumbled into the camper and took her soiled clothes off and crashed into bed. Her breathing was very shallow and fast. I let her sleep about an hour and cleaned out the truck because the smell was unbearable. She work up and laid there barely conscious. I started asking her about the trip and she was barely responsive. She attempted to sit up and fell back over. Her eyes were rolling into her head. I asked her if she needed to go to the hospital and she said “no let him have his day” (it was our sons birthday) I said no you’re going, dressed her in whatever clothes were lying around, carried her to the truck and rushed her to the hospital.

She was admitted and had a blood sugar level of over 700 and also a very high pH level. She was diagnosed with new onset diabetes, Diabetic Ketoacidosis (DKA) and Hyperglycemia. She spent two nights in intensive care and 4 days in the hospital overall before being stable enough to go home. She left with very blurry vision, constant headache, and a lot of memory loss. She is normally a leadfoot but could not drive the first week because of the vision, and her nervousness was very high. She even put her arms out when I got behind a car or went around a corner while she was riding in the car.

She doesn’t remember the trip back at all, and doesn’t remember anything until the 2nd day in ICU. She remembers almost nothing about Friday except stopping at a store at noon and that a relative saw her and asked if she was ok (I am waiting to hear back from him as to her condition then) She doesn’t remember going to the house to swim, remembers waiting for the boys to use the pool because something was wrong with it (it was finishing up a filtering/cleaning) she remembers falling asleep on the couch while the boys watched TV, and remembers the boys went swimming but she wasn’t up to it. She doesn’t remember filling up the gas tank but briefly remembers sitting in the mcdonalds playplace staring at the ball pit but not going to or leaving there (after filling up they took both our and the other guys kids to McD for food before they left) even though she remembered hitting the guardrail after it happened and some limited details about the trip and the day leading up to it, she has lost those memories as well since leaving the hospital. The diabetic specialist that she is seeing went over her hospital report and told her clearly “another day you would have been dead”. He said that the headaches, memory, and vision should all come back as she gets better.

As for the situation with the guy, she remembers being her typical flirty self and up late talking the first couple of nights but the conversations were all about his kids and wife and she was trying to help him with the situation (she is normally very caring and helpful) She denies any interest, attraction, or attachment (he says he has had a crush on her since first meeting her 5 years before and strongly cares for her but swears he would never try to come between us and what happened was a 5 second slip and was the end of it. He came forward to me to admit what happened on his own). I told her this and she said “the feeling is definitely not mutual, he’s a nice guy but no interest whatsoever” (he isn’t very attractive, not much of a build, and not financially stable or successful) She sees how her condition could have made her confused and that “I could have been out of my mind” as she puts it but says that it doesn’t make sense because after a rough patch in our relationship, we have been the closest and having the best relationship now than since before we got married (going on 10 years) and she would not jeopardize that when she is genuinely happier than she has been in a long time. She still feels that it didn’t even happen and that he is lying…but doesn’t deny a kiss could have happened as a mistake but no way she would allow anyone to touch her that way.

Sorry for the book, but just way too much important details to get across. I am hoping that anyone who has gone through these DKA attacks (especially new onset cases) could shed some light on if her condition could have caused the alleged behavior. I would appreciate both the person who got sick’s prospective as well as from people who cared for them after. Experts also I would love to hear some facts or the biology of how such a thing could have happened. She wants to remember what happened or if it happened at all so that both of us can deal with it. I am sick of watching her forcing herself to remember and crying because she has no idea what really happened to her. She said with absolute certainty that in her right state of mind, nothing like this could or would happen. She is even saying she wants to not help people with their problems or be her normal flirty self around people so that she “doesn’t send the wrong message”. Problem with this is, these are things that make her her and things I fell in love with about her. She is also crying and asking “what happened to me? I need to know too”

I would appreciate anything the forum cares to share their info..thanks a lot

Last edited by Administrator; 08-27-2013 at 02:47 AM.

 
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Old 07-13-2012, 05:15 AM   #2
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

I suspect (although I'm not a doc) that your wife was developing dka for quite some time. You shouldn't have delayed going to the doc. I have heard of many folks online who don't remember going to the ER and the first few days in the icu. I have never had that severe a case of it, so can't comment, but many folks do get this. Is she type 1 or type 2? Did they put her on insulin?

Try to relax a bit. With the diagnosis and with proper treatment, there is nothing stopping her from living a long and healthy, fun filled life with you.
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Old 07-13-2012, 05:24 AM   #3
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

Quote:
Originally Posted by Cora1003 View Post
Is she type 1 or type 2? Did they put her on insulin?
She was diagnosed as type 1, yes she takes insulin. was initially on a sliding scale but after seeing nutritionist and dietician she is doing insulin based on counting carbs each meal and snack and adjusting accordingly. It seems to keep her more in control.

