Re: Diarrhea Everytime I eat
I'm Soar1's wife, the one with the history of chronic diarrhea. I have had just about every possible test and have tried almost all the drugs out there. For years, opiates helped the most, but I became tolerant of them. This past year, my motility went into warp drive and I have been virtually housebound for 8 of the 12 months. This last bout has gone on for 5 months straight. My doctors (I've seen several both locally and at a large university hospital) say I have a functional hypermotility problem of some sort, but they can't seem to slow it down. I have lost 20 pounds and am physically miserable. I do yoga and meditation every day, which helps me keep a positive attitude. I have also done accupuncture, counseling, therapy, biofeedback, etc. to try to control this, but to no avail.
One of the most perplexing problems is that my diarrhea is linked to severe sweating during the 2-3 episodes I have per day and night. When the sweating begins, so does the diarrhea and it continues until I am through. Right now I have this every morning, evening, and many times in the middle of the night. I do not sweat when I am not in this mode.
Cholestid/cholestyramine only work for a day or so. These drugs holds back the flood for a few hours, but not very long. Sorry to be so graphic, but that's the way it is.
Drugs like Hyoscamine (sp?), librax, etc. just slow it down enough to greatly prolong my agony.
My current specialist, at the large university hospital, won't even network with other physcians to gather information from them. He is probably too afraid to admit to anyone else in his profession that he is stymied by my problem. He says no "****" sights for physicans are available, which is really sad if this is true. My GI doctor here was very rude when I asked for a referral to the university, saying that I must think he was just a "country bumpkin doctor." He didn't understand my suffering because I am not him, his wife, or anyone close to him. I went to the university as it is supposed to be a research hospital and cutting edge, but like the Mayo Clinic, if they don't understand what to do, they tend to not want to deal with you.
I am hoping that someone out there can relate and give me some new ideas. I have kids and would like to be able to be part of their lives outside of the house. My husband is very supportive, for which I am grateful.
Thanks for the chance to talk this out.