Grrrrrrrr doctors - Digestive Disorders Message Board

suzyshop1 · 12-12-2003, 10:00 PM

Well my fellow board members, made it to the docs today.Unfortunatly they didnt have any useful news for me.Seems my hida scan turned out ok and my barium swallow small bowel study was negative.Im am so frustrated with doctors i could scream at them.Cant these ppl all be at least on the same page?One doctor says symptoms are h. pylori related another doctor says no there not.And another doctor says he thinks there ibs related.Helloooooooo do any of them know what there doing?Im running out of tests here.The only thing the doctor did mention was, there seemed to be bacteria present in my urine.But he said that might be normal an no real cause for concern.Do doctors ever listen to there patients,instead of listening to there own selves?If its not my gall bladder or liver or any vital organs what does that leave??Why wont they even entertain the thought for one moment that it could still be an h.pylori infection.There doing all these costly tests when maybe and endoscopy and biospy test might suffice.Well next month im off for more blood work, a urine test,and colonoscopy and cat scan.Sometimes i feel like they think im imagining this pain.This really sucks, looks like its going to be a pain filled christmas for me.Im up 4 and 5 times a week till the wee hrs of the morning.And my husband cant understand why im tired ,cause i dont hold down a 9 to 5 job.Sorry for the rant.Hope everyone else is doing better then me and getting some answers.Take care.

actudan · 12-13-2003, 07:51 AM

So sorry to hear that you aren't getting any answers. I know where you are comng from because I have gotten a few "could be" too. I am scheduled to get another opinion out of network next week ay Emory on Atlanta. I'm not keeping my fingers crossed that they will find anything. I used to be up all the time in the night but now I take medicine that makes me sleep. I feel tired all the time due to the medicine vut it's more of a mental tired rather than physical tired when I wasn't getting any sleep. Anyway, Suzy take care and hang in there!

gillian30 · 12-15-2003, 11:14 AM

You sound so brave to be facing all these tests...wish I could feel so courageous! I'm also sooo frustrated with my GI doc that I, too, could scream! I have a colonoscopy coming up in January that I hope I won't end up cancelling. Good luck with yours!

Tweety22 · 12-15-2003, 03:57 PM

Suzy -
I just wanted to let you know that you are NOT ALONE in your frustration w/ your unexplained pain/sypmtoms and doctors who cannot seem to help. As I explained in a previos post (I think you responded ) I too have had a terrible run w/ abdominal pain for the past 6 months, have spent thousands of $$ and missed tons of work and lost plenty of sleep - yet still have no answers. I have been to 8 different specialists (from infectious diseases, to GIs to nephrologists) in search of an explanation for the constant nagging pain in my URQ. I have been through many tests like you - 3 ultrasounds, CAT scan, MRI, HIDA scan, Upper GI, 2 Kidney Scans, Endoscopy, Enetroscopy and cystoscopy...all negative yet I still have pain and no one has helped me. They all now just seem to think that it will "go away" on its own or that maybe it is some odd form of the infamous IBS (although I have not one iota of bowel symptoms). I too have run out of tests and spend some nights crying over fear that I will have to live in misery tortured by pain anda fear of eating b/c of the increase in the pain... for the rest of my life.
But I do take comfort in the fact that I am not alone....so I hope you do too....

suzyshop1 · 12-15-2003, 07:27 PM

Tweety22 i know exactly what you mean about living in fear and pain and torture for the rest of your life.Its terribly frustratng to have pain and not know whats causing it.All kinds of terrible scenario's run thru your mind.Wondering if your going to be strong enough mentally to deal with it for the rest of your life.Not to mention the havoc it can cause in your family.Its really hard especially at christmas to be thankful for pain.Sometimes i feel so guilty because i know of other ppl who are dying ,my father being one of them,and there so much worse off then i.Its hard for me too be there for other ppl when im so miserable.Im also fearful that this problem might be a missed problem that will be something to turn up serious in the future.My wish for christmas is that my fellow board friends will have a pain free christmas.God bless all of us and may the coming year find us with a resolution to our situation.I thank and appreciate everyone on this board who replies to my posts.It is good to know that we are not alone,that there are others who can sympathize with our misery.You guys are great and i thank God i found this board.Take care God bless.