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Old 12-03-2009, 06:22 AM   #1
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Sphincter of Oddi Dysfunction Someone please help me!

I had my gallbladder removed a year ago. I have problems with digestion ever since. After the first month of my surgery I noticed I would get a belchie indigestion feeling and then nausea feeling. I never vomitted nor have I ever gotten a fever. I just feel sick to my stomach. Sometimes I would get dirreahea. This was happening once a month. Is was enough to get my anxiety going. So about 6 months later I decided to get some tests done to find out what all this pain was about because I started to get this pain under my right rib and it tighten and go to my back. Well have every test and xray they found nothing and said I am crazy. They did find some mild non specific gastritis in my stomach.

I took the matter in my own hands and though Welchol would help everything but it only helped the dirreahea. I am still stuck with the nausea feeling and the pain under my rib. I was told to take prilosac for the belching or indigestion and that doesn't work. Neither does maloc or tums. I have tried papaya pills for digestion and every other herb. I wake some mornings with nausea. I notice when I walk alot my pain in my rib area starts and gets relieved by sitting down sometimes. I went to a accupuncturist and after a month of treatment I was feeling better for two months but it returned before Thanksgiving. I feel so hopeless and I don't know if my anxiety is causing all this. I don't want to get a ERCP my friend went into a comma. Here are my questions:

Does this sound like SOD?

Can anyone get better as time goes by without getting a ERCP?

Do you get nausea with it?

Is there a medicine for this?

Does it come and go?

Can you live with this?

 
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Old 12-03-2009, 07:55 AM   #2
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Gastritis causes stomach discomfort but I think your problem is more than just gastritis. Find a GI clinic and get to know what exactly is happening to you. But I can assure you that anxiety can really worsen digestive disorder so please work on your anxiety as well. I'm sorry I couldn't be of much help, hope you will get better responses from some other people.

 
Old 12-03-2009, 10:41 AM   #3
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Re: Sphincter of Oddi Dysfunction Someone please help me!

I went to a gasterologist and he was the one that told me I was imagining the pain. I had a pancritis test, h-ploria test, numerous x-rays to test for stones, endoscopy, colonoscopy, and other tests. They found nothing. The only thing I have not had done is a ERCP with blood test.

My diet consist of small meals throughout the day and within 10 grams of fat for the whole day. I miss salads. I walk two miles a day and I still need to lose 70 lbs. I don't know if weight will make a difference but I still have a fatty liver.

 
Old 12-03-2009, 06:57 PM   #4
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Hi yes you can get nausea with SOD. The pain of SOD is usally located in the area of the gallbladder and may go to the back or shoulder. I am going to be evaluated for this soon in SC at MUSC by dr cotton. He is an expert on this.

I had my gallbladder out the end of sept and have had pain constant in the area of the gallbladder nausea and attacks of pain that are severe. I get these attacks that are on the right gallbladder area and in my upper stomach in the middle under my breasts. I had one bad attack and was throwing up thick green bile and was admitted. They gave me dilaudid which is like morphine and it made my attack 10 times worse. Then they had to give me ativan to stop the attack. My liver enzymes were elevated 10x normal but my bile duct was not dilated so this points to SOD type 2.

MY GI then said I may have this SOD and referred me out to a dr in SC who is one of the best at ercp. He brought the procedure back from Japan in the 1970s and has helped many with this disorder. I can let you know what happens. There are three different types of SOD. Type 1 has elevated enzymes, dilated bile duct and pain, Type 2 has elevated enzymes and pain, Type 3 has just pain. IV Morphine and narcotics usually cause a bad attack of pain in people with this disorder so the enzymes elevated combined with the bad attack with narcotics makes me certain I have it.

The type 3 SOD is usually just pain with no other symptoms. ERCP generally does not help this type much. Have you ever had a bad attack of pain like a 10 on scale of 1-10? If you get these go get your enzymes tested during an attack. If you do not then you may just have a mild case . You could ask your dr to prescribe a muscle relxant for your GI system such and bentyl levbid or levisin and see if this helps at all. A few people have success with this. Some get worse over time and eventually need ercp some stay the same.

I also have the diarrheah and belching and have not had any luck with this. This is usually not realted to the SOD but just a side effect of gallbladder removal. I cannot take the welchol. Makes me feel too constipated and ill. I may try the questran powder which is another one to take for the diarrheah or caltrate 600 which I have heard helps some. The belching nothing helps with this.

