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Old 03-23-2009, 08:58 AM   #1
Rod Rod is offline
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Advice Please

I’m not sure where to post this thread so here goes.
Over the last 30 years I have had spells of diaorea which were diagnosed as IBS.
Around 7 years ago I had an unexplained few weeks of extreme fatigue that doctors seemed to pass off because I looked ok. Since then I have had lots of spells of unwellness and have had many appointments and spent quite a lot of money but never got any diagnosis apart from IBS. Around 3 years ago I felt really ill with abdominal pains (colic type). I went to the hospital and was kept in for 5 days because they said my liver tests were off the scale. They couldn’t find the cause and over a few weeks my results returned to normal. I have had a colonoscopy and 2 upper gastroscopy. On one they found gastritis and asked many questions about alcohol and nsaids etc but I barely drink and don’t take nsaids.
Here are the symptoms I have experienced in this time.
Pressure in ears
Sweats
Lower abdominal colic
Headache
Dry mouth
Palpitations
Dizzy & Light Headed
Tired & fatigued
Nausea
Legs Swelling
Muscle Aches
Migraines with flashing lights
Burning in stomach
Bloated
Indigestion
Constant rumblings in stomach and intestines
Stiffness in legs
Feeling flushed
Problems sleeping (wake up with stomach probs)
Pain under left rib
During this time I have had at some time all of the following symptoms but lately mostly the ones below.
Over the last 6 months my symptoms have become much worse. Mainly bloating indigestion nausea stomach burning heart palpitations weakness in muscles migraines and flushy feelings etc. I am also having difficulty sleeping.
I am having blood tests this week and an upper gastroscopy in 2 weeks.
2 weeks ago I decided to miss out gluten and dairy for a few days . I did feel a little better and slept better but after 5 days I started to eat normal food because of my upcoming tests. On the first night I felt really ill again and thought I was on to something. Then for the next few days I felt much better and slept ok. I thought it must have been coincidence. However today all of my symptoms have returned.
There were a few weeks in January when I felt a lot better but then it all started again.
Any ideas appreciated.

 
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Old 09-20-2009, 08:45 PM   #2
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Re: Advice Please

Sorry this is so long but I feel your pain. Have you gotten anywhere on your symptoms yet?

