It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Digestive Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 07-10-2010, 07:07 AM   #121
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by aussiegirl2 View Post
hi steve
i didnt hear from dr borody so i will call him early next week. I feel i am have having some success with the chinese approach. i am now off all my medications.(in 1 week)
i wouldnt say i feel good but at least i do not have the awful side effects of the medications ( as well as nausea)
i also think the gluten free diet has made a difference maybe its worth trying that again for you?
im feel nausea sometimes before i go to the bathroom and usually better afterwards.
that feeling of "faeces stuck in my colon" is very typical for IBS. i have not had that feeling since switching to gluten free.
i will let u know after im made contact with dr borody
Aussiegirl2 - pleased to hear that you are getting some good respsone from the Chinese doctor.
I have been gluten free for over 6 months as I am on the Specific Carbohydrate Diet. Make sure you are 100% gluten free because if you are intolerant even just a little can cause problems. Have you ever tested yourself for food intolerance? I know there is a hospital in Australia that have a very high success rate for people using a FODMAP diet. I think they say they cure up to 70% of people. That diet deals mainly with fructose which a lot of people are intoilerant to and that can cause all sorts of digestive issues.
With regard to the feeling of faeces stuck in the colon when you did get it was it immediately after a BM or at any time? Mine tends to be at any time and not therefore a feeling of incomplete evacuation.
Good luck. Hope you hear from Borody soon.

 
Sponsors Lightbulb
   
Old 07-27-2010, 12:16 PM   #122
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Aussiegirl2 - what is the latest with you? I posted here on the 10th July but you have not responded, are you ok?

 
Old 07-27-2010, 07:49 PM   #123
Senior Member
(female)
 
Join Date: Mar 2010
Posts: 106
aussiegirl2 HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by idkwia View Post
Aussiegirl2 - what is the latest with you? I posted here on the 10th July but you have not responded, are you ok?
Hi Idkwia
sorry i have not responded. I have been up and down.. i was able to stop the meds but the nausea is back pretty badly. and i also developed really bad reflux when i stopped my reflux drugs. so im back on one of the reflux drugs.
im still seeing the chinese doc.. and also my GP ..
im still getting really bad early morning nausea - waves of it which wake me up..
the tests from dr borody came back all clear. < edited >
how are u going??
can u also resend me the list of the tests that u have had.. also is your nausea worse at any time of the day..

Last edited by hb-mod; 07-28-2010 at 12:21 AM. Reason: Please don't post contact information, such as email or phone.

 
Old 07-28-2010, 03:57 AM   #124
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Hi Aussiegirl2 - sorry to hear that you are not doing well at the moment.
I wrote to Borody and emailed him and he wrote back and said he would be replying soon but he hasn't. I have gone off him now as it has been months since I originally spoke to him.
Anyway, what is his plan for you now, has he suggested human probiotic infusion?
I am going to suggest 4 things that others have found was the reason for their CIN:- the first is air swallowing. Some people without realising swallow too much air and this can cause nausea. The second is Poly-Cystic Ovarian Syndrome. A lady who had this had waves of nausea usually in the mornings. The third is Eosinophilic Oesophagitis. And the last suggestion is Fructose Malabsorption. You will have to look these up to get more info but I have come across genuine people who had these conditions and all suffered from Chronic Idiopathic Nausea.

There was another guy who had CIN and was cured by taking 20 mg of Paxil (Paroxetine which is an SSRI). He had previously taken Mirtazapine and Prilosec which helped a lot but Paxil did the trick. Of course this may not work for you.

My nausea is not so bad at the moment but I still never feel well. I normally feel worse in the evenings but don't know why.

I have had a lot of tests. I can give them all to you again but it would help me if you can tell me why you want to know so that I can just tell you the relevant ones.

BTW, have you been tested for H. Pylori as this can definitely cause chronic nausea?

Last edited by moderator2; 07-28-2010 at 06:19 PM. Reason: please do not post your email address

 
Old 07-28-2010, 06:03 PM   #125
Senior Member
(female)
 
Join Date: Mar 2010
Posts: 106
aussiegirl2 HB User
Re: Anyone with Chronic idiopathic nausea?

