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Old 08-25-2003, 06:13 AM   #1
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NikkisNYmom HB User
Unhappy H. Pylori or something else - PLEASE HELP!

I would appreciate any advice in what I am going to post. Sorry that it's probably going to be long but I don't know who else to ask - so confused.

Ok I don't know if this has anything to do with it or coincidental but I want to describe from the get go of what I have been feeling. About August 4th I got a cold sore - never have them. Then one of my glands were swollen by my neck but went away in 2 days. My throat hurt a bit but that went away too. So I think maybe this has nothing to do with my recent issues but thought I'd tell the whole picture.

Ok after that for about a week I felt a pain in my chest - more to the left side. Nothing so serious that I couldn't function. But noticeable because I am usually up and at it and feeling just fine. I also was dizzy or rather lightheaded. But in control - completely - just some things I never usually have especially for a week straight. So I figured why not get a checkup. I went to the doctor. He asked me all the questions I guess he felt was necessary. First they checked my urine and said I am not pregnant (which I was pretty sure of anyway). Then sort of jokingly I asked the assistant aren't you going to put that stick like you did when I was pregnant that tells you what your sugar level and all sorts of other things you have - so she did. She tells me it's normal. The doctor walks in and says oh I see you have an infection. I said WHAT? This was out of left field. He says yes it seems you have Urinary Tract Infection. I was like I do? I knew the symptoms and felt none of those symptoms. But ok he said since you have no symptoms let me be sure let's send it for a culture. Well now I find out they never actually requested the culture so that's where that issue ends.

Then he examines me, EKG and all - he says heart is fine. Ok but let's do an echocardiogram next week to be sure. I just had that - they said it's fine. So the chest pains aren't from my heart. So then I said is it that thing called GASTRITIS. He says that's what I am thinking. Just one problem, I HAVE NEVER felt any heartburn or reflux or ANYTHING like that. He says I think that's what it's going to turn out to be - let's see. He pressed on my stomach and it hurt but the problem is I don't know if it hurt because he pressed or because there was actual pain. He tells me until the blood test results come to take Nexium. About the Urinary Tract - he says let's make sure and I will give you antibiotic. But like I said no culture was ever requested by the assistants.

I take Nexium and for 2 days - he thinks now it was coincidental - I had REALLY REALLY bad headaches to the point I had to lay down - it hurt so much. My chest pains were a bit better. My lightheadedness was replaced with the severe headaches. So I stop Nexium - then I am back to my lightheadedness the next day but liveable. Then at 6 pm this Tuesday I was on the computer and out of nowhere I felt my ribs, my back my entire chest going across in such pain, tightening and when I took a breath it was beyond painful. I got so scared that it was a heart attack. So my husband was going to rush me to the hospital. In the car I got better, so I called our family doctor. The other doctor was at a medical convention so I had no choice. So the family doctor does another EKG - fine. He gave me Cipro to fight any infections. He thought maybe it was an inflamed membrane from some infection or bacteria on my lung that was making it hard to breathe and giving me chest pains. Something like that. He also told me to continue taking Nexium. So I am taking both of these my symptoms now were very mild chest pain - noticeable but totally not the big problem. The headaches were very mild. The more obvious things were I was so nauseaus and lightheaded.

This past Friday I went back to the other doctor who came back and told him everything. He said my blood test came back that I have H. Pylori and that I have had it for quite some time. I have no clue what that means about the time. So he gave me PrevPac. It's a 14 day antibiotic thing. But just to let you guys know - some of my family members and I also think that something is off here. How can I have an Ulcer or anything like what he says I have when I have never had heartburn and this is like out of nowhere. I guess you can have H. Pylori without having an ulcer? I just have this weird feeling that even though he found that I have this H. Pylori that something else is going on. Why would H. Pylori cause headaches and nausea???? Is that common>? Has anyone ever felt that?

