It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Digestive Disorders Message Board
Post New Thread   Closed Thread
LinkBack Thread Tools
Old 01-12-2013, 11:49 AM   #1
Newbie
(female)
 
Join Date: Jan 2013
Location: Canada
Posts: 5
BuggeredGut HB User
At a Complete Loss: Hernia? Something else?

Hey folks,

just joined and I'm hoping to gain some insight into what the heck my problem could be.

I've been round the bend for testing. I've had an upper GI series, Endoscopy and Colonoscopy, Ultreasound, x-rays, bloodwork galore, Echocardiograms, ECGs.... everything says I'm a-okay (minus a persistent, slightly elevated white blood cell count) and I'm at my wit's end. So, here's my side of it all. I apologise in advance for the length, so if anyone manages to get through it, thank you!

I suffer from constant gas, belching (all day with or without food), constipation, upper stomach pain just below my sternum, frequent, regurgitation (I have to be careful sometimes, because if I bend over to pick something up, I'll throw up a little. Same thing can happen if I burp!), a sensation of having porridge sitting in my esophagus sometimes, shortness of breath, exhaustion after eating, heart palpitations, and what I can only describe as brief tearing or electrical spasms in my chest and just above my stomach. It also feels like my diaphragm aches at times.... all in all not pleasant. I feel pretty awful some days.

I've had any cardiac related problems ruled out. I do have PVCs daily, many many times a day and they're most aggravated when my stomach is tight and gassy. Those are being managed with Diltiazem, though. I don't drink, I don't smoke and never have. Overall, I'm in good health at the age of 31.

I've had stomach issues for as long as I can remember, even as a teenager, so I'm no stranger to the gross feelings, pain and discomfort. Things started to get worse, however, about 2 years ago when I took a trip to Cuba with my friend and her family. I started to feel exhausted and my stomach was aching terribly. The only thing that could offer some temporary relief while I was there was to pack down food, take shots of something like Brandy or Conjac, or belching. But, like I said, the relief was only temporary. I chalked it up to hormonal shenanigans, which is nothing unusual for me. It seemed to pass after I got back home a week and a bit later, so I left it at that.

A month later the same stomach ache came back. I'd become lethargic, get a headache, get gassy and belchy... all I'd want to do is lie down and sleep. On top of that, If I ate a meal and was out and about, sometimes I'd get a tight knot just above my stomach that would feel like air building up/a hunger type pang that would build and build and build until I'd nearly throw up unless I stopped and rested.

Once again, I dismissed it. I thought maybe I had picked up a bug or something. It passed and I was fine for another month or so. However, it kept coming back, sometimes lasting for a week, sometimes for two. Same symptoms every time. Eventually I'd had enough and went to my GP. He sent me for some bloodwork to make sure I hadn't picked anything up while I was in Cuba, but he results were clear. At the time I was also under a lot of stress from supervising on a project at work, dealing with a lot of BS from my artists and the insane work schedule. Around that time, my PVCs also kicked in with a vengeance. Once again my doc prescribed some Nexium for a bit, as well as Ativan for my panic attacks and Atenolol for the PVCs (after being on a holter monitor for a bit).

I was frustrated, but there wasn't much I felt I could do at this point. My doc was right about the level of stress I was under, so I just went with it and dealt with my waves of symptoms as they came and went..... until last summer of 2012.

The stomach issues as mentioned just reached their peak. Or maybe it was my patience. Either way, back to the doc I went. I mentioned the pain that felt like spasms above my stomach, the gas that wouldn't alleviate, the belching, the reflux, the burning, the whole shebang. He had suspected a hiatal hernia, which was when I had my upper GI series done. That was clear. So, back on the Nexium I went, which did nothing except get rid of the acidity.

I was so frustrated at one point I went to the ER one weekend to complain of the pressure above my stomach, a very awful burning pain in my lower sternum that felt like heart burn that wouldn't resolve, and the belching. They, of course, immediately checked me out for anything heart related and was cleared for that. The doc who saw me referred me to the hospital's GI specialist for further investigation. And after my endo/colonoscopy, he too had nothing for me except taking Dexilant instead of Nexium.

So, no hiatal hernia, no OBVIOUS GERD, but symptoms of it, no ulcers, nothing. I'm clean as a whistle. And yet I'm still fighting with my body and I'm now in pain DAILY. I have no answers or real solution. I'm still stuck on the possibility of having the hiatal hernia, because my symptoms seem to make sense for that. The hernia has also been in my family, though I don't know if such a thing can be considered genetic. Can this type of hernia be missed during all of these tests, especially if it's a sliding hernia?