Hi Idwika

thanks for those ideas re causes. ive had my hormones tested but i might ask whether its worth getting them done again. the air swallowing is interesting, i wonder how u could test for that? im working with my local doctor and i thnk i will ask him about seeing another gastroenterologist who could test for things like EE and also other esophageal issues. im waiting to hear back drom dr borody if he has any other ideas.

with fructose malabsorption, does that mean u cant digest fruit?
my doc wants me to see a cardiologist as ive had lots of heart pounding issues and also a psychiatrist! i will do it but i know that these are real symptoms and not in my head! but battling an on going illness is a challenge so a psych might help. i dont want to go back on amitrpytline.

re your tests i wanted to know the relevant ones to make sure ive done everything to rule out an organic cause. ive had an endoscopy where they checked for h pylori not not EE. an abdominal and brain ct scan and abdominal ultrasound.

Last edited by moderator2; 07-28-2010 at 06:21 PM. Reason: please do not quote posting rules violations

 
Old 07-29-2010, 02:52 PM   #126
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by aussiegirl2 View Post
Hi Idwika

thanks for those ideas re causes. ive had my hormones tested but i might ask whether its worth getting them done again. the air swallowing is interesting, i wonder how u could test for that? im working with my local doctor and i thnk i will ask him about seeing another gastroenterologist who could test for things like EE and also other esophageal issues. im waiting to hear back drom dr borody if he has any other ideas.

with fructose malabsorption, does that mean u cant digest fruit?
my doc wants me to see a cardiologist as ive had lots of heart pounding issues and also a psychiatrist! i will do it but i know that these are real symptoms and not in my head! but battling an on going illness is a challenge so a psych might help. i dont want to go back on amitrpytline.

re your tests i wanted to know the relevant ones to make sure ive done everything to rule out an organic cause. ive had an endoscopy where they checked for h pylori not not EE. an abdominal and brain ct scan and abdominal ultrasound.
Aussiegirl2 - Fructose Malabsorption is big in Oz. I think the Monash University are involved. If you Google it along with Jacquleine Barrett and/or Peter Gibson and you will get more info. It doesn't exclude all fruit for reasons which will become obvious. There is a breath test for it. If you are positive on the test you must follow the FODMAP diet. Fructose Malabsorption can certainly cause chronic nausea and other symptoms.
Air swallowing can be dealt with by a physio who specialises in this. It involves checking to see if you breathe by expanding your abdomen rather than your chest. I know this because I have been tested for it.
You could try Mirtazapine because that can help with nausea and I did not have any side effects with it.
I think it is worth seeing a psychiatrist as a good one can really help with giving you antidepressants which might work well for you. Many people have been helped with digestive issues by anti-depressants and tranquilisers.
Tests that I have had which might help you are:- a comprehensive stool test which will test for bacteria, parasites, low good bacteria, yeast overgrowth etc. Gastric emptying test for gastroparesis because this can cause bad nausea. HIDA scan with CKK to test your gallbaldder function. Have you had blood test for tumour markers? Thyroid function test. Test for celiacs disease.
I would also do a food elimination diet as you may be intolerant to certain foods and this can cause nausea. That's about it.
Keep me posted please and good luck.

Last edited by idkwia; 08-08-2010 at 01:51 PM.

 
Old 08-08-2010, 01:53 PM   #127
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Aussiegirl2 - how are things going, any developments?

 
Old 08-09-2010, 08:43 PM   #128
Senior Member
(female)
 
Join Date: Mar 2010
Posts: 106
aussiegirl2 HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by idkwia View Post
Aussiegirl2 - how are things going, any developments?
hi Idkwia
things are ok. I felt pretty sick on the weekend but this week i have felt ok. The nausea hasnt been too bad the last 3 days.
I'm on 2 new reflux drugs so at least the reflux is under control. i went to see the cardiologist about the heart pounding and he thinks my low blood pressure might be causing it.
he also suggested that i be treated for giardia ( even though the endoscopy found no evidence) he says its one day of pills and it may help,
im still having regular acupuncture and chinese herbs, and im due to see my GP later this week for another check up. he is going to arrange another gastro review where i will raise some of those issues like fructose breath test etc that u raised.
how are things going with you??

