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Old 08-17-2006, 10:18 AM   #1
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ellsma HB User
Stones in the Bile Duct - ERCP- Advise Appreciated?

Hi All

it's been a while since my last post. Since then I've had my scan and was waiting for an appointment to see the consultant in September. Today I had a letter in the post to say the scan has shown that there some of the stones have moved into the bile duct and have got to see another specilaist about and ERCP to remove them?

Can anyone give me any feedback on this? Have had a quick look at the web and it sounds terrifying.

So fed up was counting the days down to my specialist appointment and felt like there was an end in sight. Im in agony with the gallstones every time I eat(bread and salad) I get cramps and pains. I spent all of Monday evening in Casualty after yet another attack

Sorry to moan but any advice would be appreciated

thanks a million xxxx

Ellsma

 
Old 08-17-2006, 06:12 PM   #2
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danielm HB Userdanielm HB User
Re: Stones in the Bile Duct - ERCP- Advise Appreciated?

You definitely have my sympathy there ellsma. I had my gallbladder removed approximately 18 months ago after several severe gall bladder attacks (it was full of stones) and just recently I've been again experiencing similar symptoms (stomache pain, gassy and bloated all the time, nauseas and general malaise, no appetite) every day for the last two months. I've been hospitalised twice so far and had a bunch of different tests done but still no definitive answer yet.

Right now I'm seeing a gastro/heptoligist specialist and she's sending me for a CT scan of my bile ducts as she suspects I might have stones (even after having my gallbladder out) blocking bile getting to my stomach and causing my symptoms.

I've been horribly sick for a long time and I really understand what you're going through. It's still nearly 2 weeks before I go back to see this specialist again and even then I have no light at the end of this horrible tunnel on a fix.

But if you're like me (married with a couple little ones), there's very little you can do except grin and bear it until they can fix what's wrong.

I've had an endoscopy in the last month too. It's not pleasant, but it wasn't the end of the earth either. But after you live with this horrid feeling for a while, you generally don't care what they need to do to fix you as long as it can be done!

Best wishes ellsma, I hope you recover soon.

 
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Old 08-20-2006, 11:45 AM   #3
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ellsma HB User
Unhappy Re: Stones in the Bile Duct - ERCP- Advise Appreciated?

Hi and thanks for your reply.

Im in the Uk and I can't believe how long it takes to get things done.

Sorry to hear you're in a bad way. I now what you mean about grinning and bearing it. Would just love to be out of pain every day and be able to eat what I want.

Good luck to you and thanks again

ellsma

 
Old 08-20-2006, 04:11 PM   #4
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danielm HB Userdanielm HB User
Re: Stones in the Bile Duct - ERCP- Advise Appreciated?

Yeah, you're definitely not alone there. I'm in Australia and our system here is pitifully slow as well (unless you're in a private fund and willing to pay). But there's not much else you can do except carry on with it and hope for the best.

It's terrible being in pain every day and having to eat only certain things to get by, but until they can nail down what's causing the issues there's not much choice. But on the bright side, they've at least found out definitively what's causing your problem and what steps need to be taken to getting it fixed.

I recommend just sticking to the plainer foods for the moment, things that won't demand a large amount of bile to digest and minimise your discomfort. I've noticed over the last couple nights I'm getting symptoms similar to a gall bladder attack after eating a larger meal, so I suspect I might have the same thing as you

That said, Gall Bladder attacks are a horrible thing to have and I remember them well even this amount of time afterwards. The good news is, once they clear the blockage the symptoms will go away. I remember vividly how different I felt post operation and your proceedure should be even simpler than that (I have a big scar across my belly to remind me of mine!).

Your proceedure is basically an Endoscopy with a little extra thrown in that shouldn't be too bad in comparison (although it does sound frightening). I actually had an Endoscopy done last month and whilst I can't say it was a comfortable proceedure, it's over fairly quickly. You will be awake for it, but sedated and you actually won't remember much once it's done either. But given either that or cutting you open, I'd take the ERCP any day of the week, especially since the results will be much more immediate.

Seriously, whilst I know you're scarred (I know I was before I had mine), you'll get through it before you know it and afterwards you'll wonder what you were so worried about.

Who knows, I may have to go for one myself soon!

 
Old 08-21-2006, 01:45 AM   #5
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ellsma HB User
Re: Stones in the Bile Duct - ERCP- Advise Appreciated?

thanks danielm

Compared to the illnesses some folks have I guess we've got it easy. Its just weird being ill when you've always been healthy, but I guess that's the way the cookie crumbles!!

Spoke to a friend of a firend last night who's had the ERCp and she says you are so sedated that you don't really know what's going on.....so that's kind of put my mind at rest.

Hope you get sorted soon, thanks for talking to me and keep me updated with how you get on

best wishes

ellsma

 
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