To date, I'm still taking Dexilant to keep the stomach acid at bay. I'm doing what I can to avoid any foods that could trigger the gas, bloating, pain, discomfort, etc. Nothing seems to work, really. I'm still tired, especially after I eat. Still having regurgitation (I should mention it's worse if I'm reclined). I'm a little confused about the whole thing.

Heck, just prior to writing this as I was moving about my apartment, getting ready for the day, my stomach started to ache at the point around the base of my sternum. I pressed the area gently hoping to massage the muscles or something, and immediately the whole area started to ache, I felt light headed, belchy, headachy and exhausted to the point that I just needed to lie down.

So, again, hernia missed? Am I dying? LOL. I'm so sick of dealing with this stomach garbage, I'm not sure what my next step should even be. Maybe I SHOULD consider the motility study, or push for an MRI perhaps.....

Again, I'm sorry this was so dang long. Also if my train of thought was jumping around here and there. There's just so much to all of this that it's hard to think of where to begin and where to go with the information, hehe.

Cheers

 
Sponsors Lightbulb
   
Old 01-13-2013, 09:26 AM   #2
Junior Member
(female)
 
Join Date: Jun 2012
Location: Pittsburgh, PA, USA
Posts: 13
glojea HB User
Re: At a Complete Loss: Hernia? Something else?

Hi, have you had your gallbladder checked? Even though my ultrasound & hida scan came back normal, I still felt it was my gallbladder. I had the exact same symptoms as you before my surgery, and now they are completely gone. My hida scan had an ejection rate of 95% which the doctors said was normal, but the more research I did, it seems I had an overactive gallbladder (anything over 75% is considered overactive). I found a doctor who would do the surgery (it was a real gamble for me & I was scared) But it worked. All my symptoms are completely gone. These are the symptoms I had before surgery....pain by my rib cage, mostly on the right side. Gross stuff that came up my throat in the middle of the night & would wake me out of a dead sleep, anxiety, heart palpitations (sent me to ER but everything was normal), pain in my ear & jaw on the right side. I was so tired all the time. Very achy in my arms & shoulders. Belching, gas, constipation & diahrea alternating. Just thought I would share my experience with you. You may want to find a doctor who specializes in gallbladders. If you have any questions, I'll be checking the board. Good luck with everything. Gloria

 
Old 01-13-2013, 09:52 AM   #3
Newbie
(female)
 
Join Date: Jan 2013
Location: Canada
Posts: 5
BuggeredGut HB User
Re: At a Complete Loss: Hernia? Something else?

Quote:
Originally Posted by glojea View Post
Hi, have you had your gallbladder checked? Even though my ultrasound & hida scan came back normal, I still felt it was my gallbladder. I had the exact same symptoms as you before my surgery, and now they are completely gone. My hida scan had an ejection rate of 95% which the doctors said was normal, but the more research I did, it seems I had an overactive gallbladder (anything over 75% is considered overactive). I found a doctor who would do the surgery (it was a real gamble for me & I was scared) But it worked. All my symptoms are completely gone. These are the symptoms I had before surgery....pain by my rib cage, mostly on the right side. Gross stuff that came up my throat in the middle of the night & would wake me out of a dead sleep, anxiety, heart palpitations (sent me to ER but everything was normal), pain in my ear & jaw on the right side. I was so tired all the time. Very achy in my arms & shoulders. Belching, gas, constipation & diahrea alternating. Just thought I would share my experience with you. You may want to find a doctor who specializes in gallbladders. If you have any questions, I'll be checking the board. Good luck with everything. Gloria
Thank you so much! I'm going to look into my gallbladder further. I've never even heard of a HIDA scan before. Just looked it up... interesting! Always thought gallbladder issues could be ruled out simply through bloodwork and ultrasound. Forgot to note, I apparently have cysts in my liver, according to the last ultrasound I had. However I was assured that was fine since they were small and very few (maybe 2 if I can recall). I'll figure all this out yet! Again, thanks so much for your reply! Gives me some hope and some things to consider looking into further

 
Old 01-13-2013, 03:44 PM   #4
Junior Member
(female)
 
Join Date: Jun 2012
Location: Pittsburgh, PA, USA
Posts: 13
glojea HB User
Re: At a Complete Loss: Hernia? Something else?

Yeah, its amazing how much grief our gallbladder can cause. I actually feel like a new person since I had mine out. Never did I think I would feel this good. Its worth a shot for you to look into a gallbladder problem. Good luck, I'll be thinking of you. Please keep me updated if you get a chance. Take care.

