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Old 04-06-2008, 05:13 AM   #1
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bloating getting worse - note to Harry

I had a kidney transplant in 2000 and have been on prednisone since then. Am presently taking 5 mg. every other day, so the dose has been decreased a lot from what it originally was. I have noticed in the last year severe bloating of my stomach. I truly look like an olive with toothpicks. The rest of my body is not in proportion to the belly. I have tried to research what this might be. I asked my doctors, they examined me thoroughly and could find no problem. Just chalk it up to the prednisone. Conventional doctors do not recognize metabolic syndrome or yeast, as far as I am concerned. I started looking at yeast. One thing that stuck out for me was long term antibiotics. Three years ago, I was on 3 antibiotics for 14 mos. for some spots on my lungs that were biopsied and found to be negative for most everything. They concluded it must be an infection, thus the antibiotics. My bloating started about 6 mos. after I got off the antibiotics and got worse a year later. By now my girth is around 46. I know from my clothes it wasn't even close to that 3 years ago. I am wondering if anyone else can add anything to this. I presently am avoiding anything like bread, wheat, wine, red meat, salt, etc. and trying to eat just small amounts of chicken and fish and vegetables with some fish.
Harry - thank you for your info on the doctor in Charleston. Would he deal with this kind of problem?

Smittygirl22

 
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Old 04-06-2008, 10:49 PM   #2
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Re: bloating getting worse - note to Harry

Smitty,
I am glad you started your own thread.

As you have found out there is no simple diagnosis for yeast/candida/fungus overgrowth. It is usually done by your medical history and symptoms. The reason is we all have yeast and yeast antergens in our bodies. It is only when they are out of control that they cause us big problems by producing a lot of toxins. But, almost a sure positive sign that you have a yeast/fungal problems is that you begin to have unusual symptoms after taking antibiotics -- espeacially a long course of broard spectrum antibiotics like you have probably had--- 14 months is a long time without any prevention done by your Doctors. Eating a good brand of yogurt and drinking Kefir would have helped as well as taking probiotic supplements.

Dr. Orian Truss,MD a yeast reseacher 25 years ago found that yeast/fungus present in the GI tract that is out of control in our bodies produce many---many problems. After all this time, there is still no easy way to treat the problems or identify what yeast, candida or bacteria strain is the cause. So, a sort of shot gun approach is used. As you know not by many doctors.

You have to go on an anti-yeast/candida diet, take medication that kills the overgrowth yeast or fungus and take probiotic supplements to re-balance your friendly bacteria strains or cultures.

There are over 400 different bacteria strains that have been identified in gastro system. Only about 90 have been named. There is literally constant warfear going on for the friendly bacteria to survive. Bloating is a symptom that your good friendly bacteria are not winning right now.

All yeast, candida and fungus thrive on sugary food--- so to get the friendly bacteria back in balance -- you have to cut out all sugar from your diet, and initially that includes the sugar in most all fruit(fructose), milk sugar that is lactose and simple carbohydrates.

There are various opinions on the diet but I think a veggie and meat diet is best with some complex carbs like brown rice cake and other whole grains but not much. You will be able to tell what agrees with you.

Eat nothing that contains yeast. To get enough soluble fiber to have normal BMs -- I suggest that you take a water soluble fiber supplement -- like psyllium seed husk 2 to 3 times daily. I like and use the powder form best because it is well dispersed in water and you then know it is mixed well -- I use Wal Mart-- Equate brand -- the Orange flavored sugarfree type. But, Citrucel, Benifiber and FiberChoice is OK -- I just have never used them and they cost more. A person needs 25 to 35 grams of fiber daily for normal BMs and it needs to be a combination of both soluble and insoluble fiber. When beginning to take a natrual fiber, it ferments and produces gas but as your system gets use to it --the gas will go away. So, start off slowly.

All meats, seafood and dairy products like yogurt and Kefir contain NO fiber.
I like and use Stonyfield Farm yogurt and Lifeway Kefir daily-- both are loaded with good friendly cultures.

I am allergic to Diflucan a prescription systemic antifungal medication but if you can take it -- I suggest you do. It is very good. I use Nystatin that is a powder that you mix with water 4X daily. There are others as well as OTC remidies.

The probiotics that I have used and had good results with are Culturelle, Primal Defense, Pearls(acidophilus), Lactobacillus sporogenes. PB-8, Premidophilus Bifidus and L reuteri.

I will find out if the Doctor's Center treats people with yeast problems today and let you know.

God Bless---Harry

PS--- How is the rest of your health? Why did you have to replace a Kidney? I know I don't need to know but I have started passing some micro albumin in my urine during the last 6 months.