 
Old 12-04-2009, 06:47 AM   #5
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by sunsetbeach View Post
Hi yes you can get nausea with SOD. The pain of SOD is usally located in the area of the gallbladder and may go to the back or shoulder. I am going to be evaluated for this soon in SC at MUSC by dr cotton. He is an expert on this.

I had my gallbladder out the end of sept and have had pain constant in the area of the gallbladder nausea and attacks of pain that are severe. I get these attacks that are on the right gallbladder area and in my upper stomach in the middle under my breasts. I had one bad attack and was throwing up thick green bile and was admitted. They gave me dilaudid which is like morphine and it made my attack 10 times worse. Then they had to give me ativan to stop the attack. My liver enzymes were elevated 10x normal but my bile duct was not dilated so this points to SOD type 2.

MY GI then said I may have this SOD and referred me out to a dr in SC who is one of the best at ercp. He brought the procedure back from Japan in the 1970s and has helped many with this disorder. I can let you know what happens. There are three different types of SOD. Type 1 has elevated enzymes, dilated bile duct and pain, Type 2 has elevated enzymes and pain, Type 3 has just pain. IV Morphine and narcotics usually cause a bad attack of pain in people with this disorder so the enzymes elevated combined with the bad attack with narcotics makes me certain I have it.

The type 3 SOD is usually just pain with no other symptoms. ERCP generally does not help this type much. Have you ever had a bad attack of pain like a 10 on scale of 1-10? If you get these go get your enzymes tested during an attack. If you do not then you may just have a mild case . You could ask your dr to prescribe a muscle relxant for your GI system such and bentyl levbid or levisin and see if this helps at all. A few people have success with this. Some get worse over time and eventually need ercp some stay the same.

I also have the diarrheah and belching and have not had any luck with this. This is usually not realted to the SOD but just a side effect of gallbladder removal. I cannot take the welchol. Makes me feel too constipated and ill. I may try the questran powder which is another one to take for the diarrheah or caltrate 600 which I have heard helps some. The belching nothing helps with this.
Let me know what happens. Mine was happening once a month with nausea and pain in upper right rib. When I started the testing it got worse and became everyday which I thought my anxiety is making it worse. So I saw accupunctist and after a month of treatment - no more attacks. I was feeling good for two months. Then I left accupuncture for a month and it came back like right now. So everyday I suffer with this - belching and nausea feeling. The pain in upper right rib feels like bad back pain. So I am stuck with this for the rest of my life - no gets rid of it without treatment. I never throw up. Is that next for me?

 
Old 12-04-2009, 07:45 AM   #6
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Re: Sphincter of Oddi Dysfunction Someone please help me!

I would try the drugs I mentioned first and see if they help you. You never know it may or may not progress into vomiting or more pain. Plenty of people never throw up and just have pain and nausea. There are people who have stayed the same 10 years or more and just dealt with the nausea with phengan or zofran and occasional pain killers.
This dysfuction presents a little differently in every person. There are some with sod that end up with chronic pancreatitis as well. Some with sod and just mild pain, some have sod with nausea and pain. Some it progresses and some it stays the same. Its hard to predict where you will go. Evaluation by an expert is the best thing since they can tell you what specifically is wrong with your ducts. It could be just your bile duct is clogged or both pancreatic and bile duct is narrowed. If they were completely blocked off you would be in the hospital with extreme pain and very sick.

So, If you cannot get relief then you may want to go to musc in sc or indiana to be evaluated for sod. You mention that you have elevated liver enzymes in the other thread. This is an indication of sod type 2 which has a better success rate than 3 with the ercp. They may be able to help you. Type 1 has the best success rate but there are not as many type 1 people out there. The back pain is referred pain from the sod attacks. You can google john hopkins sphincter of oddi and look at that link to see a lot of good info about this condition.

 
Old 12-04-2009, 10:46 AM   #7
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Re: Sphincter of Oddi Dysfunction Someone please help me!

I wonder why this happens after you get your gall bladder removed??



I had a similar attack that sent me to the doctors two years ago and they thought it was my gall bladder but after I had a ct scan they saw no stones. They diagnosed me with fatty liver. Then a year later I had a gall bladder attack and the sonagram showed stones. I still had a fatty liver. I wonder if a fatty liver could give you all those symptoms too.