 
Old 08-10-2010, 03:12 PM   #129
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by aussiegirl2 View Post
hi Idkwia
things are ok. I felt pretty sick on the weekend but this week i have felt ok. The nausea hasnt been too bad the last 3 days.
I'm on 2 new reflux drugs so at least the reflux is under control. i went to see the cardiologist about the heart pounding and he thinks my low blood pressure might be causing it.
he also suggested that i be treated for giardia ( even though the endoscopy found no evidence) he says its one day of pills and it may help,
im still having regular acupuncture and chinese herbs, and im due to see my GP later this week for another check up. he is going to arrange another gastro review where i will raise some of those issues like fructose breath test etc that u raised.
how are things going with you??
Pleased to hear that the nausea hasn't been too bad for the last few days. I think the only way to be tested for giardia is by a stool test but as the doctor says you just take anitbiotics for one or two days.
Do you think the Chinese doctor is helping? I am thinking of stopping my treatment with the Chinese doctor as it doesn't seem to be helping.
What is the latest with Dr Borody, are you going to see him again?
I am not doing too well, so frustrating to not get any real long term relief. It is so debilitating this illness isn't it?
Hope things get better for both of us.

 
Old 08-10-2010, 10:17 PM   #130
Senior Member
(female)
 
Join Date: Mar 2010
Posts: 106
aussiegirl2 HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by idkwia View Post
Pleased to hear that the nausea hasn't been too bad for the last few days. I think the only way to be tested for giardia is by a stool test but as the doctor says you just take anitbiotics for one or two days.
Do you think the Chinese doctor is helping? I am thinking of stopping my treatment with the Chinese doctor as it doesn't seem to be helping.
What is the latest with Dr Borody, are you going to see him again?
I am not doing too well, so frustrating to not get any real long term relief. It is so debilitating this illness isn't it?
Hope things get better for both of us.
Hi
I do think the chinese doctor is helping me. I couldnt have functioned a couple of months ago without lots of medication and now I can. (some days better than others) I felt a bit sick this morning but ok now. I find camomile tea is good when i feel sick as is ginger tablets and sodium phosphate and magnesium phosphate tablets ( I take them 3 times a day)
has your chinese doc got an explanation why you are sick? mine thinks its my liver.. i also think the regular acupuncture helps with nausea ( though it is expensive!)
i am sorry that you are not doing well....are u still on mirtazapine? maybe you could try amitryptline instead? given you dont suffer any side effects?
Im also taking a new anti reflux drug which i think is helping a little as well.
have u tried reflux meds? it can be silent... no other symptoms other than nausea.
i am going to stick with my doctors that i have at the moment.. im going to see another gastro for a review in the coming weeks.. so i dont think i will see dr borody at the moment. ( given i dont have an infection or parasite im not sure he can help me)
keep your chin up... and i hope u feel better

 
Old 08-12-2010, 02:24 PM   #131
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by aussiegirl2 View Post
Hi
I do think the chinese doctor is helping me. I couldnt have functioned a couple of months ago without lots of medication and now I can. (some days better than others) I felt a bit sick this morning but ok now. I find camomile tea is good when i feel sick as is ginger tablets and sodium phosphate and magnesium phosphate tablets ( I take them 3 times a day)
has your chinese doc got an explanation why you are sick? mine thinks its my liver.. i also think the regular acupuncture helps with nausea ( though it is expensive!)
i am sorry that you are not doing well....are u still on mirtazapine? maybe you could try amitryptline instead? given you dont suffer any side effects?
Im also taking a new anti reflux drug which i think is helping a little as well.
have u tried reflux meds? it can be silent... no other symptoms other than nausea.
i am going to stick with my doctors that i have at the moment.. im going to see another gastro for a review in the coming weeks.. so i dont think i will see dr borody at the moment. ( given i dont have an infection or parasite im not sure he can help me)
keep your chin up... and i hope u feel better
Hi Aussiegirl2 - my Chinese doctor thinks it is a problem with my spleen. I have decided not to see him again at the moment. I may go back to him in the futre but having seen him 18 times over 4 mths and also another Chinese doctor 24 times perviously I think it is time to try something else.
While I think of it you should really find out if you are intolerant to certain foods such as gluten, dairy, etc or suffer from fructose malabsorption. I have tested myself and I am ok but I know that these can cause nausea even though these foods may not have caused problems earlier in life.
Dr Borody called me yesterday. He thinks I have an infection so he is going to send me some antibiotics, no doubt the same ones as he gave to you. He says that if my symptoms improve then this will prove that I have an infection and then I should have fecal transplantation. I assume that because you didn't respond positively to the antibiotics he figured you don't have an infection, is that correct?
BTW, do you have nay problems with your bowel movements? I am asking because whilst I am not constipated or have diarrhoea my bowels are not working correctly. Also I do get pains from time to time in my stomach, do you?
Good luck and keep in touch.