So the problem is that night I got the medication to start this past Saturday morning, I woke up at 4 am wiht SEVERE SEVERE headache and nausea and I vomitted. My husband rushed me back to the doctor. The doctor said not to start the Prevpac since it wouldn't help if I vomitted out. He says the fact that what I vomitted was clear like water indicates to him it's definitely acid (except once again I never have heartburn). I was worried that maybe something is going on in my head - seriously I started to panic with what this could be. I am very healthy otherwise I never get sick. He told me he's 100% sure it can't be anything serious with the brain, etc. He did a resistance test and checked my eyes and my ears - all's fine. Although my throat is a bit sore sometimes now too but with all the other things I am not thinking about that. He still thinks it's an ulcer or something. He scheduled me for a CTscan of the abdomen/pelvis. I am supposed to go tomorrow. Until then I can't take the Prevpac.

What I have been feeling the past 2 days is I wake up VERY lightheaded and nauseated. I get better around 4 or 5 pm I have noticed. I also have been feeling an annoying pain in the middle by the cleavage - rib cage? Sometimes my back hurts and my abdomen hurts too. None of these things outside of my headaches that I had and that severe chest pain I had are so bad that I feel like dying. But I can't lift my head from the bed in the mornings usually - I just feel awful.

Sorry for the long diatribe. What do you guys think? I read the web to see about H. Pylori and now I am getting paranoid when I read about stomach cancer and liver cancer and all this stuff. I keep thinking no way no how I am only 34 but then I get scared again because I normally am SO alert and normal and no illnesses. I feel so out of it. Sometimes like I have a hangover even though I never drank.

Any advice would be helpful. You guys don't think it's serious do you? Has anyone else had these symptoms?

Thanks

 
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Old 08-25-2003, 02:50 PM   #2
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Hi there,i just read your post and noticed nobody has replied and thought i would. i havent experienced anything like you have and i hope you find out whats wrong.it no fun feeling yucky and not getting any real answers. I kind of in the same boat with you but with sevear acid reflux and they cant figure out why.I was tested for the h pylori and it was negitive. but i guess you dont have to have any acid reflux to have the bactiera in you system. they might have just caught it at the begning. just hang in there and hopefully soon you will find something out

 
Old 08-25-2003, 03:35 PM   #3
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suzyshop1 HB User
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NikksNYmom take a deep breath and calm down.Let me see if i can help you out .First of all i had h.pylori.You can carry the infection for a long time and not show any symptoms.They can usually tell if your infected by doing a blood test and an endoscopy exam.As for your light headeness and nausea check out a site with the side effects of the nexium,could be it.You can have acid reflux without the symptoms of heartburn.A sore throat can be one of the signs of acid reflux disease.You could have been refluxing in your sleep and not know it ,therefore the sore throat.Hope this helps if you have anymore questons please post.

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Old 08-25-2003, 03:44 PM   #4
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ds49 HB User
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Hi
It sounds like you have been having quite a time.I came back positive for H pylori about 3 wks ago. I had and still sometimes have the pain between my breast even after the prev apac also pains in my abdomen and some in my chest. It sounds to me like you may have two different conditions going there I never had any vommiting or headaches. I hope I've helped just a little bit. and you get better real soon.
ds49

 
Old 08-25-2003, 06:07 PM   #5
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NikkisNYmom HB User
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Hi GTP,

Thanks for your support and the others who are supporting me. My whole issue is reading all the posts from people who say Prevpac didn't help or it did but the symptoms returned. That's one thing that would drive me crazy. I have a friend who has all the symptoms in her life and they find nothing wrong with her and it drives her crazy too. In one way you are happy they find nothing but the other you KNOW you have these physical pains no one can answer.

Thanks for answering my post - I was beginning to think I shouldn't bother coming back here. Glad that you answered.

You definitely don't have to have the bacteria to have acid reflux. My husband takes Prevacid because he's had heartburn for like 5 years. Every single day he takes it - he feels it. But for me it's a shock because I never had heartburn. I guess it doesn't mean anything because you can still have something wrong with you. You should ask them to do an endoscopy. My husband just did and they said his acid reflux is from a Hiatal Hernia.

Thanks for your support and I just hope and pray I will be fine - as all of you will be too. More than the symptoms now I am worried about what this could be. I hate not knowing and I hate them just playing guessing games and not knowing. What's weird is he's not even sending me to a gastro specialist. But I guess he figures H. Pylori can only be treated with one thing - the medication he gave me.