She has only been out of the hospital 2 weeks and may be it's too soon, but this is driving both of us crazy. If someone made a mistake in a relationship you come clean, talk about it, maybe hit counseling and move on...but both of us genuinely don't know exactly what this is or how to deal with it and we both want to figure it out and move on.

I appreciate your kind words and response.

 
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Old 07-13-2012, 07:30 AM   #4
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

Glucose extremes will affect your brain. Once I was very low and started giggling for no reason and couldn't stop. Sometimes when I was high I got aggressive and that is definitely not my style. I would simply chalk this up to chemical imbalance. I'm sure she doesn't remember and probably was not in possession of her faculties at the time. I know that's easier said than done, but from what you describe, she was only barely functional at this time. It is amazing what the human body can endure, but don't forget that what she had put her in the ICU.
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Old 07-13-2012, 11:30 AM   #5
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

I appreciate the info. Feel free to add anything else you think of that may be helpful Cora. Researching the condition pointed me to that possibility in the symptoms. Anyone else have any experience with this bad a case? I also would love some info from someone who knows about the biology of the brain when overloaded with glucose and ketones

 
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Old 07-15-2012, 10:40 PM   #6
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

Witt,

It seems as if you're really very concerned about whether or not your wife was contemplating cheating on you, but really, as Cora pointed out, your wife's body chemicals were so imbalanced that her behavior was simply not under her control at the time. I think you need to let go of all those weird details and just concentrate on learning how to help her live with T1 diabetes. And you're right...she's only been out of the hospital for two weeks and it's way too soon to even discuss what happened when she was experiencing totally out-of-control blood sugar levels. I would, instead, be thanking whatever power you believe in that she survived what, for some, has been a death-causing medical emergency.

Ruth

 
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Old 07-16-2012, 04:32 AM   #7
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

Ruth, Thenks for the post

Of course I am really concerned...Who really wouldn't be? And I know that it's open for debate but kissing someone else IS cheating, just not as extreme as other things. She too is very concerned what could have happened, is he lying? or worse is he holding back and more could have happened? We both want to get to the bottom of this and get some answers. We are both wondering how it could have happened. She feels nothing to suggest that there was any interest in doing anything like that in her normal state of mind (or as normal as she is right now). She even asked if she was a cheater deep down because she feels that she is better than that.

I am extremely thankful that worse didn't happen to her...or even worse than that she crashed on her drive and killed everyone. As mentioned, this guy followed her 2/3 of the way home. He said he had to constantly flash at her to get her to pull over when she was driving too erratic and calm down. The mere presence of a car following you makes you more alert, and if not for this alleged encounter, would he have been concerned enough to travel with her? If not for his presence in her mirror would this have ended more tragicly?

 
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Old 07-19-2012, 02:46 AM   #8
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

She asked for a more medical explanation of exactly what happened to her. 3 weeks out now and the vision is getting better but memory loss still there and headaches are still not going away...Anyone help us out with any info that can help here??

 
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Old 07-19-2012, 03:53 AM   #9
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

It can take some time for the symptoms of dka to go away. In addition to that, she will feel unwell as her sugars come down. This happens to all people with diabetes who have been running high for a long time. The body sort of gets accustomed to it and as the glucose levels come down, the body thinks it is low. You can get all kinds of symptoms and this can include the ones she has. It will take some time, but once she achieves normal levels for a little while, she will feel better and be able to think better too.
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Old 08-20-2012, 07:59 AM   #10
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

You said your wife had been diagnosed with type 1 diabetis which is usually diagnosed in children and very rare in adults, this means that she could have developed it or started to develop it from childhood. From what you have stated, her case was the very serious and I am no doctor but totally agree that one more day and your wife would have died. I am surprised that your wife even had enough consciousness to remember and know even the little things she did and I strongly think that your wife was not at all conscious of her cheating on you but if I were you, I would still be very upset as well. I advise you to not blame or think about this as your wife's fault and from what he has said, not the other guy's fault until you can confirm what really happened.

I hope this was helpful

 
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Old 08-20-2012, 11:09 AM   #11
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

Quote:
Originally Posted by Gagagal View Post
You said your wife had been diagnosed with type 1 diabetis which is usually diagnosed in children and very rare in adults, this means that she could have developed it or started to develop it from childhood. From what you have stated, her case was the very serious and I am no doctor but totally agree that one more day and your wife would have died. I am surprised that your wife even had enough consciousness to remember and know even the little things she did and I strongly think that your wife was not at all conscious of her cheating on you but if I were you, I would still be very upset as well. I advise you to not blame or think about this as your wife's fault and from what he has said, not the other guy's fault until you can confirm what really happened.