 
Old 01-15-2013, 10:36 PM   #5
Junior Member
(female)
 
Join Date: Oct 2006
Location: Bowie MD. USA
Posts: 14
Shirley2641 HB User
Re: At a Complete Loss: Hernia? Something else?

Hi
Also along with your gallbladder, your pancreas can cause a lot of problems. Have you had your pancreas checked? I have chronic pancreatitis and I've had terrible stomachache for years before I knew I had it and other problems. My brother had Pancreatic cancer and his whole problem started like yours and it was sometime before they found it. Needless to say we lost him. Not trying to scare you, but The pancreas and gallbladder can both give you a lot of problems. Good luck and keep us posted, I'm sure we're all interested in seeing you resolve your problem. Shirley

 
Old 01-15-2013, 11:00 PM   #6
Junior Member
(female)
 
Join Date: Oct 2006
Location: Bowie MD. USA
Posts: 14
Shirley2641 HB User
Re: At a Complete Loss: Hernia? Something else?

Hi
Also along with your gallbladder, your pancreas can cause a lot of problems. Have you had your pancreas checked? I have chronic pancreatitis and I've had terrible stomachache for years before I knew I had it and other problems. My brother had Pancreatic cancer and his whole problem started like yours and it was sometime before they found it. Needless to say we lost him. Not trying to scare you, but The pancreas and gallbladder can both give you a lot of problems. Good luck and keep us posted, I'm sure we're all interested in seeing you resolve your problem. Shirley

 
Old 01-16-2013, 08:42 AM   #7
Newbie
(female)
 
Join Date: Jan 2013
Location: Canada
Posts: 5
BuggeredGut HB User
Re: At a Complete Loss: Hernia? Something else?

Quote:
Originally Posted by Shirley2641 View Post
Hi
Also along with your gallbladder, your pancreas can cause a lot of problems. Have you had your pancreas checked? I have chronic pancreatitis and I've had terrible stomachache for years before I knew I had it and other problems. My brother had Pancreatic cancer and his whole problem started like yours and it was sometime before they found it. Needless to say we lost him. Not trying to scare you, but The pancreas and gallbladder can both give you a lot of problems. Good luck and keep us posted, I'm sure we're all interested in seeing you resolve your problem. Shirley
Oh, thanks for the heads up on the pancreas! I have an appointment set up with my GP for next Tuesday, so I'll be talking to him about a number of things. I'll throw this on my list as well. He's going to be kept very busy with all of this. LOL

 
Old 01-21-2013, 06:21 AM   #8
Newbie
(male)
 
Join Date: Jan 2013
Location: China
Posts: 7
Vtecturbo HB User
Re: At a Complete Loss: Hernia? Something else?

I truly understand how u feel.. I'm oso in lost at the moment with symptoms that bug me for months. Some of my symptoms might be same as yours. I have a weird feeling in my esophagus or inside mid chest. Something seems to move inside.. Sometimes it felt like an electric jolt or gas thump. Jux one second n sometimes it makes me wanna cough. Sometimes no. I have some tightness on the sternum area other times I feel ok.. Medi didn help n I'm at wits end.i also felt the same as u, drained and felt like sleeping all day long. I hope ur well after your test..

 
Old 01-23-2013, 09:37 AM   #9
Newbie
(female)
 
Join Date: Jan 2013
Location: Canada
Posts: 5
BuggeredGut HB User
Re: At a Complete Loss: Hernia? Something else?

I hope you figure out what's going on, too! Yeah, what you wrote sounds similar indeed. I talked to my doc just the other day and he seems to think it's just excess air in my system.... I kind of agree and kind of don't. But he's agreed to at least do another ultrasound rather than sending me for more x-rays to check my gallbladder and pancreas. He doubts anything will show since, as I mentioned, all of my more invasive tests and scans have proven clean. I'm also going to try a motility drug prescription that I'm supposed to take at every meal to help move things along. That will hopefully get rid of that trapped air, as well. We'll see how that goes. In the mean time, I just have to accept that this is my "normal", as uncomfortable and often distressing as it is!

 
Closed Thread




Thread Tools

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is Off
HTML code is Off
Trackbacks are Off
Pingbacks are Off
Refbacks are Off




Sign Up Today!

Ask our community of thousands of members your health questions, and learn from others experiences. Join the conversation!

I want my free account

All times are GMT -7. The time now is 06:56 AM.



Site owned and operated by HealthBoards.comô
Terms of Use © 1998-2014 HealthBoards.comô All rights reserved.
Do not copy or redistribute in any form!