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Worried I'm going to die!

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Old 07-17-2006, 05:05 PM   #1
Join Date: Dec 2005
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jhamilton401 HB User
Worried I'm going to die!

My husband told me today that I am looking way to skinny and that he's scared I'm going to die.
I have undiagnosed stomach problems ongoing for 2 years now and my doctor has yet to find out what is wrong with me.
Every time I eat I feel as if I'm going to choke. The food gets stuck in my throat and won't go down or it feels like its stuck for hours after I eat so I've basically given up on eating, solid foods anyways. If I am able to eat it is very soft, easy digestible foods like yogurt, pudding, and I've started drinking Boosts trying to gain some of my weight back.
I go tomorrow morning for a hida scan, an ultrasound has already been done on my gallbladder and the doc said it couldn't be seen, I've had a colonoscopy and endoscopy. He started me on Prevacids one a day 30 mg but I don't think they are helping. I am female, 32 years old and other than my stomach problems I am in fairly good health.
I am 5'10" and weight as of the last doctors visit 2 weeks ago 142 pounds.
My legs are getting stick skinny and my face around my cheeks are sinking in.
I don't want to die but I am scared to eat! Someone please give me advice on what to do? Can I live and get the nutrients I need off of meal supplement drinks like Ensure and Boost?
How many calories should I eat a day to start gaining some weight back?
I ams soooo scared I don't want to die!

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Old 07-18-2006, 09:53 AM   #2
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joniann HB User
Re: Worried I'm going to die!

Your BMI (body mass index) is now 20 which is the low end of normal. You may be thinner than what you are used to, but your actual body weight is still appropriate. You can still get the calories you need with the help of the liquid supplements, but it is best to get an accurate diagnosis from the MD regarding your concerns. It kind of sounds like you may need an esophageal dilation or something. In terms of calories and Boost PLUS, I would recommend that you drink 6 cans/day. That would provide 2100 calories since the Boost Plus is 350 calories/8 oz.

Old 07-18-2006, 09:54 PM   #3
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jhamilton401 HB User
Re: Worried I'm going to die!

Am I getting all the nutrition I need daily by drinking boost and taking a multivitamin? Can someone really live and survive on just that? Not that I am only drinking boosts to survive but I wondered.
My mother in law told me today that my legs are way to skinny and I'm starting to look skeletal. But my BMI is still within normal range.
I have read on the internet that there are supplements that you can buy at health food stores that can help you gain weight. Do they really work?
I just don't want to die.
Has anyone ever watched the tv evangelist Benny Hinn.
Well he is coming to my town Aug 6 for a big huge religious crusade and something is just telling me to go see him. I almost feel like God is sending me a message that I need to go see him. Maybe he can heal me and my digestive problems.

Old 07-20-2006, 10:29 AM   #4
Ol'Line Rebel
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Re: Worried I'm going to die!

You can see the evangelist and pray. I have been praying, believe me! And my mom and even my husband I think!

I too am 5'10"! But I was gaining weight the last several years until acid-reflux disease hit this year. Within a few months I went from 160 to 148. Mostly because I didn't want to eat too much which would just make me feel bad in my chest and throat (and now, my stomach more and more).

You had better go to a gastroenterologist (GE or GI doc) and ask about this; ask about acid-reflux disease. You may be having it and just don't know until you start "choking".

My mother had this severe form of ARD (properly known as gastro-esophageal reflux disease, GERD) a few years ago to the point she had to "throw up" things because they simply couldn't go down. She had so much trouble swallowing. Then she finally took care of it and has been on Protonix and loves it. She hasn't "thrown up" since. Part of her several GI problems is GERD.

I have GERD (probably) but not the swallowing/regurgitation problem part of it. Some people get that and others don't.

Get yourself checked out, please!

Old 07-20-2006, 02:06 PM   #5
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gort HB User
Re: Worried I'm going to die!

Has your doc ruled out a hernia? Or throat cancer.

Old 07-20-2006, 03:08 PM   #6
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dlh HB User
Re: Worried I'm going to die!

I used to go to his church. Many miracles. If you feel led to go, go but remember that man does not heal, only God does! Not sure if I can post that here but good luck to you and I hope you can gain weight and feel better soon!

Old 07-23-2006, 11:31 PM   #7
Join Date: Dec 2005
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jhamilton401 HB User
Re: Worried I'm going to die!

I had part of the hida scan done and I freaked out and had a major panic attack and made an excuse to the technician that I had to go.
The first part of the test where they inject the radioactive dye and take pictures of the dye moving through your digestive system well I started getting really weird feelings, first I got sort of light headed, that may have been my nerves though, then I had a weird, almost cold, icy feeling in my throat and I felt like I wanted to burp but couldn't.
After I left I took a drink of Pepsi and I almost couldn't get it down like air was trapped in my throat and I couldn't swallow for a second.
Well al couple of days later I got a call from my doctors office with the results.
Well I do have a gallbladder after all since the ultrasound I first had they couldn't find my gallbladder but the doctor said it was filling up slower than normal. It didn't show up until the 3rd picture an hour after the injection on the hida scan. So now I have to go back and have the second part of the test done where I get another injection and have to lie down and let a camera scan up and down my stomach area for 35 minutes to make sure my gallbladder isn't working.
Does this mean I'm going to have to have my gallbladder removed?
Please give me advice. Thanks!

Old 07-24-2006, 05:02 AM   #8
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Re: Worried I'm going to die!

Probably. If your gallbladder is not functioning normally, you need to have it out. It won;t get better. There is no med, procedure,e tc to make it function better. In fact, it will get worse.