You hang in there too and please do keep in touch :-)

Quote:
Originally posted by Gtpchic31:
Hi there,i just read your post and noticed nobody has replied and thought i would. i havent experienced anything like you have and i hope you find out whats wrong.it no fun feeling yucky and not getting any real answers. I kind of in the same boat with you but with sevear acid reflux and they cant figure out why.I was tested for the h pylori and it was negitive. but i guess you dont have to have any acid reflux to have the bactiera in you system. they might have just caught it at the begning. just hang in there and hopefully soon you will find something out

 
Old 08-25-2003, 06:14 PM   #6
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NikkisNYmom HB User
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Hi Suzy,

Thanks I do need to calm down. It's weird after I had a baby I am so sensitive. All I keep thinking about is if anything happens to me, she'd have no mommy. I am never sick or negative but now that this has happened out of the blue I am so confused. I think my fear is sort of like what you have. My fear is that after the Prevpac, the symptoms will come back and I won't know what is going on with me.

How long does it actually take for the bacteria to cause an ulcer or for the ulcer to turn chronic into stomach cancer? I keep reading it leads to that and that's partly my fear. What is horrible is unless they do a specific test for H. P. no one knows they have it. They should make it a general thing to test for that. What I can't figure out for me is how they feel I have an ulcer. I don't really have many symptoms of an ulcer, do I? My family doctor told me I can have H. Pylori and no ulcer. But the doctor I am going to, the other one, didn't say that to me. I don't know what to think really. What I am upset about is having to wait for symptoms to see what's wrong. Like you said, what if you have no symptoms of anything. Then one day they tell you that you have some serious thing and you had no clue. Do you think it's ok to take the Prevpac without an endoscopy? He's telling me that he knows I have H.P. and that I have to take the med. He feels that I don't need an endoscopy yet.

I also thought my nausea and lightheadedness is from Nexium. The problem is I take the Nexium at around 8 am and go the whole day and sleep and the next morning around 6 am BEFORE I take the next one I have these symptoms. It's not like I am getting them after I take it. All this is thrown me for a loop. I don't even know why I need Nexium.

Yes you did help me. At least i have some support from people who know. My husband just keeps saying you will be fine trust me. I feel great that he's so optimistic but he doesn't know anything about any of this like people who have gone through it. I just hope my optimism comes back because I can't stand this negative feeling.

Thanks and please keep in touch :-)

Quote:
Originally posted by suzyshop1:
NikksNYmom take a deep breath and calm down.Let me see if i can help you out .First of all i had h.pylori.You can carry the infection for a long time and not show any symptoms.They can usually tell if your infected by doing a blood test and an endoscopy exam.As for your light headeness and nausea check out a site with the side effects of the nexium,could be it.You can have acid reflux without the symptoms of heartburn.A sore throat can be one of the signs of acid reflux disease.You could have been refluxing in your sleep and not know it ,therefore the sore throat.Hope this helps if you have anymore questons please post.


 
Old 08-25-2003, 06:17 PM   #7
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NikkisNYmom HB User
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Hi DS,

Wow you STILL have some symptoms and more? Now what are your doctors saying. I am curious because so many of you STILL have all these symptoms. I don't understand it - you guys are so calm - lol. I wish I would be like you all. I can't sleep not knowing what the heck is going on. I am dying to know what all your doctors are saying when you guys go back and say that the symptoms are still there. Obviously it's not from H. Pylori - right?

Thanks for the advice and help !



 
Old 08-25-2003, 10:48 PM   #8
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suzyshop1 HB User
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NikkisNYmom i went back to the gastro doc he told me that the h.pylori couldnt be the problem i was having still.I think hes nuts im still having the same exact symptoms.I tried to tell him i didnt think the antibiotics worked but he brushed it off.Im really angry that he wouldnt at least entertain the thought that i could be right.So since they can't or won't listen to me I've decided to go a Natrual way.Harry on this board posted about a natural remedy for h.pylori (Mastica).I researched it and it sounds good.I sent for the stuff and when it gets here I will let everyone know if it works for me or not.I have the pain under the breastbone on the ribcage 24/7 now.What do I got to lose.

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[This message has been edited by moderator4 (edited 08-27-2003).]

