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Digestive Disorders Message Board
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Old 08-27-2003, 07:58 AM   #1
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marytylermoore HB User
Unhappy Please Read and Help...Sick 4 Two Months

Hi all! I have read many of your posts, and I hope that I will find some help here too. I'm posting this here, and on the Bowel Disorders board. I will try to keep this as short and 'to the point' as possible, but I have a lot to share. PLEASE hang in there, and let me know what you think this is:
I had no history of bowel problems before June 21st. It was that night that I got a horrible pain in my upper abdomen. (Epigastric Region) It last for 3 hours, and then left as quickly as it came. I had several of these over the next few weeks. On July 5th, I had one so bad that I vomited. Since the 5th, I have been severely nauseated. I had more pains until July 21st, and then they stopped. I did not have any bad BMs, but did have occasional vomiting. I have such bad nausea (morning, noon, and night) that I can not function anymore. Any activity (like taking a shower)brings on hot flashes and sweats. It doesn't seem to matter what I eat. Beer and pizza sit just as well as a nice salad. For about a week, I lived on yogurt smoothies, and they didn't even sooth it. I have not worked in almost 2 months, and I miss my life. I have seen specialists, and I will list what I've had done:

Gall Bladder Ultrasound- Normal
Small Bowel Follow Thru- A little slow, but normal
Endoscopy-Inflammation in the stomach, but no H.Pylori.
Extensive Blood Work- All normal
CT Scan- Normal
Urinalysis- Normal

I have been on: Nexium, Reglan, Phenergan, Compazine, and Zelnorm. Nothing put a dent in the nausea. The Nexium, Reglan, and Phenergan were supposed to help with the nausea and fix the inflammation, but they didn't. I'm not sure where to turn next. My current doctor (this is the 3rd referral) just looked me straight in the eye today, and told me that he had no idea. He has me on an antibiotic now because he wants to rule out Lyme disease.

I am so frustrated right now, and it doesn't seem like my medical community is commited to helping me fix this. I sure would appreciate any help or suggestions that you could offer. I am so tired of this http://www.healthboards.com/ubb/yawn.gif, and would appreciate ANY suggestions that you could offer.

Thanks in advace~Mary


 
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Old 08-27-2003, 08:49 AM   #2
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Katie G HB UserKatie G HB User
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Hi Mary - so sorry for your troubles. You could still have gall bladder disease even if your ultrasound was "normal". All the US detects are stones. You could still have inflamation of the gall bladder. See if your doctor will order a hida scan for you which will check the filling/emptying function of the gall bladder. Ask that CCK be used during the test (a chemical normally secreted by the stomach), to see if it elicits an attack of pain. This is also a way for the doctor to tell if your gall bladder is functioning right. You could still have GERD giving you lots of pain too - everybody's body is different in its reaction to stomach acid.

Good luck and keep pushing for some answers,
Katie G

 
Old 08-27-2003, 09:26 AM   #3
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marytylermoore HB User
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Katie G, thank you so much for your reply. As you can tell, I'm very frustrated and sick. I just wanted to ask you a few question about the Gall Bladder disease. One of my specialists did mention it at one point, but since then, I have only had the CTscan and two different blood tests. One of them was to detect some sort of tissue inflammation. I believe he ruled out GB disease because I no longer have the pains. They ended on July 21st after the worst attack ever. It's just the nausea now. It seems as if the attacks caused the never ending nausea. It's all I can do to sit at the computer. I have actually moved it out of the office and onto the coffee table so that I can be more comfortable. (Luckily, it's a laptop! LOL!) Would the GB disease just give me nausea with no pain? I have also had the suggestion made to try the Gluten-free diet. I don't think I have Celiac Disease because my nausea does not vary with food diffences, and I do not have diarrea. So... Any ideas? Again, thanks so much for any help. It just feels good to talk to someone about these things. It gets old having to burden family with it. Your help is greatly appreciated!

~Mary

 
Old 08-27-2003, 11:37 AM   #4
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Katie G HB UserKatie G HB User
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Hi Mary. Yes, I suppose you could have the nausea and no pain. Even though I've posted many times on the Digestive Disorders site about my gall bladder problems, let me give you a quick rundown of my symptoms before it was removed.

Back in '96, I started having vague occasional right upper quadrant pain and slight nausea which over the next 6 months became sharp, stabbing excruciating pain in the right ribs and around to the back every time I ate/drank anything, and between meals I had a dull achy feeling in the same area. I was constantly nauseous, and after eating sometimes actually got sick and vomited (especially when the pain got bad). I had yellow and/or light tan loose stools and diarrhea. Chronic fatigue and just a general feeling of "blah." I lost 30 lbs. because eating became unbearable and elicited severe attacks of pain - sometimes right in the middle of a meal! Finally after about a year since my symptoms first began, my gall bladder was removed. Prior to that, every GB test the doc could think of was run, with results coming back as "normal." However, since I had a severe "attack" during the hida scan with CCK, and then got a 2nd opinion, my surgeon was able to justify surgery.

Turns out my GB was severely inflamed and covered in scar tissue. Hang in there - your symptoms mean something, even if your tests seem "normal." Keep going back to your doc or find another one to give you the proper diagnosis.

Good luck,
Katie G

 
Old 08-27-2003, 12:08 PM   #5
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flyonthewall HB User
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At 94 my grandmother had symptoms similar to yours and was rushed to surgery. The family all thought cancer and started thinking funeral. It turned out to be a kink in her intestines that might have been there since birth. She lived to be 96 1/2.

 
Old 08-27-2003, 07:20 PM   #6
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marytylermoore HB User
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Thank you all for your help. I am so frustrated today. My doc prescribed Zofran (a drug for cancer patients undergoing chemo. and radiation) today, and it didn't help the nausea. It's a very strong and expensive drug that should have helped. My doctor told me that it was the last one to try. AAAHH!!! When I saw him Tuesday, his last words were, "See you in a month." I get the feeling that he doesn't understand how serious this is. My husband even took 2 days off of work to make sure that someone was with me that would emphasize how serious it was. Anyway, sorry for rambling...I'm just going crazy here. I would appreciate any other suggestions or ideas.

Thank you guys again~~Mary

 
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