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Old 07-12-2011, 12:23 AM   #1
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Lots of appointments- Getting very nervous!

Hello all,

Im new to the board and fairly new to all this stuff going on. I've had pain my my upper abdomen which move under my rib cage and into my back for going on 4 months now. On a scale of 1-5(5 being the worse possible) it stays at a burning 3 at all times. Anytime I eat or drink anything(even water and a small bite of fruit) results in a stabbing crippling pain. I also have severe nausea and vomiting(especially if I stand up for long periods of time...which is my job). Also I go from being constipated to diarrhea almost twice a day.

Finally I went to the ER in my area and they got blood work taken(it would take another day for them to get all the results back) but it sounded like an infection or ulcer. So they put me on a 10 day treatment of Amoxicillan, Biaxin and Prilosec. Exactly 7 days later I went back because I couldnt hold any food down, felt lightheaded and dizzy all the time and genuinely worse than before. The new ER doc told me my blood test had me testing positive for the H Pylori Infection and took me off the Amoxicillan and put me on the Biaxin for 4 more days (for a total of Biaxin treatment for 14 days).

The night before my lat day of Biaxin I called the ER and asked what else I could do. I was still having the same pain at the same level with now relief for any of my symptoms while on the medication. They told me to simply take the Prilosec for a month and go see a free clinic. That to me was unacceptable.

Two nights after I was back in crippling pain with no medicine at all so I went to a different ER(one that was recommended over our local) and was taken to get basic X-Rays and more blood work all of which came back fine. I was given Reglan for pain and given the numbers to do a follow up with a Gastro specialist. The Reglan gave me severe anxiety so I stopped taking that 24 hours after I got it.

Today was my first appt. with the specialist who has set me up with 3 tests. She told me that just because I was positive for H Pylori didn't necessarily mean I was infected, I could have just been exposed. She set me up with an ultrasound on the 19th, an Endoscopy on the 25th and a HIDA Scan on the 27th.

I have so many worries and concerns about all of this! I don't know what to do anymore but I cannot stand to even be at my job for more than 5 hours... I cannot play with my oldest son because I cant move that much due to pain and nausea. It is ruining my life!

I have read about the H Pylori and Im really scared that I have left it go unattended(if I do infact have/had it) that it could have cause something worse. My biggest fear is stomach cancer since it is linked to the infection. When she does the endoscopy she already said she is going to do a biopsy... she didnt specify that shed be looking for cancer...but I know that will be done anyway. I'm terrified. I'm only 23, I have two small children(4 and 1) and I am supposed to get married in November. This is putting a major wrinkle in everything- I just dont know here to turn anymore...

I know this is alot to read and I appreciate anyone who takes the time to... I really needed to get this out.

-Leapy

 
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Old 07-12-2011, 09:31 AM   #2
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Re: Lots of appointments- Getting very nervous!

If you have had a course of Antibiotics it is unlikely that you still have H.Pylori. Having said that some people have to have a longer course. When you had your first Endoscocopy Im sure they would have had a good look around for anything else. Not only was I diagnosed with H.Pylori but I was found to have a Hiatal Hernia as well also AR/GERD. It was found that I'd had an Ulcer, so there are a number of things which can cause similar symptoms to yours.
At your age Stomach Cancer is most unlikely. After taking Antibiotics you need to start taking Probiotics, Antibiotics can play havock with the intestines.
I wish you well and let us know how things go, Solofelix.

 
Old 07-12-2011, 09:44 AM   #3
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Re: Lots of appointments- Getting very nervous!

I havent had any endoscopy yet, thats on the 25th of this month. I'm nervous about the whole procedure. I hate sore throats and my gag reflex is pretty high, so the thought of a tube down my throat isnt very pleasant. Thank you- I will definitely keep this updated!

 
Old 07-12-2011, 12:52 PM   #4
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Re: Lots of appointments- Getting very nervous!

Leapy, Trust me and try not to worry about the Endoscopy. I had every reason to fear it as I cannot swallow even the smallest pill (everyone has to be crushed). I have a problem with swallowing, all my food has to be chewed to pulp, I'm also an Asthmatic.
You will be asleep before they put the tube in your throat, you wont know about it, just tell the nursing staff you want to be out and remember nothing (YOU WONT...)
Let us know how you get on after the 25th and all the best, Solofelix.

 
Old 07-12-2011, 01:02 PM   #5
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Re: Lots of appointments- Getting very nervous!

I've had 2 endoscopies. I was sedated through both of them, felt nothing. I was a little drowsy for about an hour afterward, then I felt completely normal.

It sounds like your doctor is on the right track. It might take a while to get answers, but hang in there.

I wouldn't worry about cancer at this point. Yes, people with chronic inflammation in the stomach are at higher risk, but it's something that happens over many many years, like folks who are infected with H. Pylori as infants developing stomach cancer at 70 or 80 years old. I guarantee it won't happen this year!

 
Old 07-13-2011, 06:39 PM   #6
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Re: Lots of appointments- Getting very nervous!

Thank you everyone.
I had alot of sickness yesterday and ended up vomiting the coffee ground stuff everyone kept asking me about... didnt' understand until yesterday. YUCK! However, I believe it could have been from taking pain meds, that are apparently too strong for me.

I am trying to calm down about the endoscopy- I know I need it to figure out whats going on, just hoping I can be put under or fall asleep. I know it the paper work it said all they use is a numbing spray for the procedure- I think that is what scares me. I do not have a good history with things that are supposed to numb. Like my first c-section I could feel everything they did until I finally had to yell that I could and had to be immediately put under. So I think thats what scares me the most. That I will feel it and it will just numb my throat so I cant speak and tell them. Ugh. I worry too much, lol. Sorry guys!!

Also, I'm a little concerned. I'm thinking I may have had the infection for awhile. When my youngest son was born, he had alot of gastral intestinal problems but they could never figure out why. Could he have had the h pylori too? I never heard any of the docs mention the infection before I had it, but he had problems for a couple months. He never had anything more than an x-ray done and an ultrasound of his liver. It seems almost the same symptoms as I have now but was too young to say anything, etc. I dont know how it was connected or could be, but just kind of thinking out loud, lol.

 
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