Last year I developed what seemed like a slight colitis, treated it with diet, eliminated most carbs, sugar etc. Doctor prescribed Pentasa, which increased the bowel movements. Days later, developed pain near shoulder blade, numbness down left arm, left thigh neuropathy, burning feet. All blood work o.k.Discontinued medication.Developed panic and depression.
Scalene muscles in neck seem swollen. Had three weeks of cluster migraines, left side, puffly lower eyelid.
Intestines sore, one stool a day, soft and mucous.
Tested blood positive for Chrons, somewhat positive for Celiac. Gastro and colonoscopy show nothing.
Anyone with similar symptoms?
Cannot determine if the cause of the neuropathy is the intestines, whether I have an entrapment shoulder neck, and cannot quite improve the intestines.
abdomen is sore to the touch on the left side from the solar plexus down an inch or two.
Feel bad constantly with one or the other, I want my life back.
All testing so far, negative. Dreading future testing.
Any ideas?
Hi aslo, when you say 'blood tested positive for Crohns', do you mean an ESR reading? This shows the level of inflammation in your body, it can be anywhere, not just in the intestines. If you have a high level, together with a barium meal showing inflammation, they usually call it Crohns, or Ulcerative Colitis, which is in the large bowel, or colon. Te get a good look in the small intestine, you need a barium meal. Just wondering if you had one? Also, how did they test for celiac? If you tested positive/ish for that, you need to avoid all gluten containing foods. Are you seeing a nutritionist?
Sorry to fire all these questions at you. I've been diagnosed with Crohns, and have had all these tests. Good luck.
Dont know what an esr is. I believe the blood test was an aca or something like that. On the celiac, one of the antibody blood tests was 20.
gastro scope and colonoscopy negative on everything.
Didnt do the small bowel follow through yet. Panic and depression slowing me down on that. I heard it can take hours. Its hard to relax and do all this nasty testing at the same time.
Went 95% gluten free on my own, doesnt seem to matter. Eliminated dairy for awhile, no difference. Very little carbs, no difference.
Im 50 and usually i ate a sensible diet and had no problems. Now no matter what I eat, doesnt seem to agree with me, and I dont know whats related to what as far as the tingling, muscle twitches etc. Taking sublingual b12, folic acid, calcium e, etc.
I had all these tests done too, and it was only the barium meal follow through that showed anything. Inflammation in 2/3rds of the small intestine. Wheat aggrevates it to an extent, but giving it up doesn't seem to help. When I'm bad, nothing agrees with me. But foods that are hard to digest make it a lot worse. Coffee aggravates the inflammation definately. I've been taking turmeric capsules, which are a natural anti-inflammatory, cat's claw which is too, and iron, as I'm anaemic, although I have to be ultra careful with that. The twitching can be down to low magnessium, and if you take calcium it can upset your magnessium levels. I used to get a twitchy eye everytime I took calcium tablets.
I honestly think you should go back and get the test done. I didn't find it too bad, even though I had to have it twice. The first barium went through so quick, that I had to have another one. You get to lie down, and they don't have to stick anything up you on this one. Then you'll know if there's inflammation higher up or not.
Another thing you could try, is to come off all your supplements for a week, and so how you feel then. I did this last year whilst on holiday (just forgot to take them). I was surprised at how much better I felt! I think sometimes our livers struggle, and lots of supplements without a break can be too much hard work.
BTW, pentassa is a non-steroidal anti inflammatory. I tried it for a while, and on the third day had awful stomach pains, and diahrea. It actually made the inflammation WORSE. I havn't had any luck with anything the doctors have given me, apart from iron injections and anti-diahrea tablets (and I've tried everything he threw at me!)
Interesting. Right now the thought of hours of more hospital testing just brings on the panic and depression. How long did yours take? So does that mean you have Chrons? They have nothing for you? Prednisone? 6mp or heavens forbid Remicade?
How bad are you?
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