I have had weird issues lately: I am a 24 y/o female.
recurrent infections (weird bugs like Group B strep - usually only infect ppl with diabetes, cancer or during pregnancy), I can't sleep past 4 or 5 am (EVERY day for at least 2 months!), wake up extremely thirsty, very nauseous and sometimes dry heave, with a weird taste in my mouth and smell in my nose, I pee tons during the day and night, mild ankle edema at the end of the day, and I have lost 9 kg of weight over 6 months very unintentionally, I feel starving but eating makes me feel sick so I am probably eating the exact same amount as before, joint swelling and 2 week late menstrual periods.
About a year ago I was getting a bad fever and passed out in school and the nurse found my glucose to be 1.9 mmol (REALLY LOW!!) I can't believe she sent me back to class, I didn't really remember anything and I couldn't hear or see much. I somehow took the train to my parents and my mom took me to the hospital, I had blood in my urine and a fever of 38.3 but no bacteria or anything in my urine but they put me on antibiotics anyways. I had almost reactive hypoglycemia for some months after that. I did a fasting glucose and 2-hour PC at a lab March 2011 and my fasting measurement was 3.9 and my 2 hour PC was 3.5, and I was quite shaky, dizzy, cold, etc. after eating during this time. They did think that it was weird because usually people with fevers get high blood sugar. That all sort of sorted itself out last year and when I feel normal my fasting glucose will be around 4.5.
I started getting sick in February 2012. It started with a weird sinus infection I think might have been fungal. In my blood work since February my fasting glucose has always been around 5.5 now. I have had several ER visits where my blood glucose is around 5.5 and I have a lot of ketones in my urine, but it seems like the ketones are randomly there. I have also had hypokalemia (low potassium) pretty much every time I feel bad enough to go to the ER. They have tentatively diagnosed me with incomplete lupus, but they are really not sure but are not looking into anything else. I have been suspecting that I have some sort of endocrine dysfunction but I am having a hard time getting doctors to investigate anything beyond lupus. I once had a low TSH, otherwise is is pretty consistently at 0.4.
I bought a blood glucose monitor and it seems like I have a lot higher glucose in the morning and it goes down continually all day no matter what I eat. I feel absolutely awful in the morning when it is high and then okay around 11am, and then progressively more awful over the day when it is low.
Do you think that this could be the "honeymoon" stage of autoimmune diabetes? I really want my doctor to test my cortisol and aldosterone as I have read that they can cause similar problems and problems with insulin as well, but I can't seem to convince her to do any more tests, she would probably be mad that I bought a glucose meter. I don't know how to get help for what I have been going through so if anyone has any suggestions on how I could try to effectively communicate with my doctor that would also be appreciated.
Anyways thanks a bunch if anyone has any insight !!
I just wish I knew what was going on with my body, endocrine issues are so complex as are autoimmune conditions