1977 - At the age of 2 I was hospitalized for 7 days for a form of herpes. (unknown to drs)(Almost died) Severe fever, dehydration, covered in sores
1978 - From the age of 3 I started having bowel problems. Spent time at hospital as a child for abdominal pains and compacted bowels, doctors had to go in and remove stools through anus. Had to have enemas constantly growing up. This lasted for about 10 years.
1994 – Plastic surgery to face due to an extensive dog bite
1996 –abdominal pains began again – hospital visits over the years – no results (Orlando,FL)
1998 – Onset of vision problems (blurry, halos, double, colors (green on white walls), headaches, dizziness, floaters, squiggly lines, flashes of lights (purple dots), light sensitivity) This visual disturbances have remained since their onset date and have only gotten worse
1999-2002 – Nausea, severe pain under right rib, pain around belly button and to the right of belly button, headaches, constipation, diarrhea, (especially associated with alcohol), bloating, gas, extreme fatigue, muscle spasms, back pain, belching
2002 – Dr said gallbladder was not functioning properly but no stones (had it removed in Clearwater, FL)
2002-2007 – Same symptoms occurs, no change with gallbladder removal.
2006 – Caught intestinal infection while on cruise, treated with antibiotics back in the states
2007 – Appetite began decreasing, weight remains stable. Abdominal pain attacks especially under right rib lasting for hours accompanied with fatigue, nausea, dizziness, abdominal bloating, blurred vision and headaches
2008 – (July) Kidney infection – treated with Cipro
2008 – (Nov) Camplabactorjejuni, hospitalized at N. side for 4 days. Fever, nausea, intestinal bleeding, treated with Cipro
Attending Gastro: Dr. Hirsch, he suspected I had Colitis. Bloodwork done at N. Side Hopsital said I was negative for Celiac but in a positive range for Colitis/Chrons.
2009 – All symptoms remain, quit drinking alcohol because of the pain and sickness I was in the following days
5/14/09 – Colonoscopy/EGD, N Side Hospital, Dr. Pore. Said I had mild to moderate intestinal inflammation. (Possible Colitis) Placed me on Lialda 1.2gm 2x a day. Biopsy was negative.
06/09 - Returned to Dr. Pore no change in symptoms after med. Placed me on a steroid pack (no change)
6/17/09 – Small bowel series of the Abdomen and Pelvis at St. Josephs, Dr Pore (Inflammation in stomach)
07/09 – Returned to Dr. Pore no change in symptoms, he changed meds to Asacol and recommended exploratory surgery.
08/09 – in TX for 2 weeks. Could not get out of bed, extreme fatigue, no appetite (lost 8 pounds) pain and pressure in abdomen and under ribs, nausea, dizziness, constipation, and diarrhea, extreme pain, extreme bloating causing severe pressure against abdomen and ribs, vision problems, red blood after bowel movement(possible hemorrhoid)
Hospital visit twice in TX. 1st visit, all was normal
2nd visit – slight pancreatitis,
Placed me on a steroid pack. (did nothing)
08/09 – Consulted a new gastro, Dr. Strauss, he reviewed bloodwork and test results and said he feels I do not have colitis or chrons. He ordered another Colonoscopy/EGD.
After procedure, he said there was no inflammation seen. Biopsy came back negative.
Diagnosed me with IBS. I told him I have lost all energy and severe nausea and he said this has nothing to do with IBS.
09/09 – all symptoms remained. After surgery having sharp pain under right rib with deep breaths. Hospital performed an ultrasound and test is neg.
Released from hospital on 9/13.
09/11/09 – had an open myomectomy, hysteroscopy, cervical polypectomy, chromotubation, checked for endometriosis which was negative. Fibroid was on outside of uterus pushing on bladder and colon.
09/14/09 – running fever of 100.7 went to hospital. Minor bladder infection. Did CT scan of abdomen, (Negative). Sent home with antibiotics.
9/15/09 – found new primary Dr. Scott Small.

Symptoms to date: extreme fatigue (unable to get out of bed), little appetite, pain and pressure in abdomen and under ribs, nausea, dizziness, constipation, diarrhea, burping foam and food, extreme bloating causing severe pressure against abdomen and ribs everyday, all day, sore throat on and off, feeling of gas that severely bloats abdomen but will not pass, sharpest pain under right rib, tenderness under sternum, minimal bowel movements, spasms under right rib
Vision impairment, muscle spasms, bottom of right foot burning at times, cold sensation on face (gone now)


Gyno
06/09 - Went for normal gyno visit, smear was normal, large pylop on cervix Dr. Hirsch
07/09 – Vaginal ultrasound revealed 5cm fibroid on uterus, Dr. recommended surgery but would not do surgery until intestines were resolved
08/09 – 2nd opinion, consulted Dr. Robert Robbins, he verified everything as well, I elected for surgery with him
09/11/09 – had an open myomectomy, hysteroscopy, cervical polypectomy, chromotubation, checked for endometriosis which was negative. Fibroid was on outside of uterus pushing on bladder and colon.



Cardio
04/09 – noticed heart palpitations
06/09 – Cardio work up Dr. Shah, stress test – normal, ultrasound of heart, normal, 24 hour hear monitor reveals many pvcs. Dr did not place me on meds due to blood pressure running low. Dr recommended me to another cardio who may be able to go into heart with a stint and stop pvcs. Did not go to recommended Dr

 
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Old 09-21-2009, 02:21 AM   #3
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Re: Advice Please

Hi. Yes there has been a change. I knew I had gallstones but was told that my symptoms were not from the gallbladder. Anyway 6 weeks agao had had the gallbladder removed and its like a miracle cure. No more palpitations and I can eat anything I want to without problems. Not even on any tablets now. I had suffered for years before this.
Obviously thats no help for you as you have alsready had yours removed. I do hope you find a solution very soon.

 
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