 
Old 08-25-2003, 11:25 PM   #9
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suzyshop1 HB User
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NikkisNYmom i'll try to answer some of the questions you asked.Ive had the pain that the doctor said was h pylori off and on for years.When i had the endoscopy done all they found after all this time was just a slight inflammation of my stomach and esophagus.And im talking years of this happening over and over.The symptoms first started when i was in my middle 20s im now 46 no cancer so far.They told me they cant tell me how long ive had the infection.You can have h.pylori and no ulcer because i dont .Did he do a blood test to see if you had h.pylori?I had blood tests done and it came up negative.Had the endoscopy and it came up positive.If he hasnt done any tests how can he be sure what it is?Alot of doctors wont treat the infection unless there are troublesome symptoms.Some ppl can carry the infection from childhood and not experience any problems. Others will develope gastritis or ulcers.Its only when you have symptoms that they do an endoscopy to verify if your carryng it.The prevapac are really potent antibiotics and shouldnt be given unless there sure you have h.pylori.There are less invasive tests to determine if you have it than just and endoscopy.Theres a stool test and a breath test which are supposed to be more accurate than the blood test.I cant understand why the doctor would want to give you such strong antibiotics without doing an endoscopy.Just my thoughts good luck.

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Old 01-14-2004, 10:46 AM   #10
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sadiesue HB User
Thumbs up Re: H. Pylori or something else - PLEASE HELP!

Quote:
Originally Posted by NikkisNYmom
Hi GTP,

Thanks for your support and the others who are supporting me. My whole issue is reading all the posts from people who say Prevpac didn't help or it did but the symptoms returned. That's one thing that would drive me crazy. I have a friend who has all the symptoms in her life and they find nothing wrong with her and it drives her crazy too. In one way you are happy they find nothing but the other you KNOW you have these physical pains no one can answer.

Thanks for answering my post - I was beginning to think I shouldn't bother coming back here. Glad that you answered.

You definitely don't have to have the bacteria to have acid reflux. My husband takes Prevacid because he's had heartburn for like 5 years. Every single day he takes it - he feels it. But for me it's a shock because I never had heartburn. I guess it doesn't mean anything because you can still have something wrong with you. You should ask them to do an endoscopy. My husband just did and they said his acid reflux is from a Hiatal Hernia.

Thanks for your support and I just hope and pray I will be fine - as all of you will be too. More than the symptoms now I am worried about what this could be. I hate not knowing and I hate them just playing guessing games and not knowing. What's weird is he's not even sending me to a gastro specialist. But I guess he figures H. Pylori can only be treated with one thing - the medication he gave me.

You hang in there too and please do keep in touch :-)

Hi Nikki,
You sound pretty scared, maybe I can help, I hope so.
My name is Robin, I live in Iowa and I have H Pylori infection.
Several tests were done before I was diagnosed 2 months ago. I have been battling this for several months, but they didn't know what was wrong. My stomach was a mess, bloating and swelling were horrible, I looked like (still do kind of) I was 6 months pregnant. Anyway here are the symptoms I have had with this God awful thing. Sick to my stomach,headaches,lightheaded,abdominal pain..like I was black and blue inside,lower back pain was awful....this was from my belly being so huge.
I went through one round of antibiotics for 2 weeks, but that didn't kill it (this is common) so now I am on my second round plus I am on Nexium twice a day. The nexium twice a day could continue for a year they say. The purpose of that is to help cut down the stomach acid my stomach produces and to prevent ulcers.
Nikki...Stay on your doctors to get rid of this infection....It is wicked and serious!!! Remember it takes time to heal from this....I get fraustrated too!! My belly still is not normal size, but I know it will be. It has gotten much better.
All of the antibiotics can make you feel a little weird too. I have to be careful because I get dizzy sometimes.Make sure you eat or drink a glass of milk with them or you will be sick.
I hope I have helped you!!!
Please feel free to keep in touch.....If you need a friend or if you have a question, I'll do all I can. I know how upsetting this can be!! Never had anything like it.
God Bless You!!!
Robin

 
Old 01-14-2004, 02:49 PM   #11
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suzyshop1 HB User
Re: H. Pylori or something else - PLEASE HELP!

NikkisNYmom hows it going,have you gotten any answers yet about your problem?You've havent posted much , was wondering how your doing.Take care.

 
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