Good luck with your upcoming procedure. I noticed a difference in my respiratory difficulties immediately after surgery. It is a big decision to take to have the surgery, but from all my research, it seems the surgery is particularly effective for people with breathing difficulties as a symptom.
I just had the surgery on 1/18/12 and felt a great deal better in the hospital; once home, I regressed with respiratory symptoms on the first day home which I feared meant the surgery was not successful. Now I believe it was due to eating some German chocolates sent me from overseas. They melted right in my mouth, but soon I was coughing like crazy.
I am interested in your recovery story, as I never has heartburn or any typical GERD symptoms, just a horrid cluster or respiratory symptoms that have made me so sick that I felt my life was over. How are you faring now and what are the trouble zones, if any? Thank you much!
I hope all goes well as you heal from your open NF. I had a laproscopic NF about 6 mos. ago. I am extremely thankful that I'm not going through what you are. I hope this one heals quickly and your symptoms get better. It's interesting how different surgeons are with regards to post-op. I was only allowed no lump liquids for the first couple weeks. The soft foods came only after I got clearance from my surgeon after week two. I was also restricted from meat and bread for a few months.
My symptoms were extremely severe prior to the NF. In my case, the acid was irritating my lungs and causing me some severe breathing problems. I was on a bunch of meds and carry around an epi-pen for breathing emergencies and I still had almost non-stop reflux coughing.
I guess the question I have for you is how you knew your first (or second) NF was no longer working. Do you have any idea if you did anything that would have caused them to come undone? So far, I'm having good results, but I'm nervous about the possibility of having to go through what you are. Although, I would do it again if it gave me the same results I'm having now.
Here's wishing you well.
I, too, had severe respiratory issues, and have just had the NF on 1/18/12. All has been relatively well, then had a very bad day yesterday - coughing, sneezing, all of it. Feared it was all for naught, then thought it might be related to a wee chocolate binge (about 10 small pieces from Germany that just melted in my mouth). Today, so much better. Not sure what deg. of wrap I had, only that my doctor is rated top in this area. Can you give me a summary of how it has been for you? I could use the encouragement and ideas. Thank you so much!
Glad to hear you are doing fairly well. It has been a long day for me so I'll keep it short tonight. I can go into more detail later. If you search some of my posts from over the years, you can see my history from both before and after the procedure. I had my NF on October 8, 2010.
What did your doctor tell you about eating? Mine stressed liquids only for the first 2 weeks. I stayed pretty bland the first week with mostly clear liquids. I added in more variety the second week.
I can't remember the details. I do know I had a few minor problems after the surgery. Both my GI doc and surgeon weren't concerned. My GI doc explained it to me this way.... Your tummy is angry at you for what has been done to it. It takes at least 8 weeks for all of the swelling to go down in the stomach. Basically, he was telling me to take it easy and not rush things.
ONe thing I learned through experience is that it took a long time for things to get to where they were prior to surgery. It will take time for the body to heal up from that.
One thing that I know helped me when I needed a pick me up was hugging a squishy pillow up to my stomach.
I have another late night tomorrow, but I'll try to touch base with you. Maybe I can get a bit more in-depth.
Thank you so much.
Actually, I began on oatmeal the second day after surgery, and today I had mashed potatoes and gravy, as well as a corn souffle that actually had small pieces of corn in it. No problems, no pain or pain medicines. I go back to see both my surgeon and a lung specialist next week. Thrilled that I am no longer gasping for breath and spontaneously throwing up every day.
I never had heartburn, just severe respiratory symptoms. Glad to be leaving this portion of my life behind - so sick for 7 1/2 years.