Old 08-03-2006, 04:50 PM   #9
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Cool Re: Worried I'm going to die!

Ask your Doctor about Acholasia, this is what I have, I couldn't swallow anything including water, after 2 years trying to find out I finally found a Doctor that knew what he was doing, a gastrointerologist. They did a dilation on me and it ruptured my esophagus and almost died, the esophagus was as stiff as a board, no motility, I still have this problem of no motility as that cannot be fixed, but after taking prilosec for years and now am taking prevacid for that last 5 years, my problem with heartburn is pretty much taken care of, but I still can't swallow meat, sometimes bread, and at times I get a sharp pain in my chest that felt like I was having a heart attack, it was spasms which I don't think there is treatment for this, after years of dealing with this, I just eat a lot of soda crackers and the pain goes away. Hope you can find an answer to your problem.

Old 08-04-2006, 02:47 AM   #10
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Re: Worried I'm going to die!

My dad had a similar problem. He would try and eat and feel like it was getting caught in his throat. He would end of throwing up to feel better. I believe they stretched his esophagus (SP) sorry about the spelling they still have me on demarol after my gallbladder surgery.....

He seems to be doing much better after the esophagus stretching. I will give my mom a call later today and ask her about it... my dad is at the beginning of alzeimhers and may not remember correctly.

Old 08-06-2006, 10:29 PM   #11
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Re: Worried I'm going to die!

My swallowing has gotten so bad that everytime I eat I am scared that the food is going to get stuck and I'm going to die and that no one will be able to save me.
I'm afraid to try to cough the food out or throw it back up if it gets stuck that it will be worse then I'll surely choke.
I went and had part 1 of a hida scan done where they inject the radioactive dye into you and my gastroenterologist says my gallbladder is filling up slower than normal.
It didn't show up on the scan until the last picture was taken an hour after injection.
I am needing the 2nd part still of the test where they inject a CCK or CKK medication, (not sure which, sorry) that makes my gallbladder contract like its trying to digest food and see how it reacts. Well I've recently lost my job so no more health insurance. I don't know if I can go ahead and have the rest of the test done and they will bill me. I can't keep this up for much longer.

Old 08-07-2006, 08:28 AM   #12
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Re: Worried I'm going to die!

I know what your going thru. I had this same problem for 3 months last spring and it was aweful. I couldn't eat anything, no solid foods, i even couldn't get milkshakes down without it getting stuck. I would even put food in the blender and blend it up and i couln't even eat that!! I actually never found out what it was that was wrong with me but my doctor put me on protonix and that did help a bit. The werid thing was the doctor did say it was probably acid refulx and i found that hard to believe because I never had acid refulx symptoms like heart burn etc. It also felt like it was something more serious but i guess certain kinds of acid reflux can cause swallowing problems. So i guess that you can have acid refulx without actually heartburn. Now I can swallow food but i still have a little bit of difficulty and
i am going to get checked for LPR, which is a form of acid refulx minus the actually heartburn. Look up the symptoms of LPR on the net and maybe that's what is wrong with you. Also get on some sort of ant-acids, I took protonix and that did help a bit but I have heard that 2 nexiums a day are the best. Taking a prescription ant-acid is at least worth a try. You said you don't have health insurance, so maybe you could try taking some prolisec(spelling?) which I think is sold over the counter. Also this did happen to a friends mom and It was because her throat was to small or something, which i guess the doctor just puts this balloon thing in the throat and like streachs it out quick but i don't know much about that. Did you have an upper GI done? If your having this much diffculty swallowing you probably should have a specialist actually look in your throat. So please go try ant-acid and see if that helps a bit. HTH

Take care and good luck

Old 08-07-2006, 08:37 AM   #13
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sickandsad83 HB User
Re: Worried I'm going to die!

Oh and you did say you were on an ant-acid but only 30mg from what I've heard someone with alot of difficulty swallowing related to acid reflux should be on 2 a day and I dont see how 2 a day would hurt. That's just what have heard so that might be something you might want to ask your doctor. Also try to stay on it because sometimes they do take time to work for certain problems, sometimes weeks to months.

Old 05-26-2007, 06:07 AM   #14
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marciag HB User
Re: Worried I'm going to die!

This post is almost a year old now so I hope you have found relief -- your story sounds very similar to mine -- at 49 yrs old, 5'9", I suddenly had digestive problems -- always been healthy, no acid reflux problems -- over a period of 6 mos I went from "normal" to being unable to swallow water or my own saliva. I went from 210 lbs to 145 lbs. My husband described it as "wasting away". The doctors tried diagnosing it as stress (no go, I'm really mellow), acid reflux (no improvement with anti acids), cancer, you name it. Finally found a specialist who finally diagnosed it as achalasia. It is fairly rare 1 in 100,000 occurance. The muscles in the esphagus don't propel food towards the stomach and a severe tightening of the muscle at the bottom of the esphagus before the stomach. Diagnosis is very clear once they are looking for it -- x rays and a barium swallow reveals the distortion of the end of the esphagus (it had narrowed to a pin hole). Treatment options include drug therapy (not great), balloon dialation or sugery. After discussion and research I decided on surgery. I found a very competent surgeon who had done this particular, and fairly rare, sugery numerous times. He did a laparoscopic myotomy (slit the tightened muscle) and a fundification (to prevent reflux). That was four years ago now -- I was able to eat at a 90% of normal level almost immediately after surgery and continue to have no significant problems. Keep looking for the right doctor! and good luck!

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