Last edited by Harry; 04-06-2008 at 11:05 PM.

 
Old 04-07-2008, 07:05 AM   #3
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Re: bloating getting worse - note to Harry

Smittygirl22,
I talked with the Doctor's Office (Center for Occupational & Environmental Medicine in North Charleston) this morning at 9:45am EST and they said they are taking new patients with yeast problems. Just call and ask for Cathy.

I wish you well---Harry

 
Old 04-07-2008, 07:16 AM   #4
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Re: bloating getting worse - note to Harry

Wow - what a wealth of information. I am doing some of what you suggest but not maybe well enough. On fruit, I have been eating things like blueberries, strawberries, and apples. No melons, etc. I can see the reasoning for stopping all sugar. The beast loves sugar! I do take a product called Konzyl for Psylliam. If I don't take it every day, I have problems with diarrhea. I didn't know about the over the counter things. Will look into that. Your response was so good, I put it on my refrigerator.
As for me, I am a retired RN and when I was working, I noticed my blood pressure was sneaking up. One night I felt terrible, tingly, flushed, etc. I took my BP and it was 227/169. I went to the hospital and fortunately had a cardiologist who responded. He suspected the kidneys and they did an angiogram with dye. I had renal stenosis - my kidneys were not getting enough blood, and to try and force more blood through the stenosed area, they were throwing out renin in the blood, (salt) which raised my pressure and forced blood through the tight area. I went to Mayo Clinic in Rochester, Mn. immediately and received a bypass to try and get good blood to my kidney. All this failed and my creatinine kept creeping up. I tried for 3 years to save the kidney with diet (low protein) lots of hydration for the kidneys, etc. The bypass failed (I developed scar tissue which kept blocking it) and finally lost the kidneys, one at a time. I was on dialysis for 3 mos. While my 4 kids fought with me about donating. I finally agreed and my oldest son donated a kidney to me. That was in 2000. Three years later, my kidney got in trouble. After many tests, biopsies, etc. they concluded the Prograf (anti rejection medication) was toxic to my kidney and had done damage to it. I lost a lot of renal function. My creatinine and albumin was all up. They took me off Prograf and put me on another drug and I have been better, but the damage is done. Things I have learned – the kidneys can go bad very fast – I drink a good amount of water – no sodas . The Prograf created fibrosis of my kidneys and thus the damage. I was in a situation two years ago where my renal function was 20 (supposed to be around 60) and we were looking at dialysis again. I started really paying attention to the amount of protein in my diet, and started taking cranberry extract. I know it is supposed to help the bladder, but I was willing to try anything and a holistic doc told me to try it. On my next visit to Mayo my renal function had gone up to 38 and it has maintained that ever since. My protein, however, is around 1100 – extremely high, but I live with it. I continue to take the cranberry capsules – they can do no harm – and I feel good except for this yeast thing. Do you have diabetes? Anything that would cause the protein in your urine? I check my creatinine every month, and do a 24 hour urine once or twice a year. The creatinine is really a good quick blood test.
Just keep a good eye on things.
Thank you so much for your wonderful response and advice.

Smitty

 
Old 04-07-2008, 07:23 AM   #5
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Re: bloating getting worse - note to Harry

Quote:
Originally Posted by Harry View Post
Smittygirl22,
I talked with the Doctor's Office (Center for Occupational & Environmental Medicine in North Charleston) this morning at 9:45am EST and they said they are taking new patients with yeast problems. Just call and ask for Cathy.

I wish you well---Harry

 
Old 04-07-2008, 07:25 AM   #6
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Re: bloating getting worse - note to Harry



I seem to be having problems with this board, but I will eventually figure it out. I wanted to thank you for your quick response with the doc in Charleston. I will get in touch with them next week - have to take my daughter to San Diego this week. I know a conventional doctor will not dwell on yeast or metabolic syndrome. Just how it is.
Thanks again

Smitty

 
Old 04-07-2008, 08:08 AM   #7
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Re: bloating getting worse - note to Harry

Smitty,

I also eat berries and the low sugary fruit -- melons especially cantalopes are not good on an anti-yeast diet -- I think too much mold -- it's not sugar??
I hope you enjoy the trip but as you may know an anti-yeast diet is not easy to stay on when home and I would think it's extremely difficult travelling.

I am not a diabetic.
I have hyper-aldosteronism --- I lose alot of potassium and my BP is not in very good control. On 11/2/07 I had an Abdomenal Aorta Aneurysm repair with a stent grapft. My abdomenal aorta grew over a period of 14 years to twice the normal size -- 5.4 cm so that I needed to have it repaired.