 
Old 08-13-2010, 12:59 AM   #132
Senior Member
(female)
 
Join Date: Mar 2010
Posts: 106
aussiegirl2 HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by idkwia View Post
Hi Aussiegirl2 - my Chinese doctor thinks it is a problem with my spleen. I have decided not to see him again at the moment. I may go back to him in the futre but having seen him 18 times over 4 mths and also another Chinese doctor 24 times perviously I think it is time to try something else.
While I think of it you should really find out if you are intolerant to certain foods such as gluten, dairy, etc or suffer from fructose malabsorption. I have tested myself and I am ok but I know that these can cause nausea even though these foods may not have caused problems earlier in life.
Dr Borody called me yesterday. He thinks I have an infection so he is going to send me some antibiotics, no doubt the same ones as he gave to you. He says that if my symptoms improve then this will prove that I have an infection and then I should have fecal transplantation. I assume that because you didn't respond positively to the antibiotics he figured you don't have an infection, is that correct?
BTW, do you have nay problems with your bowel movements? I am asking because whilst I am not constipated or have diarrhoea my bowels are not working correctly. Also I do get pains from time to time in my stomach, do you?
Good luck and keep in touch.

hi yes it sounds like he will send u the 2 antibiotics i took. i hope it works for u.
i will ask my new gastro about testing for food allergies (dairy,gluten etc) and fructose. my digestion has improved since cutting out dairy and gluten but its restrictive..
i found my stomach symptoms have improved alot since i cut out gluten.. no more stomach cramps and constipation.
i dont think i will ever go back to eating lots of bread like i used to.
this week i have probably felt the least nausea for 3 months so that is good. but i still had one bad day and night!
i hope the antibiotics work for u. i just took a course of the ones to kill of giardia incase there was any lurking.
do u keep a log of what u eat/supplements/ and how u are feeling?
that can also be useful to look for patterns.

 
Old 08-14-2010, 01:03 PM   #133
Senior Member
(male)
 
Join Date: Sep 2009
Location: UK
Posts: 201
idkwia HB Useridkwia HB User
Re: Anyone with Chronic idiopathic nausea?

Quote:
Originally Posted by aussiegirl2 View Post
hi yes it sounds like he will send u the 2 antibiotics i took. i hope it works for u.
i will ask my new gastro about testing for food allergies (dairy,gluten etc) and fructose. my digestion has improved since cutting out dairy and gluten but its restrictive..
i found my stomach symptoms have improved alot since i cut out gluten.. no more stomach cramps and constipation.
i dont think i will ever go back to eating lots of bread like i used to.
this week i have probably felt the least nausea for 3 months so that is good. but i still had one bad day and night!
i hope the antibiotics work for u. i just took a course of the ones to kill of giardia incase there was any lurking.
do u keep a log of what u eat/supplements/ and how u are feeling?
that can also be useful to look for patterns.
I have kept a log of what I have eaten since October 2008 but cannot find any patterns whatsoever.
Are you bowel movements normal?

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Join Our Newsletter

Stay healthy through tips curated by our health experts.

Whoops,

There was a problem adding your email Try again

Thank You

Your email has been added








TOP THANKED CONTRIBUTORS



janewhite1 (20), bluepumkin (18), solofelix (17), Harry (13), flipfleury (8), ladybud (8), Titchou (8), MountainReader (7), jmarple (6), rufous57 (6)

Site Wide Totals

teteri66 (1180), MSJayhawk (1004), Apollo123 (903), Titchou (847), janewhite1 (823), Gabriel (759), ladybud (754), sammy64 (668), midwest1 (668), BlueSkies14 (610)



All times are GMT -7. The time now is 06:01 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!