Hi all! It's been a while since I posted on this board but here goes. I have been suffering with hives since I don't know when and there may be a connection between them and my digestive system. I've been going to an allergist who doesn't feel it's related to thyroid(although I beg to differ) and I've been having a lot of stomach and post-gall bladder removal(10 months) trouble. The other night I had an attack just like when I had the gall bladder sludge with diarrhea, nausea--I would have felt better if I vomited--and hives like I was being poisoned by my own body. I was able to eat pretty well until the past two weeks and I have been sick ever since. I've read about mastocytosis online and demanded that my doctor's office test me for this because I think the allergist is giving up on me. I did see the gastroenterologist on Monday who said I should be on an H2 blocker like Pepcid and wants the full gastroscopy/colonoscopy done on August 26th. He wants to follow me for irritable bowel, acid reflux, and diverticulosis. If anyone else has similar issues, I would love to hear from them. Thanks so much--Hopeto--
Hi Jane! I have been tested for food allergies and have done the food elimination diet. I am not allergic to foods(with my hips I wish I was!) and right now am connecting butter or fats to this, but with my luck with doctors they'll say"Oh no, it can't be that". I'd hate to fire the primary care doctor I have but if she says no to the test that I would like to have done regarding the chronic hives, then I'll have to fire her. I'm not too happy with my allergist lately either because they have access to every allergy test there is and I feel my needs aren't being met. Granted, they're all probably sick of me complaining all the time, but if I felt better I wouldn't have to complain. Really--if I had a patient that I was treating for hives and all regular treatment was failing, I would send them to (in my area) Boston to a teaching hospital clinic with a fully accredited immunologist or rheumatologist who can run huge batteries of tests and bloodwork. At that time, if nothing showed up, then I would almost treat them as if they were babies with mild foods and rotation diets. Maybe it's me and I have time on my hands that they don't, but they get plenty of money for saying "I don't know". They don't even suggest going to even another specialist. They just sit there! Just take this pill and see what happens! After 16 months, dawn is breaking over Marblehead and I will look elsewhere. I will post more when I find out more. Thanks so much--Hopeto--
Just curious, how long did you go on the elimination diet for? I've read that it can take weeks or longer for some people to show signs of improvement. Celiacs/Chron's is often found in folks who've previously had GB issues, so, eliminating wheat/gluten and/or going to a raw diet may be helfpul.
I had itching an hives for about a month prior to my initial stomach symptoms, and since I've been on a low fat diet I've been fortunate that it hasn't returned. Well, that was until last week when we got back from vacation and I was bitten by some no-see-ums. Since then I've been getting some itching here and there but I'm fairly positive it's directly related (from what I've read).
Anyway, sounds like you have done your homework and probably already gone down that road, but figured I'd post anyway in case someone else reads this.
Also, I had a bad experience with my first Gastro doc, he was quite capable as a doctor but he didn't seem to have any care at all in what I had to say. Just "you have this symptom = take this pill or do this test" As such, I didn't feel like he was giving me the care I needed. I gave him a few visits to see if it was just a fluke, but, it never got better.
I decided to switch but was very worried that would be the case for my next doctor as well, maybe they are all like that. It's awfully expensive even after insurance to switch, but, honestly, it was worth it. My new doctor listens and has been very helpful.
Hi Eihcet! I did the elimination diet about three weeks before I had my gall bladder out and after I had it out because of the hives and it finally got to the point that I was so depressed I ended up on an antidepressant and something for nerves because by that point my nerves were shot! Recently I stopped the meds because these hives are getting worse and nothing has been helping. I did notice, however that these hives are definitely related to my stomach or digestive tract. I have done without fats over the past three days and did ok, but as I sit here I got them again tonight. Once again, I will get my thyroid checked, and with the dermatologist that I'm seeing on July 14th, I will ask to do skin testing or biopsying because I am at the end of my rope. This is so uncomfortable at times, and that includes my belly, too. I will post when I find out more. God bless & take care-Hopeto--
Hi again all! Here it is, July 11th and heard from the allergist who did more lab work on me and everything supposedly came out normal(CBC, ANA, Thyroid, etc.). I should be happy but I'm not because I still have hives and they can't pinpoint what's causing them. I upped the date of my gastroscopy/colonoscopy to August 6th because I don't feel like waiting another 7 weeks(August 26th). I just know this has something to do with my stomach and my digestive system and still get the hives even with a bland diet of rice and baked chicken. This is so boring and depressing. The thought of just giving up and going back on antidepressants without a definite answer to this really aggravates me more. I feel like asking them: And I'm going for allergy shots why again?! If all the allergist does is suggest being on Claritin in the morning and Zyzal at night, then how much good are the shots going to do me then? The meds take the place of the shots! The thought of another so-called specialist telling me "We can't find anything" makes me think I'll go off my rocker. Anyone else out there had enough? Let me know. Thanks so much--Hopeto--
I had the same thing happen to me for 2 years: until I had my lap chole in February.
Now, no more hives/swelling/allergic reactions.
For 2 years, I was having horrible GB attacks (didn't know it was GB, thought it was food allergies).
I did elimination diets, went to an allergist (no known allergies found).
Until finally I had an ultrasound: bingo, stones. Finally a diagnosis.
My attacks were like this: HORRIBLE pain (I fainted once, 911 was called), vomiting and HIVES/SWELLING, which would take 24 hours to resolve. They were pretty severe. Benedryl really didn't help. Xyzal, another antihistamine, helped w/ the hives/swelling.
My last attack, I wound up in the ER. After 2 years of MDs not knowing what was going on re: hives/swelling/allergic reaction, the ER doctor (bless him), answered my questions in one simple sentence,
"Your hives/swelling are your body's response to pain."
Every time I would have a GB attack, along came the hives/swelling/allergic reaction.
I was depressed, stopped eating out of fear.
Anyhow, I've been GREAT since my lap chole. No pain (so no allergic reaction).
I would say if you're still getting painful attacks, that your hives are relative to that, not a food allergy (although you can go to an allergist to be sure).
Based on my experience, if your pain can be resolved, I bet so will your hives.
Hi CT Gal! You are so right! I have been connecting these darn things to my digestive tract for so long, and if this dermatologist tells me she won't biopsy them and gives me an antihistamine, I'll hit her over the head with her scalpel! I do have other allergies--dust, dog, cat, spring and fall mixes, but I take shots for those and the shots aren't helping the hives. I ABSOLUTELY REFUSE TO MASK THE SYMPTOMS, EVEN WITH ALL THE PAIN I"M GOING THROUGH WITH ANY MORE PILLS!! Can you still get sludge if you don't have a gall bladder? I had mine out August of 2007 and they went away for a while but came back. I had bowel adhesions that were removed 10 years ago and I also have irritable bowel. I am sick of being told it's depression and none of those meds work. Maybe my serotonin is a mess because my gut is a mess. The next step will be the gastro doc on August 6th with the gastroscope and colonoscope. My mother died of stomach cancer at age 40 and my father beat colon cancer at age 71. I have a 50-50 chance of correcting this gut thing given my parents' issues and I just want to shout to each specialist to get on the ball here! I will be return in a day or two to let everyone know what they find. Thanks so much for caring and God bless--Hopeto--