With higher BP my kidneys are starting to past some protein.
I am a retired Electical Engineer and been married this August -- 53 years to the same wife so I am a very senior citizen.

God Bless---Harry

Last edited by Harry; 04-07-2008 at 08:33 AM. Reason: Spellng

 
Old 04-07-2008, 08:13 AM   #8
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Re: bloating getting worse - note to Harry

I meant to add that if you can take Diflucan -- for a round or so it may just solve your yeast problem??

Harry

 
Old 04-07-2008, 01:08 PM   #9
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Re: bloating getting worse - note to Harry

I will have to see if I can get a doctor to prescribe it for me. Everyone gets a little tense when I tell them I'm a transplant. They want to check everything out with the transplant team, and that's ok with me.
I am sure staying on the diet will be difficult, but I'll stick to meat and vegetables. I stopped eating red meat a couple years ago and never missed it. I eat burgers made out of ground turkey breast and anything I would normally use hamburger meat for, I substitute the turkey breast meat.
You were lucky to get your aneurysm diagnosed. A lot of times, it goes unnoticed. I know you do everything you can to keep your blood pressure down. That is the kidney killer - elevated blood pressure. I am on large doses of diovan to try and keep this kidney going.
I've have 4 kids, been married for 40 years and am also a very senior citizen.
Thanks again for all your help. You've been great. I will keep you posted if I get in to see your doctor. He sounds like what I am looking for. They are very hard to find- those who recognize adrenal insufficiency, candida, etc. I just spent 3 years trying to get my daughter diagnosed for adrenal problems. No one recognizes adrenals until it is Addison's disease. Unbelievable!
Take care = Smitty

 
Old 04-07-2008, 11:22 PM   #10
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Re: bloating getting worse - note to Harry

Smitty,
I have a PCP -- and other specialists and use them when needed. An endocronologist at MUSC found the aldosteronism in July,1998.

I also use Alternative Medicine also-- I have used Homeopathy for 35 years. As a matter of fact I first started using Heathboards on the Alternative Care board in October,1999 when it was only about 15,000 members.

I used Diovan for a month and had alot of side-effects-- joint pain, blurred vision and the last day -- March,10 less than a month ago-- I was nauseated with stomach discomfort and what I diagnosed was a yeast/fungus infection--- white coated tongue and bloating. My PCP agreed the next day -- so we tried Diflucan again-- I took 1/2 of a 100mg pill and the second had a itchy rash on my back and 2 places on my chest/shoulder areas about 6 hours after the second dose --- so I then quit. I have used Nystatin since then along with garlic capsules and probiotic supplements.

I went on a strict anti-yeast diet -- had to re-read my older books on the Yeast Connection -- to refreash my memory about the do's and don't of the anti-yeast diet.

I eat plain yogurt several times daily anyway but had to buy some probiotics supplements at the Vitamin Shoppe in North Charleston--- Pearls, Culturelle and Primal Defense on the way home from my PCP-- an Internist.

It may be a coincident about Diovan but in less than a month I am OK-- no white tongue, nausea or bloating.

My wife takes 160mg of Diovan to control her BP(the only 1 for BP) and it works but she has more joint and back pain than I think she should-- But, she does have Osteoathritis.

Have you had any problems with Diovan?

Harry

Last edited by Harry; 04-07-2008 at 11:34 PM.

 
Old 04-10-2008, 06:18 AM   #11
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Re: bloating getting worse - note to Harry

Hi Harry - I have been on Diovan for at least 5 years. I was on 240 mg. for 4 of those years and we just cut back to 160. I have a kidney that is not in great shape, and Diovan is the only thing that really keeps my Blood Pressure down below 130 which is necessary to save the kidney. I have had no problems with it. I take so many medicines that make one swell up, it would be hard to pinpoint which one is doing the bloating. I personally think it is Yeast. I started taking probiotics last week and already feel somewhat better - I measured my girth and haven't seen a difference there yet, but I can tell I don't feel so full and stuffed, etc. Can bend over without running out of breath, etc. As for diet, I have cut out completely any sugar - as much as is possible. Trying to limit wheat and carbs. As you said, meat and vegetables. I just returned from California and it was very difficult. I was glad it was only a one day trip.
Where do you get your info on diet? Everything I read is different. One says Oat is ok, another says it isn't. Is one better than another. I'm a little confused on that.

 
Old 04-10-2008, 01:35 PM   #12
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Re: bloating getting worse - note to Harry

Smitty,
Glad you're back safe and sound!!