 
Old 12-04-2009, 10:48 AM   #8
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by sunsetbeach View Post
I would try the drugs I mentioned first and see if they help you. You never know it may or may not progress into vomiting or more pain. Plenty of people never throw up and just have pain and nausea. There are people who have stayed the same 10 years or more and just dealt with the nausea with phengan or zofran and occasional pain killers.
This dysfuction presents a little differently in every person. There are some with sod that end up with chronic pancreatitis as well. Some with sod and just mild pain, some have sod with nausea and pain. Some it progresses and some it stays the same. Its hard to predict where you will go. Evaluation by an expert is the best thing since they can tell you what specifically is wrong with your ducts. It could be just your bile duct is clogged or both pancreatic and bile duct is narrowed. If they were completely blocked off you would be in the hospital with extreme pain and very sick.

So, If you cannot get relief then you may want to go to musc in sc or indiana to be evaluated for sod. You mention that you have elevated liver enzymes in the other thread. This is an indication of sod type 2 which has a better success rate than 3 with the ercp. They may be able to help you. Type 1 has the best success rate but there are not as many type 1 people out there. The back pain is referred pain from the sod attacks. You can google john hopkins sphincter of oddi and look at that link to see a lot of good info about this condition.
Will the pain killer stop the nausea? Is the pain causing the nausea??

 
Old 12-04-2009, 11:19 AM   #9
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by gigi11 View Post
Will the pain killer stop the nausea? Is the pain causing the nausea??
Most people take either bentyl levisin or levbid to help the spasms and pain. They take zofran or phengan for the nausea. So you would probably need both.

 
Old 02-18-2010, 07:15 AM   #10
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by gigi11 View Post
I had my gallbladder removed a year ago. I have problems with digestion ever since. After the first month of my surgery I noticed I would get a belchie indigestion feeling and then nausea feeling. I never vomitted nor have I ever gotten a fever. I just feel sick to my stomach. Sometimes I would get dirreahea. This was happening once a month. Is was enough to get my anxiety going. So about 6 months later I decided to get some tests done to find out what all this pain was about because I started to get this pain under my right rib and it tighten and go to my back. Well have every test and xray they found nothing and said I am crazy. They did find some mild non specific gastritis in my stomach.

I took the matter in my own hands and though Welchol would help everything but it only helped the dirreahea. I am still stuck with the nausea feeling and the pain under my rib. I was told to take prilosac for the belching or indigestion and that doesn't work. Neither does maloc or tums. I have tried papaya pills for digestion and every other herb. I wake some mornings with nausea. I notice when I walk alot my pain in my rib area starts and gets relieved by sitting down sometimes. I went to a accupuncturist and after a month of treatment I was feeling better for two months but it returned before Thanksgiving. I feel so hopeless and I don't know if my anxiety is causing all this. I don't want to get a ERCP my friend went into a comma. Here are my questions:

Does this sound like SOD?

Can anyone get better as time goes by without getting a ERCP?

Do you get nausea with it?

Is there a medicine for this?

Does it come and go?

Can you live with this?
I've suffered with the same problem for years now. My pains started about a year and a half after my gall bladder surgery. Suddenly I started having pains that resembled my gall bladder attacks. After numerous tests a digestive specialist determined I had sphincter of oddi dysfunction. He put me on a medicine called Levsin which helps the spasming that causes the pain and nausea. It helped for awhile and I didn't have problems with it until recently it's popped up again. My doctor upped me to taking four of these pills a day and it's helped quite a bit, so it might be something you want to consider. From my experience it seems like it can come and go. Like I said, I hadn't had problems for awhile until recently. I've been told to really watch what you eat and try to avoid fatty or acidic foods as much as possible. A good otc heartburn medicine helps with this quite a bit too. I have been told NOT to have the surgery because the risks are too bad and because of the risks most doctors won't even perform the surgery. Hope this info helps. I'm still looking for info on this too to get it under control even bette.

 
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Old 02-19-2010, 03:37 AM   #11
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by kriss131 View Post
I've suffered with the same problem for years now. My pains started about a year and a half after my gall bladder surgery. Suddenly I started having pains that resembled my gall bladder attacks. After numerous tests a digestive specialist determined I had sphincter of oddi dysfunction. He put me on a medicine called Levsin which helps the spasming that causes the pain and nausea. It helped for awhile and I didn't have problems with it until recently it's popped up again. My doctor upped me to taking four of these pills a day and it's helped quite a bit, so it might be something you want to consider. From my experience it seems like it can come and go. Like I said, I hadn't had problems for awhile until recently. I've been told to really watch what you eat and try to avoid fatty or acidic foods as much as possible. A good otc heartburn medicine helps with this quite a bit too. I have been told NOT to have the surgery because the risks are too bad and because of the risks most doctors won't even perform the surgery. Hope this info helps. I'm still looking for info on this too to get it under control even bette.

