After having my enlarged gallbladder removed three years ago and subsequently suffering from chronic uncontrolled diarrhea and now mal-absorption, it has been suggested that I consider a colostomy. Living in a metropolitan area I have had access to specialists, clinics, and two universities with medical centers. The basic diagnosis is bile dumping and this was made by the heads of gastroenterology at the two universities, my internist, and several gastro specialists. Of course there have been several specialists that deny that bile dumping even exists. After going through these years of testing and probing and trying the latest and the oldest drugs around, is colostomy the real answer? I have become housebound and seriously depressed. Physicians have told me that a colostomy is tolerable - but I have known people who find it totally humiliating due to its constraints on activity, potential accidents, smell, etc. Your comments, please. Thank you.
This sounds like a nightmare come true, just about the worst case scenario for those us having suffered through gallbladder issues.
Is this a temporary measure to allow your intestines time to recover and address the malabsorption issue or a proposed permanent solution?
Without sounding like a wiseass, maybe they should shunt the bile duct output to another location. Without quoting another web site which we are not allowed to do on this site, I came some information on the internet that talks about using a catheter from the biliary tract to move the bile to a point further down the digestive tract. Not sure if this would address the problem.
I can certainly understand the desire to avoid a colostomy.
The colostomy is viewed as a permanent "solution" to the issue since everything else has failed and bile dumping is not understood. Evidently, the body has no feedback loop where the GI tract can "tell" the liver that there is sufficient bile and production can cease for a while.
As I understand it there is supposed to be a feedback loop to slow down bile production.
Again while I cannot post a link, look on-line for the journal, Clinical Gastroenterology and Hepatology, in November 2009 there is an article entitled "Chronic Diarrhea Due to Excessive Bile Acid Synthesis....." It also links to related articles.
Secondly have they tried drugs to suppress bile production, such as Ursodiol, statins and steroids which may suppress bile production?
I have dealt with Gastroenterologists in the Olympia area and was not impressed. I know you have been to a lot of doctors , but the one GI doctor that I have been impressed with is Dr. Michael Lyons in Puyallup/Tacoma.
Again thank you for the very informative information. I will look up the journal and speak to my internist about Ursodiol. I have been to the UW, U of Oregon, and the Portland
GI Clinic and seven specialists from Olympia to Seattle. The malabsorption has caused me to lose over 50 pounds and my motility rate is so fast that they abandoned a barium follow-thru. A retired doctor told me about the old formula for Donnegel, but I believe Donnegel is no longer available in the US, and, especially, in its original formulation which might have included belladonna up until about 1985. Thank you, again.
Do you know of anyone who has a colostomy and how they are dealing with it?