As I have said -- we are all different and we all have different burdens to bear-- it seems they just become heavier the older we get. I am glad the Diovan is working for you.

I have been interested in reading about and using different diets and how to control yeast problems since Dr William G Crook, MD wrote his first book -"The Yeast Connection" in 1982. Also, Orian Truss, a reseacher on yeast wrote a book "The Missing Diagnosis" & its multiple of problems caused by yeast and John Trowbridge, MD and Morton Walker wrote "The Yeast Syndrome" in 1986.

Like any sickness or disorder yeast affects people to different degrees and in many ways and controlling it there are also stages that as you progress getting well you will experience. I think with severe yeast problems whole grains like oats, brown rice,etc and the low sugar fruits are not tolerated at all but as you get better they can slowly be re-introduced to your diet.

It can be confusing to us because some people are dealing with female yeast infections, others are only dealing with thrush in the mouth or nails and there is the gastro problems that many doctors don't even accept as a problem.

I can usually low sugar fruit eat berries and pineapple but not bananas at any stage of yeast I have. Sometime even cantalope.

Also, since these books were written more updated books have been written and some better anti-fungal drugs have been developed and marketed --- Like Diflucan and Sporanox. And, of course the wealth of information available online. But, as we search there is some miss information so you have to be careful.

I started having problems with yeast years ago when taking antibiotics for chronic divertiulitis. I ended up have 2 1/2 of my colon removed 3/4/2002.

God Bless---Harry

Last edited by Harry; 04-10-2008 at 01:50 PM.

 
Old 04-10-2008, 02:31 PM   #13
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Re: bloating getting worse - note to Harry

Your endocrinologist at MUSC wasn't a female, was it. My daughter was going to a Dr. Hagermyer there.
For now, I am just eating hummus, meat and vegetables. After a couple weeks of this, I will start introducing little by little other foods.
I did get the cookbook "The Yeast Connection Cookbook". You are right - things really do start piling on as you age. I'm 71 but do not feel it, thankfully! I golf 3 times a week and have fairly good energy, but the abdominal problem really gets in the way of feeling totally well. I get a little short of breath when I put shoes on, etc. It just makes for discomfort.
I didn't know about the "Missing Diagnosis". Will grab it and read.
How long did you take the antibiotics for your diverticulitis?

Smitty

 
Old 04-11-2008, 02:16 PM   #14
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Re: bloating getting worse - note to Harry

Smitty,
My MUSC endocrinologist is a female -- Dr Hermayer for the last almost 10 years.

I had diverticular problems for about 35 years. Long before the fiber optic scope was developed. I would have a gastro infection 2 to 4 times yearly and took broad spectrum antibiotics. I never took any long term doses like you have done. Mine was a 2 week round or so at the most. But, a week on antibiotics also gives me gastritis --- and Dr Lieberman gave me Mastica, an otc remedy, that cures gastritis in 2 weeks for me. I have also had the H.pylori-- ulcer treatment with antibiotics in 1997 when there was only one antibiotic approved in the USA for the Ulcer treatment that Dr Barry Marshall of Perth, Austraila discovered in 1982 and got the Noble Prize in 2005.

The first colonoscopy I had was done in 1984 in San Francisco when the scopes were not as flexable as they are now -- they are now very common but then the procedure was very painful. I think I have had 10 since then.

What type of probiotic supplements are you taking--- some are better than others --some pass through helping with digestion and the constant warfear going on in the GI tract and others are resident cultures that have to be re-established. Culturelle is a resident type (lactobacillus GG) that has been widely tested -- it was founded by 2 Doctors from Tufts University. Primal Defense is excellent for me.

Harry

 
Old 04-13-2008, 05:56 AM   #15
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Re: bloating getting worse - note to Harry

Hi Harry - Dr. Hermayer is my daughter's doctor. I had the spelling wrong.
I am on the hunt for Culturelle/Primal Defense. There is a health food store about 35 miles from my house, and will go there tomorrow to see if they have it. Right now I am taking something I quickly ordered from Vitacost called Nutraceutical Probiotic 15-35. It has 15 strains/35 billion Microorganisms. I ordered it before I found this board. Between that and diet, I have noticed a slight improvement of my abdominal swelling. Do you take any kind of digestive aid? I remember my daughter had a spell of gastroparesis and took a digestive aid and it helped her.
Incidentally, I had one of those "Prehistoric" colonoscopy's once. Not good!!

Smitty

Last edited by moderator2; 04-13-2008 at 06:31 AM. Reason: posted commercial website

 
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