Right now it is quiet. I have no problems since Christmas. I am hoping it was gastritis because my insurance insisted I take the powder drink to absorb my bile instead of the welchol. They won't cover the welchol because it is too expensive. So I fault the insurance company and won. It took a month for the Welchol to kick in from Thanksgiving to Christmas and it finally calmed my stomach down. I truly believe the bile was causing me to get gastritis - they found mild gastritis in my endoscopy. The welchol really helps to absorb all the bile. I also found with lots of meditation I able to calm my mind down. I also go to acupuncture and she hits the points of my liver and bile ducts to calm the spasm if I have any. How often does your pain come? Like once every 4 months? Do you have any other symptoms with it?

 
Old 02-19-2010, 11:14 AM   #12
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Re: Sphincter of Oddi Dysfunction Someone please help me!

eat healthy fats like olive oil, avacados, nuts, etc. Do away with aspartame, fake sweeteners (like in diet soda) white sugar, corn syrup, hydrogenated oils of any kind. Take Nordic Naturals Ultimate Omega or Carlson's Elite fish oils...2-4 pills per day. continue to eat smaller meals more frequently, do not eat 3hrs before bedtime...take Carlson's HCL w/ Pepsin with your largest meal of the day or even with up to 3 meals per day preferably. Also, get your vitamin D levels checked...if lower than 50 take 2000iu per day and check again in 6 months...if lower than 30 take 4000iu per day. Begin taking a few teaspoons of natural fiber per day, or at least take pectin or fiber pills. Take a high quality probiotic of 5-20 billion cfu per day....drink keifer...then let us know how it goes Also get your liver enzymes checked first...and then begin taking digestive bitters after large meals to train your liver since you have no gall bladder.

My 2 cents - make sure also you do not have an ulcer before taking HCL...

Last edited by CFIDS; 02-19-2010 at 11:18 AM.

 
Old 02-22-2010, 11:45 AM   #13
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by gigi11 View Post
Right now it is quiet. I have no problems since Christmas. I am hoping it was gastritis because my insurance insisted I take the powder drink to absorb my bile instead of the welchol. They won't cover the welchol because it is too expensive. So I fault the insurance company and won. It took a month for the Welchol to kick in from Thanksgiving to Christmas and it finally calmed my stomach down. I truly believe the bile was causing me to get gastritis - they found mild gastritis in my endoscopy. The welchol really helps to absorb all the bile. I also found with lots of meditation I able to calm my mind down. I also go to acupuncture and she hits the points of my liver and bile ducts to calm the spasm if I have any. How often does your pain come? Like once every 4 months? Do you have any other symptoms with it?
I hadn't had my pains for a couple of years now (except maybe mildly once every several months). Right now it seems to be happening around once a weke or more. Sometimes it feels pretty severe, sometimes just mild but still bothersome. My pain is in the top of my stomach, a knot-like feeling. I also get pain in the ribs, usually the left side (this symptom is fairly new, so I'm not sure if it is related or not). Other than that, I just get nausea and ocassionally dizziness and weakness (again, don't know if the dizziness and weakness are associated with this either). The levsin seems to calm down my pains, but they're still coming occasionally. Hoping someone will have more suggestions on how to control it.

 
Old 02-23-2010, 03:14 AM   #14
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by kriss131 View Post
I hadn't had my pains for a couple of years now (except maybe mildly once every several months). Right now it seems to be happening around once a weke or more. Sometimes it feels pretty severe, sometimes just mild but still bothersome. My pain is in the top of my stomach, a knot-like feeling. I also get pain in the ribs, usually the left side (this symptom is fairly new, so I'm not sure if it is related or not). Other than that, I just get nausea and ocassionally dizziness and weakness (again, don't know if the dizziness and weakness are associated with this either). The levsin seems to calm down my pains, but they're still coming occasionally. Hoping someone will have more suggestions on how to control it.
I think the dizziness and weakness are associated because I feel the same way. I thought it was anxiety but not sure. I am thinking I have so much gas in my system it makes me feel this way. I notice when I burp I get some relief of the dizziness.

 
Old 02-23-2010, 07:04 AM   #15
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Re: Sphincter of Oddi Dysfunction Someone please help me!

Quote:
Originally Posted by gigi11 View Post
I think the dizziness and weakness are associated because I feel the same way. I thought it was anxiety but not sure. I am thinking I have so much gas in my system it makes me feel this way. I notice when I burp I get some relief of the dizziness.
Good to know. I've also felt relief from burping, but more so with the bloated feeling. I also tend to get myself worked up when I start feeling ill, so I know that's not good for it.

 
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