I hope this was helpful
Type 1.5 (a slow onset for of type 1), also known as LADA (latent autoimmune diabetes of adults) is not that rare. In fact, type 1 has 2 average ages of onset, 12 and 45. That is why it is no longer known as "juvenile" diabetes, because it can happen at any age, even in your 90s. What would you call it then? Senility onset? lol Some studies that suggest that as many as 20% of type 2s on insulin are actually misdiagnosed type 1s.
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Old 08-20-2012, 04:09 PM   #12
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

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Originally Posted by Cora1003 View Post
Type 1.5 (a slow onset for of type 1), also known as LADA (latent autoimmune diabetes of adults) is not that rare. In fact, type 1 has 2 average ages of onset, 12 and 45. That is why it is no longer known as "juvenile" diabetes, because it can happen at any age, even in your 90s. What would you call it then? Senility onset? lol Some studies that suggest that as many as 20% of type 2s on insulin are actually misdiagnosed type 1s.
Sorry I got it wrong but that's what my doctor told me, anyway thanks for alerting me

 
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Old 08-21-2012, 03:30 AM   #13
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

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Originally Posted by Gagagal View Post
Sorry I got it wrong but that's what my doctor told me, anyway thanks for alerting me
No problems. A lot of docs don't know about this either. My endo is really up on this stuff, it's one of his areas of research. In my home province the diagnosis makes a big difference as the government will help pay for pump supplies for type 1s.
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Old 08-26-2013, 02:50 PM   #14
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

I'm also a newbe. I had a very similar situation happen to me, but now I'm facing criminal charges. I was on a business trip about 5 hours from my home. I was alone. On my way home I was going to stop at my brothers which is about 3 hours from home. I left in the morning and do not remember most of my trip to my brothers. I was driving. I do not remember arriving at my brothers or visiting all evening, and staying the night. I do not remember the following morning. We went across town and got my brothers boat and to a store to buy some beer and ice, I do not remember. Now my memory came back for a while. I remember being in my brothers back yard, walking around the house, loading the boat, and driving to the lake. I remember putting the boat in the water and setting in front of boat as we cruised the lake. I remember drinking 3 beers over the next 2 hours or so. We pulled pulled in a cove for a swim. I remember swimming to the boat ladder and touching it, then it was lights out for me. I was told we rode around a little more and I drank 1 more beer. I guess we then loaded the boat and went back to my brothers house. My brother said we were in his back yard, and I told him I was hungry. He said he told me his wife was making dinner. He said I got up and walked around the house, and the next thing he saw my truck go down the street. I must have gone around the house and in the garage to get my keys off a fridge were we put them as our designated driver system. My brother said he put my cooler in my truck. The next thing I remember is police lights in my mirror. I remember getting out of my truck and being very dizzy. then I go blank again. Next I remember a female police officer telling me she would take that as a refusal and telling her that I should ask my attorney what to do. I go blank again. There are only about 20 minutes I remember while in jail. My memory was on again off again for the following week. My blood sugar was around 600 and when my doctor put me on meds and shots my memory came back. I know I drank 4 beers earlier and their was one more missing from the cooler and a empty can in the truck. I was in my swimming trunks, flip flops, t-shirt. No pants, drivers license, wallet, money, cards, checks, suitcase, meds, nothing. None of this was like me. I never drove after even one beer, because I had been in trouble years ago for the same. I never would have taken off without a thing. I've already been on house arrest as a condition of my bond, plus $2500.00 Plus thousands on attorneys who tell me there's not much they can do, because there are no rules to protect me. They made me take a mental evaluation, and found me quite sane. If I would have been insane I would have been protected by the law. But with medical no one believes you they think you are trying to beet the system. I am not trying to beet the system, for this reason I really feel for your wife. I am going through a living hell and she must be too.

Last edited by Administrator; 08-27-2013 at 02:47 AM.

 
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Old 08-27-2013, 05:01 AM   #15
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Re: Wife has new onset diabetes, are memory loss and abnormal behavior typical?

"You said your wife had been diagnosed with type 1 diabetis which is usually diagnosed in children and very rare in adults, this means that she could have developed it or started to develop it from childhood."

I have to agree with cora, type 1 also occurs in adults. My mother became type1 at around 40 years of age and it is not that uncommon because it is an autoimmune disease that can occur at any age. adult onset type 1 is well known in medical circles.

 
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