For 11 months, both my husband and I have had extreme (up to 30 times a day) diarrhea. I have lost over 40 pounds - my husband not so much. The diarrhea is now being controlled with tincture of opium and lomotil. We've been tested by specialists in UCLA - endoscopy, MRI, Scans, capsule endoscopies, colonoscopies, blood tests, 3 day **** tests, and everything else possible . . . nothing shows in the results. After 3 specialists and almost a year, we are desperate. Anyone ever heard of such a thing? Undiagnosed diarrhea/weight loss and we feel like we're dying at this point. We've tested our water, ice maker, environmental things, etc. with nothing showing - - doctors are stumped. We are scared beyond belief. Someone the other day has suggested that someone put a freaking curse on us...not in our beliefs normally; but at this point, I wouldn't be surprised. Any suggestions?
I dont have the same issues, but I know when my GI issues started getting real attention (after 3 other specialist already saw me). I've had all the tests too before I found my current doctors - and they are experts in this field.
I was transferred (after vomiting, nausea, and 30 lbs weight loss from not being able to eat, and because no other specialist could stop it) to Temple University Digestive Disease Center in Philadelphia.
You should call and see if anyone there thinks they can help you.
It may be far away for you (you mentioned UCLA) - but if you are truly at your breaking point, it may not hurt to try.
Hi, I am so very sorry to hear you and your husband suffered with this type of diarrhea. I am hoping you are better now and have regained your health. My sister is having diarrhea bouts around 20 times a day for over 6 months and has all the testing you have had. No results with any drugs. My dad thinks someone cursed her as well. If you can post how you are now and what drugs helped, I would appreciated it. Thanks for posting your message.